Re: New Member story and questions-

[Guest guest]

,

Sorry to hear that you have RP. Glad you found us. This is the greatest group of people you will ever get the chance to meet. They will help you anyway they can. Sure this group is for RP but we care about the whole person here. Feel free to post about anything and everything.

My name is Glenda and I live in Oregon. I have had RP for over 8 years. I have only RP and no secondary disease. I also have a less aggressive form of the disease. In saying this I mean my doesn't seem to have progressed in as rapid a rate as some of the others in this group.

My RP is held at check with Imuran (anti-rejection drug) and pred. when I flare. I flare one or two times a year and they are not nearly as bad as when I was first diagnosed.

Now for the heart thing. There are several in the group who have had problems with their hearts or areas near the heart. I am sure they will post and let you know about themselves!

Take care and ask all the questions you like! Again Welcome!

Lots of love

Glenda