Re: Crystal--preparing for tp

[Guest guest]

: If you feel up to it would you mind telling me how fast

this has progressed for you and maybe some of the symptoms you got as

you reached new plateaus with this? I (as you know!!) am looking for

all info I can get.....also how do they perform the TP? Is it done

laparascopically now as the gall bladder is?

thanks again

> thank you for the reply. I am really looking forward to having

> some semplence of my life back. The disease has progressed very

> rapidly from what I understand and I am a little anxious to get the

> show on the road. I am still waiting to hear whether or not my

> insurance will cover it all. I hope so.

>

> You sound like a remarkable young woman. I am guessing your young

> because you seem to have an abundant energy. I am 42 and have only

> had this condition for a few years. I was working at a steady clip

> until I had sphincteroplasty surgery last october, went back to

work

> the first of the year and it didn't go very well. I am a RN, I

love

> my job and want very much to go back. I have 3 kids and my eldest

> will leave for college in the fall.

>

> Did they say anything to you about ways to strengthen or increase

> your islet cells? I know that they will need 3000 cells per kg,

> thats a lot of cells. How do you maintain your diabetes? Do you

> check you bs regularly/daily. Diabetes is a small price to pay to

> be free of this horrible pain. Of course I do worry about becoming

> brittle, I wont be able to work if that happens. The docs have put

> in g-j tube and I am getting enteral feedings to let the panc rest

> and to boost my nutritional status. I was in a panic the last 2

> days because the shipment was delayed, I was starving...lol. I

> never thought I would be grateful for a can of yuck to infuse in my

> gut. I have to have 6 cans a day so I pretty much stay hooked up

to

> the infusion pump and my " pole " . It is a very stubborn pole and

> doesn't like to follow well. You cant believe how many times I

have

> had to yell at it to keep up!!! I can still take food by mouth,

but

> not so much. I usually save it for my favorite treat, fat free

> frozen yogurt or real fruit popcicles.

>

> I hope your having a lovely valentines day, I am. Sorry to go on

> and on, but you got me just after 2 cups of coffee..(L). Tkae care

> and thanks for any and all input.

> Keep up the good work with school and tract, sounds great!!

>