Re: A Big Thnk you - Bonita

[Guest guest]

Bonita,

Good for you, for maintaining your positive perspective and

encouraging your nephew to join us. I know it has helped to give me

much more hope than the medical literature that I read, so I hope it

could do the same for your sister and nephew.

Take care!

> ,

>

>

> Hello it is me, Bonita and i just wanted to say that what you

said about

> RP is fatal, my nephew Gabby, is 21 and just those 3 words...( it's

not

> fatal) you will never know how you have given me a blessing, my

sister

> Stacey, mother of Gabby is going crazy thinking that he is has this

fatal

> disease and she is such a mother hen, ( which of course, any mother

or a

> caring heart and loving support goes threw on her own which she

feels she has

> only one day with him and is set on thinking her son is close to

death) which

> honestly it upsets me so, that i explain to her stopping putting

your mind

> set that way, enjoy what you have and live it the fullest but again

i don't

> understand, she has him so unidependent he wants to work not full

time but

> some and he does goes to college but she only has him 2 times per

week and he

> tells her constantly he feels OK, of course he does have his bad

days, but

> still he wants to do something besides stay at home and be waited

on...i have

> made many attempts to get them to join the group, because here he

can pour

> all emotions with a loving and honest support group who can relate

to him.

> but she doesn't see it that way, so i just now and then mention the

group at

> times just to let him know i still support the group and now i

consider us a

> part of the cyberspace family. And that i will always be within the

group for

> always. So again let me thank you from the bottom of my heart for

just those

> words.

>

> Love and my warm prayers and thoughts are with you and the group.

> Bonita