Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 In a message dated 7/14/2003 10:48:43 PM Central Daylight Time, baileyk80@... writes: > Hi all! Has anyone written to the Montel Show or to Oprah to try to get a > segment on CF? I think that if we all write to them and bombard them with > letters they might do a show. I have found that not many people are aware > about CF and all that it involves. Many people think that CF is something that > kids " grow out " of. Maybe if we could get some national attention and > awareness about CF that it would be good for all of us. > > Just an idea!! > > > > Katy > Mom to Austin 4 no CF & Piper 1 w/CF We did try Oprah and never got a response. I think there was a lot of people on here that wrote to her too including me. But maybe if we keep it up she will get tired of us and do a show so we will stop bugging her. Can't hurt to try! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 In a message dated 7/14/2003 11:27:14 PM Central Daylight Time, baileyk80@... writes: > Deb A, > So true, and BTW I looked at the photo gallery and your girls are absolutely > beautiful!!! I added a couple of pics of my kids too. > > Katy Well, Thank you!! Austin and Piper are adorable too!!!! Loved the basket picture!! It's just so amazing how healthy everyone's kids look!! Take care, DebA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Deb A, So true, and BTW I looked at the photo gallery and your girls are absolutely beautiful!!! I added a couple of pics of my kids too. Katy gdattig5@... wrote: In a message dated 7/14/2003 10:48:43 PM Central Daylight Time, baileyk80@... writes: > Hi all! Has anyone written to the Montel Show or to Oprah to try to get a > segment on CF? I think that if we all write to them and bombard them with > letters they might do a show. I have found that not many people are aware > about CF and all that it involves. Many people think that CF is something that > kids " grow out " of. Maybe if we could get some national attention and > awareness about CF that it would be good for all of us. > > Just an idea!! > > > > Katy > Mom to Austin 4 no CF & Piper 1 w/CF We did try Oprah and never got a response. I think there was a lot of people on here that wrote to her too including me. But maybe if we keep it up she will get tired of us and do a show so we will stop bugging her. Can't hurt to try! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 AND A GREAT ONE. I will write today to whichever one I can find on internet. Many of you all know how to contact these folks so it should be a breeze for you Great idea remind them of the OCTOBER AWARENESS WEEK . Lenora. Do you have all the info :) maybe the folks on line can take an online flyer make copies & distribute to their neighborhood places & stations(radio/TV0. thanks DEB----------- LOVE & HUGS< GrandmomBEv Re: CF awareness In a message dated 7/14/2003 10:48:43 PM Central Daylight Time, baileyk80@... writes: > Hi all! Has anyone written to the Montel Show or to Oprah to try to get a > segment on CF? I think that if we all write to them and bombard them with > letters they might do a show. I have found that not many people are aware > about CF and all that it involves. Many people think that CF is something that > kids " grow out " of. Maybe if we could get some national attention and > awareness about CF that it would be good for all of us. > > Just an idea!! > > > > Katy > Mom to Austin 4 no CF & Piper 1 w/CF We did try Oprah and never got a response. I think there was a lot of people on here that wrote to her too including me. But maybe if we keep it up she will get tired of us and do a show so we will stop bugging her. Can't hurt to try! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 What can we say. our kids are all so beautiful (handsome) & smart :) RIGHT!!! LOVE IT!! LOVE & HUGS< GrandmomBEv Re: CF awareness Deb A, So true, and BTW I looked at the photo gallery and your girls are absolutely beautiful!!! I added a couple of pics of my kids too. Katy gdattig5@... wrote: In a message dated 7/14/2003 10:48:43 PM Central Daylight Time, baileyk80@... writes: > Hi all! Has anyone written to the Montel Show or to Oprah to try to get a > segment on CF? I think that if we all write to them and bombard them with > letters they might do a show. I have found that not many people are aware > about CF and all that it involves. Many people think that CF is something that > kids " grow out " of. Maybe if we could get some national attention and > awareness about CF that it would be good for all of us. > > Just an idea!! > > > > Katy > Mom to Austin 4 no CF & Piper 1 w/CF We did try Oprah and never got a response. I think there was a lot of people on here that wrote to her too including me. But maybe if we keep it up she will get tired of us and do a show so we will stop bugging her. Can't hurt to try! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 This is a great idea. And I would love to help just let me know who to write to. I think if we can get a nationally recognized show to host a show during awareness week it would help alot then people would not be so darn stupid toward us when we tell them our childrens, spouse, neices/nephews, ect problem. I have noticed that I still run into DR and nurses that don't understand what it is. We really need to do something to bring more awareness to CF. Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 I have witten to both of them and I got replies saying that they will keep them in mind for a future show. But maybe if more of us write than they will sooner or later run something on CF. Sandy Mother of three daughters 4 yo w/CF - Kenedy, 5 yo no CF - and 6 yo w/CF - Kaylee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Hi Katy, I have been sending Oprah e-mails just about every week for the last several months to no avail. Maybe if a lot of do this it might help but I am starting to loose enthusiasm for it and wanting to come up with other ways to get info about Cf out there. CF awareness Hi all! Has anyone written to the Montel Show or to Oprah to try to get a segment on CF? I think that if we all write to them and bombard them with letters they might do a show. I have found that not many people are aware about CF and all that it involves. Many people think that CF is something that kids " grow out " of. Maybe if we could get some national attention and awareness about CF that it would be good for all of us. Just an idea!! Katy Mom to Austin 4 no CF & Piper 1 w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 For Oprah go to www.oprah.com and click on " be on the show " They ask you to tell your story. Re: CF awareness This is a great idea. And I would love to help just let me know who to write to. I think if we can get a nationally recognized show to host a show during awareness week it would help alot then people would not be so darn stupid toward us when we tell them our childrens, spouse, neices/nephews, ect problem. I have noticed that I still run into DR and nurses that don't understand what it is. We really need to do something to bring more awareness to CF. Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Celine Dion is the celebrity patron of the Canadian Cystic Fibrosis Foundation and has done a tremendous amount for CF, including benefit concerts. She has been generous with her time and money in public and behind the scenes. The major prizes in the Canadian CF national walkathon, sponsored by the Zellers chain department stores, were tickets to Celine's opening night of her Las Vegas show. It is my understanding that requests regarding CF to Celine should be made through the Canadian Cystic Fibrosis Foundation. M nicole wilson wrote: >... I am very interested in getting the word out to celebrities about cf. ... Have you ever thought about Celine Dion, she lost a niece to cf. I always invision a benefit concert for cf hosted by Oprah with Celine singing. Who knows maybe we could pull it off someday. Feel free to email me at entnursenikki@... or call me at before 5 pm and after 5 pm. >Sincerely, > Mom of Madeline 1 wcf > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 In a message dated 7/15/2003 6:58:07 PM Central Daylight Time, hbyc7@... writes: > Celine Dion is the celebrity patron of the Canadian Cystic Fibrosis > Foundation and has done a tremendous amount for CF, including benefit > concerts. She has been generous with her time and money in public and > behind the scenes. The major prizes in the Canadian CF national > walkathon, sponsored by the Zellers chain department stores, were > tickets to Celine's opening night of her Las Vegas show. It is my > understanding that requests regarding CF to Celine should be made > through the Canadian Cystic Fibrosis Foundation. > > M There is also Tammy Cochron who had two brothers that had CF and died she wrote a song about it called Angels in waiting!! It's a beautiful song and my youngest will call it the dying angel song!! Deb A Quote Link to comment Share on other sites More sharing options...
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