Re: UGGG HELP

[Guest guest]

Zach needs constant entertainment too. I have never seen him sit

and play with a toy by himself. He is in an early intervention

program and even the therapists couldn't get him to focus for long.

He is so funny because we have so many store bought toys that he

never touches but he loves to walk around with a broom or empty my

tupperware drawer. It can be exhausting enteraining him all of the

time, but maybe a routine of the same distraction only at meal

times. A certain video only to be played at meal times, or a toy.

Zach really likes to look at his books during meals now, so we let

him use bath books (easy to clean). Zach also loves to help me

spoon feed him. I give him his own spoon to make a mess with while

I shovel the food in. He likes to do whatever I do.

My neighbor who is a nurse pointed out how stressful mealtimes can

be since we are so worried about his weight. We try to go with his

flow, but when he takes one bite of cheese and stops I try not to

get upset.

His weight sounds awesome. Zach only weighs 8 oz more and he is 19

months old.

Sara

> Why does my son have to be continually occupied while eating, it

is such a battle, he needs to be doing something, plying with a toy

shaking his pill bottle, paying with food. Nearly every mouth full

I have to find something else for him to look at to distract him so

he will eat. He has been like this for months now, he is totally

gone off breastfeeding now as well so I am expressing and putting it

in a bottle, he needs to be watching a video or carried around to

drink his bottle as well. This is so frustrating. He is such a

cleaver child as well and he is figuring out that when I distract

him I shovel in food so even now that is starting to lose its

charm. Even when hes not eating he needs to be continually

entertained with stimulating stuff, music, video, mummy, noisy toys

etc..... I ended up saying I have had enough this morning and I gave

him no breakfast and he went to bed without, Mean mother I am. But

I battle with this 3 times a day and I've had enough.

> On a better note Liam is now up to 22 pounds (10.36 kg) he is 12

months old. He put on 1 kg (2.2 pounds in 3 weeks) WOWOWOWO I

have been giving him maltodextrin, a high carbohydrate powder.

Certainly did the trick.

>

> mum to Liam 1 wcf

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[Guest guest]

If you have to concoct a second " trouble, " do it! Hew needs the help!

Love to you and your sons and family,

n Rojas

[Guest guest]

,

My son is getting a referal as week speak(well type) for early

intervention as well. He has horrible food avertions. These kids hate

eatting. If you think about it this area is the only one that they know

they can control. My son is 8 months old and is an expert at not

eatting. I would agree with all other moms that you need to get him

involved in some sort of speech and physical therapy. It is not your

fault it just happens with these kids and many others.

Sara, my son is horrible to try to keep happy. Do your therapists

feel that this is a physical developing problem. Just currious. They

say that I can only get the referal if he has two troubles. He has oral

motor troubles but they will not with out a fight anyways see him with

out two.

Good luck to all of the moms out there fighting with their kids to eat.

Ashauna

[Guest guest]

n,

I am going to get killed for posting so many separate messages I

know it. Anyways, I think that I am going to see if my doc will work

with me on this issue considering the fact that he has so many eatting

troubles.

Ashauna

[Guest guest]

They told me my son DID NOT need speech at 2.5. At 4 they told me he had

significant speech and language issues so they sent him out of district to

another school. He is still getting speech 4 times a week and OT. He has many

sensory issues as well as low tone, hence eating is a nightmare.

The evals go by a percentage. Its speech + motor skills...to see if they

qualify for EI (under 3 services).

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Zach had a 30% gross motor skill delay and a 33% speech delay at 13

months old. They told me that if had evaluated at under 30% in

either catagory, we would not have qualified for services. Since he

was borderline the pediatrican had to request services. Luckily

Zach has a great developmental therapist and physical therapist. We

stopped services because he met his goals, but he will be on

monitoring every three months. His same therapists will do

evaluations and if he falls behind again they will reopen his case.

We are very lucky. I have heard that other early intervention

programs are not as thorough. I was resistant to having him in

early intervention at first but now I am so glad I did. I learned

so much from watching the therapists interact with him. They are

great with kids and Zach is my only so sometimes I really don't know

what to do with him.

I am sorry they botched your son's evaluation. I would be angry too

if they had done that to Zach. It takes a while to catch up on the

skills that are missed and it can get so aggravating.

Sara

> They told me my son DID NOT need speech at 2.5. At 4 they told me

he had

> significant speech and language issues so they sent him out of

district to

> another school. He is still getting speech 4 times a week and

OT. He has many

> sensory issues as well as low tone, hence eating is a nightmare.

>

> The evals go by a percentage. Its speech + motor skills...to see

if they

> qualify for EI (under 3 services).

>

>

>

>

> Rosemary in NY with 3 children (13, 10.6 and 6.6)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

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