Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 wow Im assuming your daughter's name is Rhonda. I think i really like that name. Great name you choose for her :) Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Sara, My daughter had tubes in her ears before she was a year old. She had three sets all together. One set was pushed out by an infection that clogged the tube and pushed it out. After she reached about three, the ear infections slowed down. She had more than 11 ear infections before she was a year old. Along with many other issues. I wouldn't go by what the general consensus says. Each child whether cf or not are unique in their illnesses and health. Tina W., mother of , 17 yoa wcf VERY CONFUSED Hi everyone, I am getting information from my cf coordinator at our cf clinic that does not seem to go along with what others have experienced. First, Zach is having a lot of ear infections. I was told that cf kids really do not get many ear infections because their immune systems are so revved up that they can fight these infections off easily. I think she was politely telling me that his ear infections are not cf related, but I insisted on an ENT consult anyway and they are humoring me. Secondly, Zach is once again having large yellow mushy stools. I told the cf coordinator that we had modified Zach's diet and he had gained weight and had formed stools. But since Friday he is having a lot of absorption problems. She was alarmed that I had restricted Zach's diet because as long as cf people take their enzymes they can eat anything they want. Long story short we are starting a 72 hour fat stool study tonight. She was amazed that I agreed to this, but I will do anything to make my baby feel better. Period. I think she is using some flawed logic with some of her assumptions and I think she is getting tired of me. What are your thoughts????? Sara - mommy to Zach 19 months wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Did she see a special ENT that knew about cf or just a pediatric ent? I had tubes as a kid and my four year old niece has had tubes twice. I am certainly not against doing that, but no one has mentioned tubes yet. If tubes can help Zach have fewer ear infections and fewer instances of antibiotics, then I thinnk that may be the way to go. Thanks for the info. Sara > Sara, > My daughter had tubes in her ears before she was a year old. She had three > sets all together. One set was pushed out by an infection that clogged the > tube and pushed it out. After she reached about three, the ear infections > slowed down. She had more than 11 ear infections before she was a year old. > Along with many other issues. I wouldn't go by what the general consensus > says. Each child whether cf or not are unique in their illnesses and > health. > > Tina W., mother of , 17 yoa wcf > > VERY CONFUSED > > > Hi everyone, > I am getting information from my cf coordinator at our cf clinic > that does not seem to go along with what others have experienced. > First, Zach is having a lot of ear infections. I was told that cf > kids really do not get many ear infections because their immune > systems are so revved up that they can fight these infections off > easily. I think she was politely telling me that his ear infections > are not cf related, but I insisted on an ENT consult anyway and they > are humoring me. Secondly, Zach is once again having large yellow > mushy stools. I told the cf coordinator that we had modified Zach's > diet and he had gained weight and had formed stools. But since > Friday he is having a lot of absorption problems. She was alarmed > that I had restricted Zach's diet because as long as cf people take > their enzymes they can eat anything they want. Long story short we > are starting a 72 hour fat stool study tonight. She was amazed that > I agreed to this, but I will do anything to make my baby feel > better. Period. > I think she is using some flawed logic with some of her assumptions > and I think she is getting tired of me. > What are your thoughts????? > Sara - mommy to Zach 19 months wcf > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Sara, We went to a pediatric ENT. I don't know that he knew about CF. We were referred by our family doc. I was concerned about the damage to the ear drum and hearing. They also tried to do hearing tests to determine if there was any damage but she was just to small and at that point did not like the people in white coats. Tina W. VERY CONFUSED > > > Hi everyone, > I am getting information from my cf coordinator at our cf clinic > that does not seem to go along with what others have experienced. > First, Zach is having a lot of ear infections. I was told that cf > kids really do not get many ear infections because their immune > systems are so revved up that they can fight these infections off > easily. I think she was politely telling me that his ear infections > are not cf related, but I insisted on an ENT consult anyway and they > are humoring me. Secondly, Zach is once again having large yellow > mushy stools. I told the cf coordinator that we had modified Zach's > diet and he had gained weight and had formed stools. But since > Friday he is having a lot of absorption problems. She was alarmed > that I had restricted Zach's diet because as long as cf people take > their enzymes they can eat anything they want. Long story short we > are starting a 72 hour fat stool study tonight. She was amazed that > I agreed to this, but I will do anything to make my baby feel > better. Period. > I think she is using some flawed logic with some of her assumptions > and I think she is getting tired of me. > What are your thoughts????? > Sara - mommy to Zach 19 months wcf > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Sara, Is there anyone that you can complain to about her. This is insane all of the stuff that she is doing. In my opinion there is a lot of other stuff than just breating problems and fat absorption problems related to CF. This lady is crazy. Look at each one of our kids going through something totally different each day and all CF related some how or another. I bet you are at your wits end I am sorry for all of this you have to deal with. Love to you and Zach poor little baby Ashauna Quote Link to comment Share on other sites More sharing options...
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