Adam weight gain -- update

[Guest guest]

An endocrinologist looked at Adam at our CF visit (new clinic). We've

never had THAT type of doc see him before. He also has 18q- so they

ordered some blood tests to check his hormone levels. Found out that

his brain is telling his thyroid to work overtime and it's just

working at full/normal for someone his age, NOT overtime as directed.

So now he is taking synthetic thyroid. This may help in his growth

too.

Also wanted to say that the continuous feed didn't work so I set the

machine to put in 4oz in a halfhour and then sit idle and do again

3hrs later. It worked! He got 16oz overnight last night and only woke

us up once for a diaper change and a hug!

I'm feeling very positive today and I think it's going to work.

Just wanted to share that!

(Thanks also for all the ideas and recipes. I decided I'm starting

another recipe box for the kitchen, labeled ADAM!)

Crystal

mom to Adam 18mo wcf, le 3.9yr nocf