Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Robin, YES YES YES....I have right sided pain. I have moderate to severe CP and SOD. I see so much of my life in your story. Doctors, pain, non-belief...the whole nine yards. Get yourself to another doctor and don't stop until you find the one that will believe in you, help you and help you make your life a little easier with pain management and whatever may need to be done. Sandy California , Robin wrote: >Hi Everyone: > >I haven't posted since the New Year, so I wanted to wish everyone a happy >and HEALTHY New Year. > >I also wanted to state that my pancreatitis showed itself very soon after >they took my gall bladder. About 4 weeks after the surgery, I kept telling >the surgeon that I was still having alot of pain. Also, that I was still >really tired, and having nausea and PAIN. They finally sent me to the >University of MD to see a " specialist " there, who looked over my records and >told me to talk nortryptiline (really bad spelling), and get off of >everything else. I was taking around 10-20 mgs. of oxycodone at the time, 3 >times a day. So, I went around a week and finally had to go back to the >oxy. The pain was unbearable. The doctor told me he needed about a week to >go over some additional blood work and an MRCP to see what he would do next. >Of course, I was counting the hours, and about a week later he called and >said there was nothing he could do. He didn't see anything on the MRCP, and >nothing really significant in the bloodwork. You can well imagine my >dismay. I was really counting on his help, I just cried my heart out. He >decided it was just some type of neuropathic pain...of unknown origin. My >surgeon kicked me to the curb shortly thereafter. The last appointment with >him, he definitely implied that I was just there for the drugs. > >Anyway, it was another 2 years, many visits to the hospital with severe >pain, lots of screwy blood rest results (elevated liver enzymes and lipase >and amylase etc...) and so many doctors I lost count, before I had my first >ERCP at s Hopkins, where I was diagnosed with SOD, a blocked common bile >duct (mostly sludge which you can't see on the MRCP), and a " mild " case of >pancreatitis. They did a sphincterotomy and placed a stent. This was >followed my a 4 day hospital stay with an acute attack (and the worse >migraine of my life). I finally went home, but was back to have the stent >taken out because it had become blocked in less than a week. After they >took the stent out, they said your pain should be better in a month or two, >take these enzymes for the next year, and this time next year you won't even >remember what happened to you. It's now 4 years later, and that did not >turn out to be the case. > >I asked Dr. Kalloo what he thought caused the pancreatitis, and he said >DRINKING. I had not had a drink in 20 years (no exaggeration...I was in AA >since 1983). He said the damage was caused back then, and just now appeared >just from getting older. I'm sorry, but I still don't buy that. I was in >excellent health prior to the gallbladder surgery. In fact I was in the >middle of a 2 hours spinning (inside bicycling) class when I had my first >pain " from the sky. " He still claims it was my drinking, and would never >admit that it might have something to do with the gallbladder surgery, or >the fact that my gallbladder was full of stones and sludge, and that the >sludge in my duct could have come from that! We all know different, right? >I have also noticed over the past year on this board how many people >mentioned gallbladder right before cp! > >So, I manage day to day with taking pain medication, eating correctly, and >lots of prayer. But I believe like I have read, it should not matter how >you get it. The pain and everything else sure feels the same. Most >recently I went to a new " specialist " per the request of my PCP. This guy >at Jefferson Hosp. in Philadelphia, has now decided that the first ERCP >should have taken care of everything. That since my pain all right sided, >and involves my ribs that it isn't cp at all. He's reviewing my records to >see what he thinks it is. I had a second ERCP back in June, and he said if >anything that caused further damage to my pancreas. To tell me at this >point that I don't have it is just ridiculous if you ask me. I was >wondering, DOES ANYONE ELSE WHO IS DIAGNOSED WITH CP HAVE RIGHT SIDED PAIN? >Maybe I'll change my mind, if noone out there has right sided pain, ok? > >That's my story for now. Thanks everyone for all your support. When I got >back from my 2 week vacation over the holidays, I had over a 1000 messages >from PAI, I read each and everyone looking for answers. At least I don't >feel like the only person in the world with cp anymore. > >Hugs to All.... > >Robin R. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 > Hi Everyone: > > I haven't posted since the New Year, so I wanted to wish everyone a happy > and HEALTHY New Year. > Robin, I have had CP for several years, one surgery and a whipple pending. I have had pain in my ribs on both sides at once or each side independently since around 1999. The right side usually is just up a little under the rib and the left side is usually just below the rib coinciding with a cyst on the tail of my pancreas. Hope this helps. Best Wishes, Knox Northern California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi Robin My panc pain is on my right side under my ribs. It is a feeling that something is in there. That's the only way I know how to describe it. It radiates to my back up to the shoulder blade. Since my last ERCP with stent placement, I have taken alot longer to recover. I ended up back in the hospital with in 4days of being d/c. When I was home I found out that my dear husband had been messing around while I was in the hospital. I got the cell phone bill in the mail and it was more than usual. So I called the numbers on the bill and found out it was adult single chat numbers that were called frequently. He said he called them because he was board. I found a receipt in his pile of papers he removes on the stove. The receipt get this was for a dooney and Burke item that cost $140.00. He also had a incoming phone call that lasted 90 mins. and cost $20.00. He can't recall who he talked to. I am in the process of moving out. I am on disability so finding this out now has not helped in my recovery. I have filed for divorce so he will receive his papers from one of his fellow sheriff deputies. I am trying to stay strong but I keep thinking how could this happen especially now. Luckily I have family that lives in Indiana that is helping me move out. I know I going of the subject a little but I am just venting. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Robin, My pain has always been right sided, just under the ribs, sometimes it feels like my ribs are going to break open if I take too deep of a breath. It wasn't just until recently that pain has progressed to the left side and around my back. Simi Valley, CA Gall Bladder a.. Quote Link to comment Share on other sites More sharing options...
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