Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 " In cfparents , " jenmommyof7 " <ron88jen@a...> wrote: the problem was, it was so thick, etc that drops wouldn't work, > tubes didn't work b/c they got clogged and we kept having to go back > for unclogging...only ivs worked....since we started the q3 month iv > regimen " Hi Jen, I just read your post and found something that I have never seen before. What is q3 iv regimen? Thanks, > > > > > > Hi everyone, > > I am getting information from my cf coordinator at our cf clinic > > that does not seem to go along with what others have experienced. > > First, Zach is having a lot of ear infections. I was told that cf > > kids really do not get many ear infections because their immune > > systems are so revved up that they can fight these infections off > > easily. I think she was politely telling me that his ear infections > > are not cf related, but I insisted on an ENT consult anyway and they > > are humoring me. Secondly, Zach is once again having large yellow > > mushy stools. I told the cf coordinator that we had modified Zach's > > diet and he had gained weight and had formed stools. But since > > Friday he is having a lot of absorption problems. She was alarmed > > that I had restricted Zach's diet because as long as cf people take > > their enzymes they can eat anything they want. Long story short we > > are starting a 72 hour fat stool study tonight. She was amazed that > > I agreed to this, but I will do anything to make my baby feel > > better. Period. > > I think she is using some flawed logic with some of her assumptions > > and I think she is getting tired of me. > > What are your thoughts????? > > Sara - mommy to Zach 19 months wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 oh, sorry, I meant q3 months, in other words, every three months iv antibiotics.... sorry about that, got a little too medical.... Jen > > > Hi everyone, > > > I am getting information from my cf coordinator at our cf clinic > > > that does not seem to go along with what others have experienced. > > > First, Zach is having a lot of ear infections. I was told that > cf > > > kids really do not get many ear infections because their immune > > > systems are so revved up that they can fight these infections off > > > easily. I think she was politely telling me that his ear > infections > > > are not cf related, but I insisted on an ENT consult anyway and > they > > > are humoring me. Secondly, Zach is once again having large > yellow > > > mushy stools. I told the cf coordinator that we had modified > Zach's > > > diet and he had gained weight and had formed stools. But since > > > Friday he is having a lot of absorption problems. She was > alarmed > > > that I had restricted Zach's diet because as long as cf people > take > > > their enzymes they can eat anything they want. Long story short > we > > > are starting a 72 hour fat stool study tonight. She was amazed > that > > > I agreed to this, but I will do anything to make my baby feel > > > better. Period. > > > I think she is using some flawed logic with some of her > assumptions > > > and I think she is getting tired of me. > > > What are your thoughts????? > > > Sara - mommy to Zach 19 months wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Got it, thanks! > > > > Hi everyone, > > > > I am getting information from my cf coordinator at our cf clinic > > > > that does not seem to go along with what others have experienced. > > > > First, Zach is having a lot of ear infections. I was told that > > cf > > > > kids really do not get many ear infections because their immune > > > > systems are so revved up that they can fight these infections off > > > > easily. I think she was politely telling me that his ear > > infections > > > > are not cf related, but I insisted on an ENT consult anyway and > > they > > > > are humoring me. Secondly, Zach is once again having large > > yellow > > > > mushy stools. I told the cf coordinator that we had modified > > Zach's > > > > diet and he had gained weight and had formed stools. But since > > > > Friday he is having a lot of absorption problems. She was > > alarmed > > > > that I had restricted Zach's diet because as long as cf people > > take > > > > their enzymes they can eat anything they want. Long story short > > we > > > > are starting a 72 hour fat stool study tonight. She was amazed > > that > > > > I agreed to this, but I will do anything to make my baby feel > > > > better. Period. > > > > I think she is using some flawed logic with some of her > > assumptions > > > > and I think she is getting tired of me. > > > > What are your thoughts????? > > > > Sara - mommy to Zach 19 months wcf Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.