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Re: re: A Big Thank You

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In a message dated 1/5/02 6:30:55 PM Pacific Standard Time,

katdavis@... writes:

<<

I'm so glad I found this group. Hope I don't offend anyone with all the

questions, but this keyboard just keeps pounding them out! I swear it's not

me. >>

, I'm glad you found us too. don't worry about the questions, I think

that all of our keyboards are on automatic questions? We all have them, so

keep them coming, that is how we all learn.

hugs

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,

I only stated the Drs' prognosis because it's what they see and what they

know. But MY prognosis is based on what I believe. I'm blessed in so many

ways, and I see all that so clearly now. I have mostly good days until a

couple of bad ones manage to slip in. Then I, too, lounge and watch so much

CNN, MSNBC, CSPAN, etc., that I may apply for the RP club's war

correspondent!

Did I read that you've had RP for 35 years? That fact and your attitude is

astounding. Do you have any other autoimmune diseases?

I'm so glad I found this group. Hope I don't offend anyone with all the

questions, but this keyboard just keeps pounding them out! I swear it's not

me.

re: A Big Thank You

> Bonita -- I'm so glad that what I said made you feel better. It

> sounds as though Gabby, if he is able to go to college, may have a

> mild case. Mine is considered mild but it sure doesn't feel that way

> when I'm having a bad day....and when I have to take two hour naps.

> Right now one ear is bright red.

> And -- Don't always believe the prognosis. After a few

> months of the beginning of polychondritis I could barely talk,

> couldn't swallow food and was coughing every few seconds. The trachea

> was a mess. I realized later that the doctors thought I was going to

> die but they didn't tell me that, so I didn't know any better and

> didn't. Hey, I had my 15 minutes of fame when I made the medical

> journal. I've never read it because it will bring back very painful

> memories. It's better to enjoy things when I can and lounge and

> watch television when I can't.

> G

>

>

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

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Kat, Believe me, you can ask many questions. I am fairly new to this group and they are really neat. They dont even get tired of all the ?. LOL>>> take care, Barbara aka bj Re: re: A Big Thank You <<I'm so glad I found this group. Hope I don't offend anyone with all thequestions, but this keyboard just keeps pounding them out! I swear it's notme. >>, I'm glad you found us too. don't worry about the questions, I thinkthat all of our keyboards are on automatic questions? We all have them, sokeep them coming, that is how we all learn.hugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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