Re: 4 weeks on diet and not sure it's helping

August 6, 2006

I am mom to 3 on the diet! I used the GFCF diet and saw changes

even after 4 years on the diet! Now we are all using the SCD and I

feel very good about it! is becoming more social and even

commenting on things and giving me info that has been locked up in

his head for sooo long! I will do this diet for the rest of our

lives! I know it is what will support all my kids the best!

Keep believing and write down anything postive! It will keep you

going! REMEMBER there is lots of food he ate FOR a very long time!

Give his body time to rid itself of this stuff!

Positive thought!

Pamela

>

> Hi,

>

> We just finished our 4th week on the SCD diet, mainly for my 5-

year

> old son (diagnosed PDD). I'm not sure if this diet is helping

him,

> and it is SO much work. Just thought I'd share what he is eating

and

> how he is doing; maybe someone can offer advice.

>

> His main issues before the diet were stimming, anxiety, and

> inconsistency in his moods and cooperation. Language is not too

much

> of an issue, although he does do scripting when bored or anxious.

>

> All of these things are still issues after 4 weeks on the diet.

>

> His bowel movements have improved however; previously they were

> usually loose. Now they are usually formed.

>

> Before, he was a picky eater, and he still is. This is currently

> what he will eat each day:

>

> Bacon - no sugar (lots of it - like 12 pieces a day),

> Scrambled eggs - about 4 a day,

> Pancakes made with pearsauce and a little pureed carrots and

zuchini,

> Bananas,

> Applesauce,

> Goat yogurt - up to about 1 tsp per day,

> Tomato juice with a little purred carrts and spinach,

> Orange juice (a few ounces),

> White grape juice (a few ounces)

>

> He is also taking Brainchild Ultra Sensitive vitamins and

minerals,

> Brainchild Flavored Zinc, Kirkman's Lactobicillus Acidophillus,

> Kirkman's unflavored calcium powder, Kirkman's magnesium

glycinate,

> B12 nasal spray, grapefruit seed extract, and epsom salt baths.

>

> I'm getting discouraged because he is not expanding his diet and

he

> is not showing improvement in his ASD symptoms. Just looking for

> advice/words of encouragement, because this diet is so hard to

> continue if I don't see any improvements.

>

> Thanks,

> Liz

> mom to 5 (PDD) and 3

> SCD 4 weeks

>

August 7, 2006

I would encourage you to keep going. It's a lot of work, but the formed

stools alone should tell you that his health is improving. I can tell you

that we didn't see any major results immediately. iel has been scd

for 3 months now, and what we see are gradually improvements. Usually, it

comes in big jumps. He appears to stay at a place, and then we see a " break

through " . Keep going.

Meleah

4 weeks on diet and not sure it's helping

> Hi,

>

> We just finished our 4th week on the SCD diet, mainly for my 5-year

> old son (diagnosed PDD). I'm not sure if this diet is helping him,

> and it is SO much work. Just thought I'd share what he is eating and

> how he is doing; maybe someone can offer advice.

>

> His main issues before the diet were stimming, anxiety, and

> inconsistency in his moods and cooperation. Language is not too much

> of an issue, although he does do scripting when bored or anxious.

>

> All of these things are still issues after 4 weeks on the diet.

>

> His bowel movements have improved however; previously they were

> usually loose. Now they are usually formed.

>

> Before, he was a picky eater, and he still is. This is currently

> what he will eat each day:

>

> Bacon - no sugar (lots of it - like 12 pieces a day),

> Scrambled eggs - about 4 a day,

> Pancakes made with pearsauce and a little pureed carrots and zuchini,

> Bananas,

> Applesauce,

> Goat yogurt - up to about 1 tsp per day,

> Tomato juice with a little purred carrts and spinach,

> Orange juice (a few ounces),

> White grape juice (a few ounces)

>

> He is also taking Brainchild Ultra Sensitive vitamins and minerals,

> Brainchild Flavored Zinc, Kirkman's Lactobicillus Acidophillus,

> Kirkman's unflavored calcium powder, Kirkman's magnesium glycinate,

> B12 nasal spray, grapefruit seed extract, and epsom salt baths.

>

> I'm getting discouraged because he is not expanding his diet and he

> is not showing improvement in his ASD symptoms. Just looking for

> advice/words of encouragement, because this diet is so hard to

> continue if I don't see any improvements.

>

> Thanks,

> Liz

> mom to 5 (PDD) and 3

> SCD 4 weeks

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

August 7, 2006

I was wondering if it might be the cutup. We have been on the diet

3 weeks but prior to this we were on the feingold diet for 7 months

and they brake down their fruits and vegetables in two two stages 1

and 2 stage one is low in salicyates and you eat those fruits and

vegetables the first 6 weeks along with your other food. And try

the others slowly after you see improvement.(we are also Gf/CF) WE

never could get father than stage one fruits. Sence on sed we have

been able to add granny smith apples only two a day. I thought that

maybe he wasnt sensitive to salicylates any more and tried the

catup. Just 2 days of cutup on his meat and he regressed terribly.

On the pecan sight they have a section called overcoming diffculties

and thay address the salicates and feingold. I noticed that a lot of

your fruits were what feingold referred to as stage two. Maybe your

child is extra sensitive. I know mine is .But the neat ting is if we

heal the gut they wont always be.

Hang in there its worth.

scd 3 weeks

stacy

> > We just finished our 4th week on the SCD diet, mainly for my 5-

> year

> > old son (diagnosed PDD). I'm not sure if this diet is helping

> him,

> > and it is SO much work.

>

August 7, 2006

Dear Liz,

Please try not to feel discouraged. This is wonderful that is bowel

movements have improved! Hang on to the success! If the yogurt isn't

making the " die off " to unbearable for your son, you might want to

increase the amount. I am certain that this was what worked for our

daughter in " getting her back " . We came casein free/fearful too. We

are glad we learned to trust the 24 hour SCD yogurt. We went pretty

fast though in introducing it. Not everyone should do this though.

It causes a " die off " that it not always easy for some of us. For us

the rewards where beautiful though. AS Elaine describes she is

a " butterfly " emerging from her cacoon.

Our little girl is autistic also, we feared that she would be

disabled for life. She was starving in her own body,her brain

clearly suffering. Diagnosed with malabsorption/celiac too.

As you may already know, Elaine worried that all ASD kids had

damaged guts. Remember that it takes much longer than just one

month to heal from this. Elaine said one year for celiac and two

years for other GI problems like ulcerative colitis.

Since most of our ASD kids are not diagnosed properly, most of us

truly don't know what condition their intestines are in. But the

window for seeing improvements is easily 1 to 2 years. This is a lot

of time when we want them healed now. I know. Dealing with time is

not easy when we want a quick fix. I still become ruffled about this

time thing...we still have a ways to go.

Think of it this way, now that he is absorbing his nutrients, his

brain is now getting the food it needs to heal and develop more

normaly. He is bound to start thriving in ways that he couldn't

before. I know that this diet is not easy. It is a lot of work,

but remember that it took time to get sick and it takes time to

heal. Hang in there with all of us. We are here for you and will

support you.

While your own testimony is in it's creation, read the hope and

testimonies from others. Journal about your frustrations. Try not

to think of yourself as " unique " . Hang in there with all of us.

Those of us with a little more time have also had our ups and downs.

Yet, all those little improvments add up and make it worth it. It

keep us around helping Eliane to get her message of " Hope " out

to " her children " .

Feel free to contact me off serve if you need to " rant " . I will not

mind.

God Bless your healing journey, Antoinette and (both celiac)

and 3 Kids (celiac, add, adhd,autism and hyperekplexia) SCD 2/06

Healing when no other way worked.

August 7, 2006

Antoinette,

Thanks for that little word of encouragement. I prayed hard for God to show

me what would heal iel, and then I truly just stumbled onto a lady's

testimony about her four year old daughter with autism. After reading about

her story...which a lot of you have probably read because I think it is also

in the latst BTVC book(little )...I knew that this was it. I started

researching scd like crazy, and started iel on the diet about two

weeks later. I expected to see a completely recovered neurotypical child

immediately, I guess. Sometimes I am patient, and tell myself that

iel wasn't like this when he was born...it took time for him to end up

in this situation, and I must expect it to take just as long for him to

recover. Other times, and probably more often than the former, I feel like

he'll never be " normal " . I know that's just Satan trying to get at me any

way he can. Thanks for your reminder that I do need to be patient, and to

have faith and determination that I had three months ago when we started.

Meleah

scd 3mths.

iel 3yrs, asd

Ethan 5yrs., Mark 1yr., both healthy

Re: 4 weeks on diet and not sure it's helping

> Dear Liz,

>

> Please try not to feel discouraged. This is wonderful that is bowel

> movements have improved! Hang on to the success! If the yogurt isn't

> making the " die off " to unbearable for your son, you might want to

> increase the amount. I am certain that this was what worked for our

> daughter in " getting her back " . We came casein free/fearful too. We

> are glad we learned to trust the 24 hour SCD yogurt. We went pretty

> fast though in introducing it. Not everyone should do this though.

> It causes a " die off " that it not always easy for some of us. For us

> the rewards where beautiful though. AS Elaine describes she is

> a " butterfly " emerging from her cacoon.

>

> Our little girl is autistic also, we feared that she would be

> disabled for life. She was starving in her own body,her brain

> clearly suffering. Diagnosed with malabsorption/celiac too.

>

> As you may already know, Elaine worried that all ASD kids had

> damaged guts. Remember that it takes much longer than just one

> month to heal from this. Elaine said one year for celiac and two

> years for other GI problems like ulcerative colitis.

>

> Since most of our ASD kids are not diagnosed properly, most of us

> truly don't know what condition their intestines are in. But the

> window for seeing improvements is easily 1 to 2 years. This is a lot

> of time when we want them healed now. I know. Dealing with time is

> not easy when we want a quick fix. I still become ruffled about this

> time thing...we still have a ways to go.

>

> Think of it this way, now that he is absorbing his nutrients, his

> brain is now getting the food it needs to heal and develop more

> normaly. He is bound to start thriving in ways that he couldn't

> before. I know that this diet is not easy. It is a lot of work,

> but remember that it took time to get sick and it takes time to

> heal. Hang in there with all of us. We are here for you and will

> support you.

>

> While your own testimony is in it's creation, read the hope and

> testimonies from others. Journal about your frustrations. Try not

> to think of yourself as " unique " . Hang in there with all of us.

>

> Those of us with a little more time have also had our ups and downs.

> Yet, all those little improvments add up and make it worth it. It

> keep us around helping Eliane to get her message of " Hope " out

> to " her children " .

>

> Feel free to contact me off serve if you need to " rant " . I will not

> mind.

>

> God Bless your healing journey, Antoinette and (both celiac)

> and 3 Kids (celiac, add, adhd,autism and hyperekplexia) SCD 2/06

> Healing when no other way worked.

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

August 7, 2006

Dearest Meleah, and others who can relate,

You said: " iel wasn't like this when he was born...it took

time for him to end up in this situation, and I must expect it to

take just as long for him to recover. "

Nothing is more painful than seeing ones baby slip into autism. Not

all are born with it. It breaks the heart to see a once happy child

vanish into a frown that never has eye contact. Your own child who

pushes you away and shuts you out. A cry in the night of pure pain,

and in delerium. Something that only we would know. Yet, " they " truly

not understand why.

But it is also a blessing to see the butterfly emerge. That first

hug, first smile, first word. For the pain to finnaly stop. I

don't know if our duaghter will ever be " normal " . I don't like that

word " normal " it makes me cry. I try to love her for who she is. I

grieve the loss of the perfect child. Today her pain has stopped.

This makes it all worth it. She still has a ways to go though. We

have much hope for her continued recovery.

I truly don't know anyone who is " normal " , and when we learn to

recognize these children's gifts, we learn to appreciate who they

truly are. We can now embrace the child, and learn from them. Learn

a huge lesson about what their bodies are trying to tell us about a

world that has gone wrong. With SCDiet we/they get the chance that

they deserve to heal from at least some of the affects of our toxic

modern world.

You are a good mother for doing this for your child! What a gift

you have given him. When you are having a bad day you remember this.

I truly feel that God has guided many of us. Like you, I know that

he has us. WE call those answered prayers " Godincidences " in our

home. There have been many. To be given " hope " , is such a blessing

in itself. " Fear nocked, faith answered and nobody was there! "

Thank you for sharing, Antoinette (celiac) mom to Kiki-2

(celiac/autstic). SCD 2/06

August 7, 2006

Thanks, , for the thoughts. I'm not sure if he is sensitive to

salicylates. He could be - I think I noticed that almond butter makes

him more irratable. Aren't almonds high in salicylates?

I have a question about this that maybe you or someone else can

answer. If I continue to give him some foods that are high in

salicylates, will this prevent his gut from healing? I can put up

with some negative behavior caused by these foods if eventually his

gut will heal and the sensitivities should go away. (Really, his

behavior is not different than from before this diet.) Or am I

preventing or delaying healing by giving him food that he might be

sensitive to? He has absolutely no obvious signs of food allergies

or sensitivies, except that previously too much sugar may give him a

tummy ache. BTVC says only to avoid legal foods if they cause severe

allergic reactions.

Thanks,

Liz

>

> I was wondering if it might be the cutup. We have been on the diet

> 3 weeks but prior to this we were on the feingold diet for 7 months

> and they brake down their fruits and vegetables in two two stages 1

> and 2 stage one is low in salicyates and you eat those fruits and

> vegetables the first 6 weeks along with your other food. And try

> the others slowly after you see improvement.(we are also Gf/CF) WE

> never could get father than stage one fruits. Sence on sed we have

> been able to add granny smith apples only two a day. I thought that

> maybe he wasnt sensitive to salicylates any more and tried the

> catup. Just 2 days of cutup on his meat and he regressed terribly.

> On the pecan sight they have a section called overcoming diffculties

> and thay address the salicates and feingold. I noticed that a lot of

> your fruits were what feingold referred to as stage two. Maybe your

> child is extra sensitive. I know mine is .But the neat ting is if we

> heal the gut they wont always be.

> Hang in there its worth.

> scd 3 weeks

>

> stacy

August 8, 2006

Liz,

Yes, almonds are high in salicylates. Unfortunately I'm too new to SCD to

guess what effect that may or may not have on gut healing. I've been hoping to

find that following SCD while still avoiding everything I avoid on Feingold, we

might get to a point where salicylates would be better tolerated, but I don't

know if I'll ever figure that out as I'm only so far holding myself to the SCD

and my target Feingolder isn't even sticking to FG, while lately away from home,

much less willing to try SCD. I guess I'll have to cope with him making his own

decisions so I'm ready for the shock when he leaves home, but I'm still going to

keep trying to convince him, that for all of his marvelous progress he could

still benefit more from an even better diet (or should I say a more specialized

diet that would provide some healing. I think of Feingold as just a healthy way

to eat, although more necesarry for some people. But I guess there is no reason

to recommend SCD to anyone who does

not have a specific need for the healing it is designed to bring about?)

Sheril

reynoldseliz wrote: