Re: Doctors in Long island NY

[Guest guest]

Gloria,

If your friends are interested in treating Autism biomedically, and finding a

doctor that will help do this, I recommend that they check this website:

http://www.autismwebsite.com/ari/index.htm

At the top, choose " DAN! " Partway down the DAN! page they will find a link for

practitioners, that lists DAN! doctors in each state.

I know there are Yahoo! groups for Autism, but I have not personally joined any.

Although this does not answer the exact question you asked, I personally found

this website very helpful: http://www.geocities.com/treat.autism/ It is one

Mom's journey with her autistic child, and she explains biomedical intervention

in a very understandable and brief way. It seems to me to be a helpful overview

for someone new to autism.

Hope this helps,

Lynn

Doctors in Long island NY

Hi Everyone,

Some friends of us just got their son diagnosed with autism. They are

in Long Island NY. We are triyng to help them get plug with a good

parent support group and a doctor. Unfortunately we are in CO and

aren't familiar with NY. Can any one recommend a experienced

doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also is

there a support group they could join? At this point we are the only

ones they know who have kids with autism.

Thanks in advance

Gloria

[Guest guest]

Thanks Lynn,

I'm familiar with the website and I actually went there but there

are many doctors and I'm not comfortable recommending any since I

don't personally know them. Recommending a doctor to another parent

is a big responsibility.

Thanks again

Gloria

>

> Gloria,

>

> If your friends are interested in treating Autism biomedically,

and finding a doctor that will help do this, I recommend that they

check this website:

>

> http://www.autismwebsite.com/ari/index.htm

>

> At the top, choose " DAN! " Partway down the DAN! page they will

find a link for practitioners, that lists DAN! doctors in each state.

>

> I know there are Yahoo! groups for Autism, but I have not

personally joined any.

>

> Although this does not answer the exact question you asked, I

personally found this website very helpful:

http://www.geocities.com/treat.autism/ It is one Mom's journey with

her autistic child, and she explains biomedical intervention in a

very understandable and brief way. It seems to me to be a helpful

overview for someone new to autism.

>

> Hope this helps,

>

> Lynn

>

>

>

>

> Doctors in Long island NY

>

>

> Hi Everyone,

> Some friends of us just got their son diagnosed with autism.

They are

> in Long Island NY. We are triyng to help them get plug with a

good

> parent support group and a doctor. Unfortunately we are in CO

and

> aren't familiar with NY. Can any one recommend a experienced

> doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also

is

> there a support group they could join? At this point we are the

only

> ones they know who have kids with autism.

>

> Thanks in advance

> Gloria

>

>

>

>

>

>

[Guest guest]

Hi Gloria,

Well, we'll see if this works. I just joined pecan bread, so I haven't

figured out how these groups work. I can recommend Dr. O'Hara in

Wilton, CT We live in Charlotte, NC, and have a recently diagnosed 3 yr.

old on the spectrum. Our son saw Dr. O'Hara last month, and she was

incredibly knowledgable. You can reach her office at , and get

a packet sent to you with her bio. She also has a registered pediatric

dietician working with her as well as an on staff behavioral therapist. The

info packet will also have a 25 page patient evaluation that must be

completed before an appointment can be made. I hope that this helps.

Meleah Corner

Huntersville, NC

Mom of iel: age 3

SCD for 3 mths.

Doctors in Long island NY

>

>

> Hi Everyone,

> Some friends of us just got their son diagnosed with autism. They are

> in Long Island NY. We are triyng to help them get plug with a good

> parent support group and a doctor. Unfortunately we are in CO and

> aren't familiar with NY. Can any one recommend a experienced

> doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also is

> there a support group they could join? At this point we are the only

> ones they know who have kids with autism.

>

> Thanks in advance

> Gloria

>

>

>

>

>

>

[Guest guest]

Hi Gloria,

I sent a reply, but don't think that it went through. I am new to the group

as well as blind, so it sometimes takes a little playing around to figure

out some of this stuff. I can highly recommend Dr. O'Hara for your

friend. While not on Long Island, she is in Wilton, CT. That's certainly

fairly close for you. We live near Charlotte, NC, and she is worth the

distqance for us. You can reach her office at . Her office

admin. will send an info packet with Dr. O'Hara's bio, some faqs, and a 25

page patient evaluation that must be completed before an appointment can be

made. She also has a registered pediatric dietician and behavioral

therapist on staff. Let me know if you'd like any more info.

Meleah Corner

Mom of iel: 3 yrs.

scd for 3 mths.

Doctors in Long island NY

>>

>>

>> Hi Everyone,

>> Some friends of us just got their son diagnosed with autism.

> They are

>> in Long Island NY. We are triyng to help them get plug with a

> good

>> parent support group and a doctor. Unfortunately we are in CO

> and

>> aren't familiar with NY. Can any one recommend a experienced

>> doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also

> is

>> there a support group they could join? At this point we are the

> only

>> ones they know who have kids with autism.

>>

>> Thanks in advance

>> Gloria

>>

>>

>>

>>

>>

>>

[Guest guest]

Gloria,

I would highly recommend Dr. O'Hara (http://www.drohara.com/) as well. We are in

Cary, NC. It was worth the drive for us as well.

Pam

Matt 3 1/2, SCD 7 months

Doctors in Long island NY

>>

>>

>> Hi Everyone,

>> Some friends of us just got their son diagnosed with autism.

> They are

>> in Long Island NY. We are triyng to help them get plug with a

> good

>> parent support group and a doctor. Unfortunately we are in CO

> and

>> aren't familiar with NY. Can any one recommend a experienced

>> doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also

> is

>> there a support group they could join? At this point we are the

> only

>> ones they know who have kids with autism.

>>

>> Thanks in advance

>> Gloria

>>

>>

>>

>>

>>

>>

[Guest guest]

Pam, Just as an fyi in case you haven't hear, Dr. O'Hara has made her first

trip to see patients in Charlotte last month. She hopes to begin making a

couple of trips a year to see patients. She used the Cyzener

Institute...hope I got the spelling right...in south Charlotte. We were

really happy about this, and hopefully it can eliminate long, costly trips

to CT.

Meleah

Doctors in Long island NY

> >>

> >>

> >> Hi Everyone,

> >> Some friends of us just got their son diagnosed with autism.

> > They are

> >> in Long Island NY. We are triyng to help them get plug with a

> > good

> >> parent support group and a doctor. Unfortunately we are in CO

> > and

> >> aren't familiar with NY. Can any one recommend a experienced

> >> doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also

> > is

> >> there a support group they could join? At this point we are the

> > only

> >> ones they know who have kids with autism.

> >>

> >> Thanks in advance

> >> Gloria

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Meleah,

We able to see her last month in Charlotte. That was great. It worked out well

because we where do for a follow up..

Pam

Doctors in Long island NY

> >>

> >>

> >> Hi Everyone,

> >> Some friends of us just got their son diagnosed with autism.

> > They are

> >> in Long Island NY. We are triyng to help them get plug with a

> > good

> >> parent support group and a doctor. Unfortunately we are in CO

> > and

> >> aren't familiar with NY. Can any one recommend a experienced

> >> doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also

> > is

> >> there a support group they could join? At this point we are the

> > only

> >> ones they know who have kids with autism.

> >>

> >> Thanks in advance

> >> Gloria

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Hi Gloria:

I'm late in responding to your post because I've been off the computer for

several days and just saw it. I know many have responded, but I have a DAN

group to recommend if you're still interested. My son, Clay is 4, with ASD and

has been seeing Dr. Marvin Boris for about a year and a half. They're in

Plainview, Long Island, which is Nassau County, near the Suffolk border. There

is another MD and a great PA in the group too. The staff is nice. They have a

web site which I've never looked at but its www. autismny.com. The group is

called Autism Associates of New York. Their phone is .

They do HBOT on site, and chelation (neither of which I've done, so I can't

comment further). They are big on dietary intervention, MB-12 shots,

supplements, and many other current therapies (Actos;LDN). They make up a

personalized nasal spray for environmental allergies.

I still believe the parents need to be on top of the doctor and not just

follow blindly what is recommended.

As far as support groups go, its not my thing, but I'm sure they can recommend

a group. I find this list and another I belong to to be my support groups.

If your friends are looking for an ABA program, I can recommend one and I've

toured several, so let me know.

Good luck to your friend. The good news is the counties are very generous

with early intervention services and many of the school districts on Long Island

continue that generosity, at least from 3 years to kindergarten. Of course, we

pay major taxes here and that's why we have great services...

Tracey, mom of Clay, 4, ASD, SCD since 8/05

Gloria wrote:

Hi Everyone,

Some friends of us just got their son diagnosed with autism. They are

in Long Island NY. We are triyng to help them get plug with a good

parent support group and a doctor. Unfortunately we are in CO and

aren't familiar with NY. Can any one recommend a experienced

doctor?One who is up to date in chelation, HBOT, IVIG, etc. Also is

there a support group they could join? At this point we are the only

ones they know who have kids with autism.

Thanks in advance

Gloria

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