Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 What is c-dif? We have not been told he has reflux either. Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Christal, Hi I'm sorry to hear that Zack is not doing so well. Poor Baby! I hope this all gets figured out soon. Has he been tested for C-dif? That can also cause diarrhea. Has he been tested for reflux? My daughter had it really bad and it made her cough a lot. Also she had this ugly little cough recently and it apparently was the return of the reflux, so she went back on one of the reflux meds and it has magically disappeared. Hope this helps. Vent away that is what we are here for! Zacks follow-up Well, we went to the dr. again yesterday and it was not a good day. Zack didn't culture pseudomonas but everything else was bad. I just a week he has lost 3 pounds and even though he is getting his enzymes like he is supposed to he is having those awful poops again. The worst part is he isn't even eating anything to absorb it. So the Dr. switched us to the Ultrase MT12 and he said if he continues to lose over the next week we are gonna try him on Zantac and if that don't work then it looks like a hospital stay with follow. I am freaking out. It is a fight to get this child to eat and then when he does his poor little body still doesn't get what it needs. On top of that we were informed that most kids with CF don't have a cough all the time like Zack does. They said they are gonna try to treat it with antibiotics again (just oral right now) but if it doesn't go away that could indicate that he already has some lung damage. All I can think is that for the first 2 years of this child's life he had chronic respiratory infection and all of it was due to the CF yet it went untreated because these idiot DR. s that know little to nothing about CF wouldn't test him to see why he was staying so sick! Well, they also ran a bunch more blood test to see if he is deficit in anything and how his liver and stuff are so hopefully we will get some good news back on that. The best news I have had all week is when the vest company called and said we should get are vest tomorrow or Thursday! I was shocked after hearing every one saying it would take 6-8 weeks, we just got the prescription for it last Tuesday. Sorry for venting but I had to get it off my chest. I am so frustrated with incompetent DR. s and ignorant people. This uneducated assumptions of our children's disease is uncalled for. We really do need to do something to bring to light what CF really is and that it is something that more dr. need to look for in children who have serious respiratory problems before there it is to late and there is already permanent lung damage done. Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Christal, What indicated is true for my daughter Emma as well. She has real bad problems with reflux (hospitalized two years ago for not eating or drinking due to her reflux). It's always really hard for me to determine if she is coughing due to lung problems or reflux. I usually have to base the decision on other factors as well such as does she have a cold, has she been vomiting, etc. Good Luck, we are pulling for you. - mom to Emma 3 years w/cf and Isabelle almost 5 wo/cf On Tue, 15 Jul 2003 18:50:22 -0400 " ANDREA FITTING " writes: > Christal, > Hi I'm sorry to hear that Zack is not doing so well. Poor Baby! I > hope this all gets figured out soon. Has he been tested for C-dif? > That can also cause diarrhea. Has he been tested for reflux? My > daughter had it really bad and it made her cough a lot. Also she > had this ugly little cough recently and it apparently was the return > of the reflux, so she went back on one of the reflux meds and it has > magically disappeared. Hope this helps. > Vent away that is what we are here for! > ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2003 Report Share Posted July 16, 2003 Christal, C-dif is, I think, a bacteria that causes diarrhea. I know that has been tested for it a few times. They just ask you to...um...supply them with a stool sample and they test it for c-dif. lots of people get c-dif without even knowing what they have or that they had it. I understand that they give antibiotics for it. has never actually had it. Ask about it and the reflux at your next visit. Re: Zacks follow-up What is c-dif? We have not been told he has reflux either. Christal mom of tristan 6 ncf, Zack 2pwcf, and Ki'a 8 months ncf. Quote Link to comment Share on other sites More sharing options...
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