Re: OT Salicylate question

[Guest guest]

The GAPS book has a really helpful, detailed discussion about fenols and

salicylates with SCD. Elaine may also have had thoughts about them.

Agape,

Kelli wrote:

, I gave them about 2 months in, after we started SCD the first time

(May 2005). He had a few outbreaks of hives and some raging episodes. We

then went off SCD for a few months and he was having horrible reactions (we

added rice, lots of raw fruit, and corn). He re-started SCD in March 06 and

I didn't introduce any until maybe a month in? It was strawberry sauce I

believe. Then Peach sauce. Then almond flour and peanut butter. He didn't

have a reaction to any of it so I started giving him raw strawberries about

a week ago (2 months in). So far we haven't seen any reaction. His poops

aren't as solid as they were at first but they are formed and in the toilet.

I would give it another month maybe? And add them slowly, well cooked and

ripe. HTH

Kelli

Kai 3 1/2 (ASD) & Tatum 2 (NT)

SCD since 5/05

_____

From: pecanbread [mailto:pecanbread ] On

Behalf Of ginalc2002

Sent: Sunday, May 28, 2006 11:20 AM

To: pecanbread

Subject: Re: Kelli -- Salicylate question

How long did you wait before introducing the salicylates?

I thought maybe waiting for consistantly " normal " stools, then 12

months. So far, DS has not had great stools back-to-back. We get a few

nicely formed stools, then mushy goo again. Almost jumped for joy

yesterday -- 2 days straight with formed stools.

We've had such bad reactions to salicylates, I don't want to move too

fast & stress my little ones more than necessary. We've been through 2

tough years -- diet restrictions, yeast, etc.

in Iowa

Mom to 4

1, 3 & 5 yo SCD targets

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

When the gut is damaged, and therefore can not adequately digest large proteins

and food molecules, and bad " bad micro flora " causes this vicious cycle to

dominate, thanks to being in imbalance ....it is only to be assumed that many

allergies, intolerances, food intolerances and serious Malabsorption and

MALNUTRITION will result. Thanks to a leaky gut these large undigested food

parts get through and cause some strange behaviors in some of us.

Elaine wanted us to know in her BTVC book that many of these problems can vanish

with a strict adherence to SCDiet. The leaky gut heals rather fast. It is

dangerous to start taking more and more foods out that are not " tolerated " ,

because these kids truly have " starving brains " and need to be fed balanced.

Elaine warned that ONLY if it causes severe distress of anaphylactic reaction do

we take a food out. In some cases to try again in just a few short months.

It has been our experience that in just the first 2 to 3 months of SCD, that we

have lost many of our sensitivity issues that we came with prior to eating SCD.

We where careful to not limit calorie intake by taking away foods. The point of

SCD is to ADD foods slowly....not take them away. My children now gain weight

well and are now growing better than ever....food reactions are now at a

minimum. We did not have success with enzymes, they kept our gut injured and

therefore kept us from having the success we are not having. (Elaine feared this

too). Contact me off serve if you want to hear more.

Hope this helps to see one way of looking at this problem with Salicylates and

Phenols,

Antoinette (2/06 celiac, with celiac ASD kids and more).

[Guest guest]

>

> The GAPS book has a really helpful, detailed discussion about fenols and

salicylates with

SCD. Elaine may also have had thoughts about them.

> Agape,

>

You don't know what thoughts Elaine had. I spent hours with Elaine as did Lucy

Rosset,

Jodi Bager, Judy Gorman and others who became her close friends and confidantes.

I know

what she said I don't presume to know what she thought.

I do not understand why you won't accept Pecanbread as 98% dedicated to the SCD

Diet.

There are other places to pursue additional autism topics.

Would you go on a movie list and discuss line theater?

Carol F.

[Guest guest]

Carol, you belong here!! If you go, then I go---which admittedly would not

really be that big of a deal. :-) My point is that you have been doing

this longer than any of us, and I for one would miss you greatly. I look

forward to your posts and experience---always! I long for the days when the

site was typically a laundry list of what we all were eating, how we might

fine tune it for better results, and how we could move forward. I cannot

believe that I miss the debates over the stages of the diet! Far better

than who said what, etc....

whole family SCD 2 years

Mom to Dakota (8--NF with multiple tumors, CDD, seizures) and

(6--happy, healthy, supportive little brother)

In response to:

> Now maybe I don't belong here and should just go back to making Risotto,

yogurt and

> cheesecake.

>

> Suits me!

>

> I'm not being sarcastic. I am capable of keeping myself SCD compliant to

the extent

> required. I'm serious as I am active in other fields and won't be hurt if

I'm asked to leave

> here for being clear but being regarded as defensive and combatative.

>

> Carol F.

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Carol,

The person asked about salicylates... someone(Dr. NC) has written an SCD book

that addresses many of the questions we ask about on pecanbread, including

salicylates. I just told them.

I have never and would never assume to know Elaine's thoughts, past what's in

her book... based on her book, I said she may have had some thoughts on

salicylates.

You could really help me, I think by reading Dr NC's SCD book. But I know

you're busy.

Agape,

carolfrilegh wrote:

>

> The GAPS book has a really helpful, detailed discussion about fenols and

salicylates with

SCD. Elaine may also have had thoughts about them.

> Agape,

>

You don't know what thoughts Elaine had. I spent hours with Elaine as did Lucy

Rosset,

Jodi Bager, Judy Gorman and others who became her close friends and confidantes.

I know

what she said I don't presume to know what she thought.

I do not understand why you won't accept Pecanbread as 98% dedicated to the SCD

Diet.

There are other places to pursue additional autism topics.

Would you go on a movie list and discuss line theater?

Carol F.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Please advice who is dr. NC " is this the GAPS book- I( think someone

named Cambell McBride wrote that one. Please let me know.

Thanks Rob's mom

<<moderator's note: GAPS was written by Dr. Natasha -McBride)

Re: Re: OT Salicylate question

Carol,

The person asked about salicylates... someone(Dr. NC) has written an

SCD book that addresses many of the questions we ask about on

pecanbread, including salicylates. I just told them.

I have never and would never assume to know Elaine's thoughts, past

what's in her book... based on her book, I said she may have had some

thoughts on salicylates.

You could really help me, I think by reading Dr NC's SCD book. But I

know you're busy.

Agape,

carolfrilegh wrote:

>

> The GAPS book has a really helpful, detailed discussion about fenols

and salicylates with

SCD. Elaine may also have had thoughts about them.

> Agape,

>

You don't know what thoughts Elaine had. I spent hours with Elaine as

did Lucy Rosset,

Jodi Bager, Judy Gorman and others who became her close friends and

confidantes. I know

what she said I don't presume to know what she thought.

I do not understand why you won't accept Pecanbread as 98% dedicated to

the SCD Diet.

There are other places to pursue additional autism topics.

Would you go on a movie list and discuss line theater?

Carol F.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

>

> Carol,

> The person asked about salicylates... someone(Dr. NC) has written an SCD

book that

addresses many of the questions we ask about on pecanbread, including

salicylates. I just

told them.

> I have never and would never assume to know Elaine's thoughts, past what's

in her

book... based on her book, I said she may have had some thoughts on salicylates.

> You could really help me, I think by reading Dr NC's SCD book. But I know

you're busy.

> Agape,

>

Or I could forward all his to Elaine's daughter and let her deal with it.

I am not too busy for SCD, I'm too busy preserving it. Why do we need other

perspectives

on SCD when the book has been written and the research done? To change it,

authenticate

it further or please tell me what.

People complain about all the time spent cooking and caring for their children.

They need to understand and implement the diet, not get spin on it!

It's always nice to read a positive article or comment about SCD. Someitmes I

have

encountered criticism of the diet. Doesn't change the science.

My cousin recently produced a play here that was a flop. I read three reviews

and then

gave up. A week later it closed because it was a flop. Should I have kept on

reading?

SCD is a success. Shoiuld i keep on reading the reviews?

I'll tell you what I know about phenols, sulfites, sulfates, salicyclates.

Nothing!

Elaine showed me some stuff she did with her electron microscope about goblet

cells,

fountains, secretin and mucous, Paneth cells and microvilli and said I'd be a

good scientist.

Too late!

There is a woman in the U.K. named Charla Race who ran a food allergy group and

sold an

online book about all that stuff. By the time I finished reading it, I didn't

want to eat

anything.

Now maybe I don't belong here and should just go back to making Risotto, yogurt

and

cheesecake.

Suits me!

I'm not being sarcastic. I am capable of keeping myself SCD compliant to the

extent

required. I'm serious as I am active in other fields and won't be hurt if I'm

asked to leave

here for being clear but being regarded as defensive and combatative.

Carol F.

[Guest guest]

I second that. Pearl

" and C. TwoBears " wrote: Carol, you belong here!! .

I long for the days when the

site was typically a laundry list of what we all were eating, how we might

fine tune it for better results, and how we could move forward.

---------------------------------

Sneak preview the all-new Yahoo.com. It's not radically different. Just

radically better.

[Guest guest]

>

>

> Please advice who is dr. NC " is this the GAPS book- I( think someone

> named Cambell McBride wrote that one. Please let me know.

> Thanks Rob's mom

http://www.breakingtheviciouscycle.info/elaine/dr_natasha_campbell_mcbride_

Carol F.

[Guest guest]

>

> Carol, you belong here!! If you go, then I go---which admittedly would not

> really be that big of a deal. :-) My point is that you have been doing

> this longer than any of us, and I for one would miss you greatly. I look

> forward to your posts and experience---always! I long for the days when the

> site was typically a laundry list of what we all were eating, how we might

> fine tune it for better results, and how we could move forward. I cannot

> believe that I miss the debates over the stages of the diet! Far better

> than who said what, etc....

>

>

,

I don't want to go anywhere but I also do not like to create disension. It's

just that Elaine

imparted her feelings about many of the contentious issues to me and she is not

here to

speak for herself. This is her life's work. She spent hours giving the most

ungrateful

people help on the phone. They called her at all hours and some were demanding

and

even insulting. She made each person feel special but if she was displeased

about

something, you knew it.

Her biggest fears were about who would carry on research and preserve the diet

after she

was gone. Another thing she wanted was recognition by the Celiac Association.

Last week

the authors of the Grain-Free Gourmet were invited to address and demonstarte

there.

These are the little victories, step by step.

I am very glad thet Dr. puts her patients on SCD. I trust she advocates

compliance, but for me BTVC remains the definitive body of work on SCD. It is

concise,

remarkable and pretty thorough.

Because I was a newcomer to my local support group, I felt like a bit of an

outsider.

Because I got off on the wrong foot on my first SCD list, I became more of an

outsider.

Because BTVC was beside my bed and every night I read another chapter and then

started

over and I still do. That is why I quote pages and paragraphs

Because Elaine had answers to many of the questions on the list I had respect

and

confidence and amzment that her friendship and her science were a rare gift from

heaven.

When I eat the good food and share it with those not on the diet, I also think

it a special

gift.

And for us SCD became such a joyous thing because reports of healing literally

poured in.

Who wouldn't hold that near and dear and wish to preserve it?

Carol F.

[Guest guest]

Dr.Natasha -McBride wrote an informative, detailed, comprehensive SCD

book that covers many of the questions Pecanbread list members ask, and is

targeted to people who have gut and psychological problems ie- autism,

depression, ADHD, etc.

The name of the book is 'Gut and Pschology Syndrome'. It can be gotten at the

Body Ecology website or the Developmental Delays Resources website.

Several on this list have ordered, and read it. If you are an SCDer, you are

likely to find it interesting and satisfying.

Jody, our moderator has ordered and is waiting, the last I talked to her.

Agape,

carolfrilegh wrote:

>

>

> Please advice who is dr. NC " is this the GAPS book- I( think someone

> named Cambell McBride wrote that one. Please let me know.

> Thanks Rob's mom

http://www.breakingtheviciouscycle.info/elaine/dr_natasha_campbell_mcbride_

Carol F.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Don't anybody go... Let's stay and learn.

Agape,

" and C. TwoBears " wrote:

Carol, you belong here!! If you go, then I go---which admittedly would not

really be that big of a deal. :-) My point is that you have been doing

this longer than any of us, and I for one would miss you greatly. I look

forward to your posts and experience---always! I long for the days when the

site was typically a laundry list of what we all were eating, how we might

fine tune it for better results, and how we could move forward. I cannot

believe that I miss the debates over the stages of the diet! Far better

than who said what, etc....

whole family SCD 2 years

Mom to Dakota (8--NF with multiple tumors, CDD, seizures) and

(6--happy, healthy, supportive little brother)

In response to:

> Now maybe I don't belong here and should just go back to making Risotto,

yogurt and

> cheesecake.

>

> Suits me!

>

> I'm not being sarcastic. I am capable of keeping myself SCD compliant to

the extent

> required. I'm serious as I am active in other fields and won't be hurt if

I'm asked to leave

> here for being clear but being regarded as defensive and combatative.

>

> Carol F.

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

>

> Don't anybody go... Let's stay and learn.

> Agape,

>

,

I don't know if it's the best way to put this to rest and move on, but i wrote a

note to

Elaine's daughter including the link on Elaine's page about DR. N. C-McB and

asked her to

make a brief statement as to whther GAP is the third official SCD book. . I do

not know if

she will but let's abide by it if she does.:-)

All this disension is driving people away.

Carol F.