Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 I know what you mean I feel like a real ass excuse my language when I do this. However I guess that I feel like I have to try something because he is misserable with out the sleep. Darned if you do and Darned if you don't Love to you and Zach Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Gale Funny how these little one kick our butts all over the place huh? You have to wonder at times who is REALLY in control LOL Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Hi Ashauna, I was uncertain whether I should respond here after reading all the other posts but here it goes... Sleep training was the best thing we've done for our kids, including Ellie (wCF). We used a book called Healthy Sleep Habits, Happy Child. It does have you let the child cry but you can modify it some. Our daughter is on the same schedule 's son is on. I did this with my son and loved it but questioned whether I could do it with Ellie because of the CF. I am really glad I did, she eats better, is happier, takes better naps etc... when she is on her schedule. She puts herself to sleep for naps and at night. When she wakes up she plays in her crib till I come get her. The book is good because it gives a lot of reasons why kids need good sleep. One of the most important things this Dr. says is that a late bedtime can ruin everything, naps, morning wake time, eating, attention span etc... It is hard to get everything done by 7pm but she really does do better when we can get her in bed early. It is not easy listening to them cry but it didn't last long and I tell myself I'm helping her be happier and healthier. I hope this helps give another perspective. I wouldn't have said anything if I didn't have proof it works. I hope you find something that works for you all! Mom to Ellie 10mo wCF and Jack 3yo noCF Re: Re: Ashuana I know what you mean I feel like a real ass excuse my language when I do this. However I guess that I feel like I have to try something because he is misserable with out the sleep. Darned if you do and Darned if you don't Love to you and Zach Ashauna ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 You're right, whatever works so that everyone gets sleep. We tried the family bed with both kids and that didn't work for us...no one slept well. I think people just need to try different things till they find something that works. Re: Re: Ashuana > > I know what you mean I feel like a real ass excuse my language when I do > this. However I guess that I feel like I have to try something because > he is misserable with out the sleep. > Darned if you do and Darned if you don't > Love to you and Zach > Ashauna > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 we use a safty sleep with liam and we wraped him in a sheet till he was about 11 months, if we didnt do this he would stand up and not sleep at all. He has so much energy that he beeds to be still to go to sleep. monique Re: Re: Ashuana > > > > I know what you mean I feel like a real ass excuse my language when > I do > > this. However I guess that I feel like I have to try something > because > > he is misserable with out the sleep. > > Darned if you do and Darned if you don't > > Love to you and Zach > > Ashauna > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO > WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 , I have to admit that I did have to do this with my oldest and it worked wonders he is 5 and sleeps like a log but does not take a nap during the day anymore. I miss those days. I guess that I am just so worried with Colgan that it will induce a couging attack or reflux episode and he will aspirate. This is the fear that I have with letting him cry. There have been times though that I have just had enough in one day and put him down and even then he only cries for like 10 min. And then fast asleep but again only for like 45 min to an hour. Well I guess that I am going to have to look at that book because at this moment I am willing to learn anything that may help him. He is just miserable from lack of sleep. Thanks Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Gale I remember when I was 15 I could go on like 4 hours a night and feel good in the morning what happened to the good old days. I am only 24 but feel like I am about 60 years old. Not wanting to make those who are 60 feel old though. this is just me. Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Sara. thank you for your advice. Your little Zach sounds so similar in demeanor to my son. It makes me laugh reading about your latest struggle with him. Not to mean I am laughing because you are all having troubles only meaning that sometimes I cry wondering why me and knowing that i am not the only one helps a little. I guess that if anything it makes me see that I will get through it. Look Zach is 19 months old and you both are still alive and kicking. I didn't mean to make little of your struggles I hope that you do not take it this way. Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 I totally understand your concerns and believe me; it was much harder to do it with Ellie than my son. She too has reflux plus there is always the concern that she is hungry etc... I'm not saying it is the right method for everyone. I just know it worked for us and has made life a lot easier. I really hope you find something that helps you all get the sleep you need. This disease is hard enough to deal with without being sleep deprived on top of it. Good luck! Mom to Ellie 10mo wCF and Jack 3yo noCF RE: Re: Ashuana , I have to admit that I did have to do this with my oldest and it worked wonders he is 5 and sleeps like a log but does not take a nap during the day anymore. I miss those days. I guess that I am just so worried with Colgan that it will induce a couging attack or reflux episode and he will aspirate. This is the fear that I have with letting him cry. There have been times though that I have just had enough in one day and put him down and even then he only cries for like 10 min. And then fast asleep but again only for like 45 min to an hour. Well I guess that I am going to have to look at that book because at this moment I am willing to learn anything that may help him. He is just miserable from lack of sleep. Thanks Ashauna ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Hey Ashauna, I had a ton of problems with and sleep. We tried the let them cry method but the Queen would just cry til she reflux puked and then I was in the room changing sheets and scrubbing the rug so it wouldn't stink. Or she would have a coughing fit and bring up a ton of mucus. Also she would try to get out of the crib! (she was pulling herself up with the aid of furniture before she was 7 months old and " cruising " ) I found that she did much better if I got her settled in a bouncy seat or in her rocking/feeding chair at Colgan's age. Then once she was asleep I would put her in her crib, seat and all. She slept for longer periods of time with less reflux (of course at the time I just thought that she preferred sitting up to lying down she wasn't dx'd for another couple of months) I know that this isn't the preferred method of sleeping but at least she slept and so did I. Once she was dx'd, we realized that when she was laying flat she was refluxing and it would wake her up, she needed to sit up. It also didn't help that every time we were on the verge of " sleeping through " would be admitted to the hospital and you know what that is like. Noisy all night and people coming in to poke at you in the night. There is never a long enough stretch of quiet time there. All told didn't sleep through until she was about 18 months or so ( by then she was only up once a night.) I hope this helps. RE: Re: Ashuana , I have to admit that I did have to do this with my oldest and it worked wonders he is 5 and sleeps like a log but does not take a nap during the day anymore. I miss those days. I guess that I am just so worried with Colgan that it will induce a couging attack or reflux episode and he will aspirate. This is the fear that I have with letting him cry. There have been times though that I have just had enough in one day and put him down and even then he only cries for like 10 min. And then fast asleep but again only for like 45 min to an hour. Well I guess that I am going to have to look at that book because at this moment I am willing to learn anything that may help him. He is just miserable from lack of sleep. Thanks Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 , Thanks for the advise. He is sleeping through the night so I guess that I should have said that in the beginning of this. The only thing is that he almost refuses to take naps. I am just at my wits end but all of the advice that I have gotten there has to be something that will work. Thank you to all of those who helped me with this little problem. How is your little doing I have not talked with you for a while? Love to you all Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Sara, How wonderful it must have felt to be able to sleep through the night. I bet that you do feel good today. The sun was a little brighter today huh? Ashauna I am so glad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Ashauna, is doing very well. She is NOT culturing pseudomonas. and that is sure a relief. She is loving school and her dance class. the teachers have decided that it would be easier for them if just got her enzymes in the classroom instead of the nurses office (shout HOOOORAYYYY!!!!! she doesn't have to go get them at the nurses office anymore) started cutting her nap time back around Colgan's age. She used to take one in the morning and then one in the afternoon, but by the time she was 7 or 8 months she started sleeping less in the morning (she did take the nap though) This is when she would sleep in the swing in the upright position. It is so funny how we remember these things.........The kids in my family were never big nappers though. My mom always said that we were done with naps completely by the time we were 18 months, the only time we napped was when we were sick. kept her afternoon nap until she was about 2 & 1/2 but did away with the morning one pretty early. Good luck. Re: Re: Ashuana , Thanks for the advise. He is sleeping through the night so I guess that I should have said that in the beginning of this. The only thing is that he almost refuses to take naps. I am just at my wits end but all of the advice that I have gotten there has to be something that will work. Thank you to all of those who helped me with this little problem. How is your little doing I have not talked with you for a while? Love to you all Ashauna Quote Link to comment Share on other sites More sharing options...
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