Guest guest Posted September 12, 2003 Report Share Posted September 12, 2003 , You can always walk at another site couldn't you? Where in PA are you? I am in south eastern PA and we walk at Ridley creek state park. you could come walk with us next spring! try not to give up the walk if you can get to another site. There are several here in this area, is there only one near you? What chapter of the CFF is it? We are in the Delaware Valley chapter and there are 11 walk sites for our chapter. I hope you can find another walk site so your son sees how many people really do care. Great Strides Well, I've just received some good and bad news from my local CF chapter. The bad news is that they're dropping our walk site. I've worked my butt off to try to get the numbers up and I had quite a few new people on our team this year. Our site just isn't bringing in the money I guess. This saddens me cause this is the one thing that I look forward to every year. What do I say to my son when he asks when the walk is? This was, in my own heart, for him. Now he'll think that no one cares! On a good note. Dropping our site could lead to a potential cure. I guess the foundation, or whoever, has several research projects underway and one of them could lead to a potential cure!!!!!!!!! Guess we won't be getting the yearly T-shirts that we also look forward to. We have every years for the past 7 or 8. I had to get this off my chest and what better place to do it. from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2003 Report Share Posted September 13, 2003 , I am sorry to hear that. I hope that it does lead to something that wonderful. I am sure that we will all be crossing out fingers and toes for that wonderful day to come while all of our children are healthy enough to benefit form this. Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2003 Report Share Posted September 14, 2003 In a message dated 9/12/2003 7:45:34 PM Central Daylight Time, ck570@... writes: > from PA Do your own walk!! Anything would help to raise money. We have done many carwash's to raise money, I have also heard of people doing bake sales at Walmart, or even have a breakfast fundraiser. Last June we did a Camouflage ball and made around $6,000 it was are first year but we are hoping next year will be even bigger. Don't give up on them start your own if you have family and friends all ready lined up tell them there has been a change in plans and give them some ideas as to what they would like to do I am sure they would love to help. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2003 Report Share Posted September 14, 2003 That is a great idea. We are going to do a wrap around event (as the cff calls it) sometime this year. I am not sure what it will be yet, but it will give us a chance to wear our TEAM ZACHARY shirts again. We had a little shirt made for Zach that says I AM ZACHARY. He was quite the center of attention at our walk. I am going to be volunteering (as time permits) to go to schools to give speeches and to give speeches at local clubs. Maybe if more people are familiar with the disease they will be more inclined to give when it comes to Great Strides time. Once I get my speech prepared I am going to send a letter to the school district, Chamber of Commerce, and the local hospital. I will be going to my niece's sixth grade class soon for my first speech. They raised money for Zach and want to meet him. Our town has four walks a year for different charities so it is tough to raise money with just a walk. As one Team Leader pointed out, " they need to do something original. Everybody does a walk. " I was quite irritated with her. She obviously hasn't been run over by the reality truck like we have. I thought having a child with a rare disease was very original. The Camouflage Ball sounds like fun. Maybe you could write to Bass Pro Shop and see if they could send you something to raffle off. My husband loves that store! Sara - mommy of Zach 19 months wcf > In a message dated 9/12/2003 7:45:34 PM Central Daylight Time, > ck570@a... writes: > > > > from PA > > Do your own walk!! Anything would help to raise money. We have done many > carwash's to raise money, I have also heard of people doing bake sales at Walmart, > or even have a breakfast fundraiser. Last June we did a Camouflage ball and > made around $6,000 it was are first year but we are hoping next year will be > even bigger. Don't give up on them start your own if you have family and friends > all ready lined up tell them there has been a change in plans and give them > some ideas as to what they would like to do I am sure they would love to help. > Deb A > > > Quote Link to comment Share on other sites More sharing options...
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