Re: We got Ambry results....

[Guest guest]

I am in the same boat with you. I am still waiting on results but my

oldest son is very CF symptomatic. He has never been given anything for

his weight although I know it is very negative. He is almost 5 years

old and has never in height made it on the growth chart. We are in the

process of doing the Ambry test as well. He was also diagnosed with RAD

3 years ago, but now that I have a cf baby I am really concerned about

Maxwel having it as well.

Both of his sweat tests were negative, but as I have come to find

out this does not always mean no CF.

Sorry that I could not answer any questions it was just so

familiar I had to say something. I wish you and your family luck

Ashauna mom of 2 boys Maxwel still testing and Colgan wcf