Re: hyper, laughing, squealling, not sleeping...

July 16, 2006

Searmi,

Can you tell us exactly what he is eating right now?

Also... are you 100% sure all his supps are free of trace illegals (I'm sure you

already thought of that). I'm glad you're not doing tons of other things right

now, at the same time as the diet. It would be tough to know what was what.

Let's see if we can tease anything out. Is he eating any raw foods, for example?

Patti

hyper, laughing, squealling, not sleeping...

hi everyone,

our autistic son has been scd since january; we introduced goat

yogurt about three months into the diet, took out nuts completely

over a month ago. his bm's are solid unless he eats too much fruit;

however, his overall progress is very up and down. recently we tried

giving him some homemade raw cow's milk yogurt and some legal cow

cheeses, but even before this he was regressing in several areas,

such as not responding to his name or questions asked of him, not

using utensils anymore, not wanting to explore playground equipment,

not being excited when mom and dad come home...he just wants to look

at books and watch movies (all day, if we would allow this!). he is

still non-verbal for the most part, usually making high-pitched

squalling sounds. he is stimming more than he ever has, lining

things up obsessively, circle spinning, side-glancing, squinting,

hugging things, mouthing objects...we were wondering what other

families have experienced with this diet and recovery of autism.

our boy was diagnosed at 2.3 and was gfcg for one year with tons of

biomed stuff (supplements, chelation, etc) before starting this diet

six months ago. he's done tomatis listening therapy, claybaths,

magnetic matress pad, you name it, we've tried a lot of stuff on our

little guy in the last year and a half. how long before we start to

see some STEADY progress??? that's what this mom needs in order to

forge on...or some encouraging words!

at the moment, our boy is not chelating, but doing minimal

supplements (b12 shots, vitamins, minerals, enzymes, dmg), and sees a

classic homeopath (who suggested that in order to allow the body to

learn to heal itself, you need not bombard it with too many

supplements). it's just so hard to know that you're doing all you

can, or are you doing too much??? aah!

thank you so much for this group's support,

searmi

mom of benjamin, asd, 3.8 year-old (scd for 6 months), and matilda,

20 months old, nt and talking up a storm!

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

July 16, 2006

Hi Searmi;

Is your son on any antifungals for yeast flare-ups? The hyperness, squealling

and not sleeping sound like yeast issues to me. When my daughter is having

trouble with the yeast beast she has these same symptoms. Drunken party in her

crib in the wee hours of the morning.

Definitely not an expert - I think SCD can help dramatically with yeast/bacteria

issues but I don't think the diet is a cure-all for these issues which can be

chronic for a lot of ASD kids.

And congratulations for being so persistant with the biomed interventions. I

know how much work they all are, and how frustrating it can be when you don't

see much progress. Everyone needs some incentive to continue!

I speak from experience - my daughter is also severely autistic. We've also

tried every treatment in the book and haven't been able to crack our " tough

nut " . Hang in there, hopefully it will get better for both of us :-)

HTH,

Kim

2 months dairy-free SCD for 3.5 yo ASD, and 2 yo with G.I/behavioural issues

July 16, 2006

thanks for writing, patti!

benjamin is eating eggs, meats (beef, chicken, pork, turkey, lamb),

cooked veggies (broccoli, cauliflour, spinach, winter and summer

squashes), raw carrots. we used to cook all his fruit but now he

eats mostly raw but peeled apples, pears, banana, oranges, peaches,

and berries are his favorite. no more nuts, but goat yogurt that we

ferment for at least 36 hours with a little bit of honey. i tried

some cow cheese and raw cow milk yogurt in the last few days and he

seems more hyper with some maniacal laughing, so we stopped that.

i am sure that all his supps are 100% scd legal, which is why he is

doing less supps. hard to find good ones that are scd legal.

i am a true believer that food is usually the culprit...maybe too

many raw fruits? he does have yeast and bateria issues, which is why

we stopped chelation (with td-dmps). we were doing magnetic

claybaths instead but stopped that because of the homeopathy.

thank you again for your advice! i am grateful for your time.

~searmi

>

> Searmi,

>

> Can you tell us exactly what he is eating right now?

>

> Also... are you 100% sure all his supps are free of trace illegals

(I'm sure you already thought of that). I'm glad you're not doing

tons of other things right now, at the same time as the diet. It

would be tough to know what was what.

>

> Let's see if we can tease anything out. Is he eating any raw foods,

for example?

>

> Patti

> hyper, laughing, squealling, not sleeping...

>

> hi everyone,

>

> our autistic son has been scd since january; we introduced goat

> yogurt about three months into the diet, took out nuts completely

> over a month ago. his bm's are solid unless he eats too much

fruit;

> however, his overall progress is very up and down. recently we

tried

> giving him some homemade raw cow's milk yogurt and some legal cow

> cheeses, but even before this he was regressing in several areas,

> such as not responding to his name or questions asked of him, not

> using utensils anymore, not wanting to explore playground

equipment,

> not being excited when mom and dad come home...he just wants to

look

> at books and watch movies (all day, if we would allow this!). he

is

> still non-verbal for the most part, usually making high-pitched

> squalling sounds. he is stimming more than he ever has, lining

> things up obsessively, circle spinning, side-glancing, squinting,

> hugging things, mouthing objects...we were wondering what other

> families have experienced with this diet and recovery of autism.

>

> our boy was diagnosed at 2.3 and was gfcg for one year with tons

of

> biomed stuff (supplements, chelation, etc) before starting this

diet

> six months ago. he's done tomatis listening therapy, claybaths,

> magnetic matress pad, you name it, we've tried a lot of stuff on

our

> little guy in the last year and a half. how long before we start

to

> see some STEADY progress??? that's what this mom needs in order

to

> forge on...or some encouraging words!

>

> at the moment, our boy is not chelating, but doing minimal

> supplements (b12 shots, vitamins, minerals, enzymes, dmg), and

sees a

> classic homeopath (who suggested that in order to allow the body

to

> learn to heal itself, you need not bombard it with too many

> supplements). it's just so hard to know that you're doing all

you

> can, or are you doing too much??? aah!

>

> thank you so much for this group's support,

> searmi

> mom of benjamin, asd, 3.8 year-old (scd for 6 months), and

matilda,

> 20 months old, nt and talking up a storm!

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

July 16, 2006

hi kim! thank you for your response...

hmm, sounds like our boy still has yeast issues; he is usually very

giddy and happy when he's up at 3am!

the only antifungal he is on is scdophilus; we make his goat yogurt

and give him as much garlic as he'll take in his hamburger. have you

had luck with grapefruit seed extract, olive leaf extract, or other

antifungals? ben was on nystatin when we were just gfcf but reacted

really badly to it. he must have been having major die-off, hitting

his head on the walls and things like that, but after two months of

that i couldn't take it anymore and took him off of it. he was much

better after that.

i know, it is so hard to figure out what's going on with these kids

of ours; but we are lucky that they are still very young and i am

positive that they can recover! thank you so much for your warmth

and encouragement,

searmi

mom to bennie, 3.8 asd and tilly, 20 months nt

>

> Hi Searmi;

>

> Is your son on any antifungals for yeast flare-ups? The hyperness,

squealling and not sleeping sound like yeast issues to me. When my

daughter is having trouble with the yeast beast she has these same

symptoms. Drunken party in her crib in the wee hours of the

morning.

>

> Definitely not an expert - I think SCD can help dramatically with

yeast/bacteria issues but I don't think the diet is a cure-all for

these issues which can be chronic for a lot of ASD kids.

>

> And congratulations for being so persistant with the biomed

interventions. I know how much work they all are, and how

frustrating it can be when you don't see much progress. Everyone

needs some incentive to continue!

>

> I speak from experience - my daughter is also severely autistic.

We've also tried every treatment in the book and haven't been able to

crack our " tough nut " . Hang in there, hopefully it will get better

for both of us :-)

>

> HTH,

> Kim

> 2 months dairy-free SCD for 3.5 yo ASD, and 2 yo with

G.I/behavioural issues

>

July 16, 2006

Searmi,

I think you're probably right about the raw fruits. I would pull the raw carrots

right now, too.

I'm wondering why you are fermenting the yogurt for 36 hours?? I am very

concerned that you might be overdoing it and losing quite a lot of the

beneficial bacteria.

I'll have to read through this again tomorrow and try to respond further if I

can see anything else. Must go to bed! zzzzzzzzzzzzzzzzzzzz