Re: Question to all or anyone

[Guest guest]

Hey -

Thanks so much for your post. I surely hope the MRCP will give u the answers

needed to treat you but even if it comes back normal don't be alarmed. I had

an MRCP right before my GI performed the ERCP. My MRCP was completely

normal. Only showed mild bile reflux into my stomach which is normal for

someone

that has had there GB removed. A few weeks later, he performed the ERCP and

found 2 very small stones plus lots of yellow debris in my bile duct. THE CT

scan I had nor the MRCP showed any of this. As for your GB, I do believe the

best test to determine if and how its working is the HIDA scan which i'm sure is

what's next for you after the MRCP.

Take care, Tonya

[Guest guest]

Tonya,

Don't give up. Be very persistent. I was. I kept complaining to my GI Doctor

and he did an ERCP which showed CP. I did well for a whole year and then had 2

acute attacks. (by the way I had my 1st attack 2 months after gallbladder

removed). Try keeping a diary of what you eat and how you feel after eating.

(ie. diarrhea, gas, bloating, heartburn, pain under ribcage, nausea...) Do this

for a couple of weeks. If you think you are having panc problems be sure you

DON'T DRINK any alcohol. Even medicine with alcohol.

I hope this helps.

Patty

Louisville, KY

> Question to all or anyone

>

> I've got a question for u guys and I do realize you guys aren't

> doctors but seem to have more knowledge of these issues than they do.

>

> I've not been diagnosed w/CP but have had problems since July, 2000.

> I was really sick w/nausea, chest and back pain on both sides. First

> eposide started after an high fatty meal. Two days later, went to

> doc and said probably gastritis and put on acidhex. Seemed a little

> better for 3 days and went to dinner. I had two drinks and was so

> sick w/nite sweats, fever and the same pain. Went back to doc and

> through many basic tests including ultrasound, blood work,

> endoscopy. GI switched me to Prevacid. After 6 weeks of this, I

> found a new PCP. He first thought was my gall bladder and sent me in

> for a HIDA scan. Here's my question. During the beginning of the

> scan, they put the radioactive med in the IV and laid me under the

> scan watching on the monitor why the med travel through your

> digestive system. Well it never showed my gall bladder after 1 hr so

> they then instead of giving the CCK, put a tiny bit of morphine

> through IV. Well my gb showed up within 5 min. The report stated

> that scan showed indications of acute and chronic gall bladder

> disease w/o stones. Had it removed immediately. I did get some

> better but still have this severe left sided chest and back pain.

> ONly mainly, left sided through. Continued going to the docs

> w/numerous testing which all were normal. Do you think that it

> taking so long to find out my gall bladder wasn't functioning that it

> did some kind of damage to my pancreas causing this chronic pain that

> I'm still experiencing all these years? I'm going nuts here. I

> finally quit going to the docs in mid 2001 as they started thinking i

> was just a " nervous " person. And yea, after being sick all this time

> it does make a person " nervous " as not knowing what it is. And I did

> have an ERCP in Feb, 2001 as my GI dilated the biliary duct and

> removed 2 small stones and lots of yellow debris. He did not check

> the pancreas duct as he didn't want to cause any other problems since

> my labs have always been normal.

>

> Thanks so much,

>

> Tonya

>

>

>

>

>

>

>

>

>

[Guest guest]

1. Have you EVER had an episode go on for this long? In my case,

I'm going on week three!!

When I first become ill in July, 2000 I was continuely sick for over 6 weeks

before they found my gall bladder. Within that time I went to ER 4 different

times with no relief. I also lost 20 lbs in this time.

2. Do smells ever get to you and make you nauseated?

I couldn't eat anything or smell. Not anything. I would try to force myself

but I just couldn't get it to go down.

3. Do you ever get an elevated temp?

Yes my temp would run around 100 most of the time. Didn't worry the docs

though. Said it would have be to 101 to indicate infection.

4. Chills?

I kept the chills during that first attack and nite sweats. But now my gb is

gone so has that.

[Guest guest]

Tonya: I've been in what they think is an acute panc attack for 2

weeks now. It's sort of like a revolving door thing.....I feel well

one day, I eat a normal dinner (mind you, low fat/no fat) and then go

thru 2 days of the panc pain, nausea, lightheadedness, etc. The

reason your post caught my eye so much is that I'm scheduled for an

MRCP (Like an MRI only focusing on the pancreas, etc.).....HOWEVER,

my doc said today if that doesn't show anything, he is going to do

whatever that test you had that showed how movement goes thru the

digestive system and whether or not there is evidence of gall bladder

problems. It seems to me that while that could be the problem that

there are ALOT of people here that once the gall bladder is removed

suffer even more with pancreatitis.

So....I guess what I'm trying to say is that, yes, it sounds as if in

your case, the ORIGINAL problem started with the gall bladder but

damage has now occurred within the pancreas as a RESULT of the gall

bladder problems. I sure hope that they can get you squared

away...but I agree with (I apologize but can't remember who at the

moment) whomever posted that you must be persistent with these docs.

Once they've found one thing they seem to want to blame EVERYTHING

else on that and not deal with problems that may have moved on into

other organs, i.e., the pancreas. Let me know how it turns out I'd

be very interested to know because it sounds like you're about one

step ahead of me in terms of treatment.

Best Wishes

> I've got a question for u guys and I do realize you guys aren't

> doctors but seem to have more knowledge of these issues than they

do.

>

> I've not been diagnosed w/CP but have had problems since July,

2000.

> I was really sick w/nausea, chest and back pain on both sides.

First

> eposide started after an high fatty meal. Two days later, went to

> doc and said probably gastritis and put on acidhex. Seemed a little

> better for 3 days and went to dinner. I had two drinks and was so

> sick w/nite sweats, fever and the same pain. Went back to doc and

> through many basic tests including ultrasound, blood work,

> endoscopy. GI switched me to Prevacid. After 6 weeks of this, I

> found a new PCP. He first thought was my gall bladder and sent me

in

> for a HIDA scan. Here's my question. During the beginning of the

> scan, they put the radioactive med in the IV and laid me under the

> scan watching on the monitor why the med travel through your

> digestive system. Well it never showed my gall bladder after 1 hr

so

> they then instead of giving the CCK, put a tiny bit of morphine

> through IV. Well my gb showed up within 5 min. The report stated

> that scan showed indications of acute and chronic gall bladder

> disease w/o stones. Had it removed immediately. I did get some

> better but still have this severe left sided chest and back pain.

> ONly mainly, left sided through. Continued going to the docs

> w/numerous testing which all were normal. Do you think that it

> taking so long to find out my gall bladder wasn't functioning that

it

> did some kind of damage to my pancreas causing this chronic pain

that

> I'm still experiencing all these years? I'm going nuts here. I

> finally quit going to the docs in mid 2001 as they started thinking

i

> was just a " nervous " person. And yea, after being sick all this

time

> it does make a person " nervous " as not knowing what it is. And I

did

> have an ERCP in Feb, 2001 as my GI dilated the biliary duct and

> removed 2 small stones and lots of yellow debris. He did not check

> the pancreas duct as he didn't want to cause any other problems

since

> my labs have always been normal.

>

> Thanks so much,

>

> Tonya

[Guest guest]

hi, my name is brenda. on the record had my first attack 3 yrs ago..was

diagnosed then..and looking for doctor to help me w/ my pancreatitis..no one

wanted to touch me because all the labs come back normal after my two acute

attack...finally i was diagnosed w/ Hereditary Pancreatitis..something that

i couldnt help...talking w/ my mother i could remember my first attack when

i was 14 yrs old..but thought it was my gall bladder...had that removed also

three yrs ago...not to turn down doctors....but they only know what they

study..and if it's not in the labs, MRIs, endoscopy...then it's all in ur

head...cant understand them, when u know the pain is real..

hoping u will find relief...take care...bren

>

>Reply-To: pancreatitis

>To: pancreatitis

>Subject: Re: Question to all or anyone

>Date: Mon, 16 Feb 2004 19:52:17 -0000

>

>Tonya: I've been in what they think is an acute panc attack for 2

>weeks now. It's sort of like a revolving door thing.....I feel well

>one day, I eat a normal dinner (mind you, low fat/no fat) and then go

>thru 2 days of the panc pain, nausea, lightheadedness, etc. The

>reason your post caught my eye so much is that I'm scheduled for an

>MRCP (Like an MRI only focusing on the pancreas, etc.).....HOWEVER,

>my doc said today if that doesn't show anything, he is going to do

>whatever that test you had that showed how movement goes thru the

>digestive system and whether or not there is evidence of gall bladder

>problems. It seems to me that while that could be the problem that

>there are ALOT of people here that once the gall bladder is removed

>suffer even more with pancreatitis.

>

>So....I guess what I'm trying to say is that, yes, it sounds as if in

>your case, the ORIGINAL problem started with the gall bladder but

>damage has now occurred within the pancreas as a RESULT of the gall

>bladder problems. I sure hope that they can get you squared

>away...but I agree with (I apologize but can't remember who at the

>moment) whomever posted that you must be persistent with these docs.

>Once they've found one thing they seem to want to blame EVERYTHING

>else on that and not deal with problems that may have moved on into

>other organs, i.e., the pancreas. Let me know how it turns out I'd

>be very interested to know because it sounds like you're about one

>step ahead of me in terms of treatment.

>

>Best Wishes

>

>

>

> > I've got a question for u guys and I do realize you guys aren't

> > doctors but seem to have more knowledge of these issues than they

>do.

> >

> > I've not been diagnosed w/CP but have had problems since July,

>2000.

> > I was really sick w/nausea, chest and back pain on both sides.

>First

> > eposide started after an high fatty meal. Two days later, went to

> > doc and said probably gastritis and put on acidhex. Seemed a little

> > better for 3 days and went to dinner. I had two drinks and was so

> > sick w/nite sweats, fever and the same pain. Went back to doc and

> > through many basic tests including ultrasound, blood work,

> > endoscopy. GI switched me to Prevacid. After 6 weeks of this, I

> > found a new PCP. He first thought was my gall bladder and sent me

>in

> > for a HIDA scan. Here's my question. During the beginning of the

> > scan, they put the radioactive med in the IV and laid me under the

> > scan watching on the monitor why the med travel through your

> > digestive system. Well it never showed my gall bladder after 1 hr

>so

> > they then instead of giving the CCK, put a tiny bit of morphine

> > through IV. Well my gb showed up within 5 min. The report stated

> > that scan showed indications of acute and chronic gall bladder

> > disease w/o stones. Had it removed immediately. I did get some

> > better but still have this severe left sided chest and back pain.

> > ONly mainly, left sided through. Continued going to the docs

> > w/numerous testing which all were normal. Do you think that it

> > taking so long to find out my gall bladder wasn't functioning that

>it

> > did some kind of damage to my pancreas causing this chronic pain

>that

> > I'm still experiencing all these years? I'm going nuts here. I

> > finally quit going to the docs in mid 2001 as they started thinking

>i

> > was just a " nervous " person. And yea, after being sick all this

>time

> > it does make a person " nervous " as not knowing what it is. And I

>did

> > have an ERCP in Feb, 2001 as my GI dilated the biliary duct and

> > removed 2 small stones and lots of yellow debris. He did not check

> > the pancreas duct as he didn't want to cause any other problems

>since

> > my labs have always been normal.

> >

> > Thanks so much,

> >

> > Tonya

>

_________________________________________________________________

Click here for a FREE online computer virus scan from McAfee.

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

True .....Hidda scan is best test for determining if the gallbladder is

functioning.,Most doctors remove the GB if the Hidda Scan result is 40 or below.

Mine was 6. During the Hidda Scan if you get pain when they inject you mid way

thru the procedure ( there are several injections thru the IV) then it is

ususally positive, Not always, but usually. The pain gets reproduces

momentarily, that is usually a sign that the test is positive. if you get no

pain, then you are usually in the clear. That is what the xray tech explained to

me.

Lily from Ohio

Re: Re: Question to all or anyone

Hey -

Thanks so much for your post. I surely hope the MRCP will give u the answers

needed to treat you but even if it comes back normal don't be alarmed. I had

an MRCP right before my GI performed the ERCP. My MRCP was completely

normal. Only showed mild bile reflux into my stomach which is normal for

someone

that has had there GB removed. A few weeks later, he performed the ERCP and

found 2 very small stones plus lots of yellow debris in my bile duct. THE CT

scan I had nor the MRCP showed any of this. As for your GB, I do believe the

best test to determine if and how its working is the HIDA scan which i'm sure

is

what's next for you after the MRCP.

Take care, Tonya

[Guest guest]

Hi Tonya: Thanks for responding. Yes, I've gotten to the point

where I don't have much hope for some of the testing like the

upcoming MRCP.....I'm almost sure it won't show anything. At the ER

last night, (which I forgot to mention in my post re: the ER) they

took a standard x-ray and said nothing showed up on that.....my first

thought was to say " well, no duh....if nothing's showing on a CT

scan, I doubt it's going to show on a standard x-ray " ....but like a

good little patient, I didn't say anything.

Question(s) I have for you and everyone (please respond because I'm

sort of worried!!)

1. Have you EVER had an episode go on for this long? In my case,

I'm going on week three!!

2. Do smells ever get to you and make you nauseated?

3. Do you ever get an elevated temp?

4. Chills?

5. Do you ever get a temp that is below normal?

Thanks as always

> Hey -

>

> Thanks so much for your post. I surely hope the MRCP will give u

the answers

> needed to treat you but even if it comes back normal don't be

alarmed. I had

> an MRCP right before my GI performed the ERCP. My MRCP was

completely

> normal. Only showed mild bile reflux into my stomach which is

normal for someone

> that has had there GB removed. A few weeks later, he performed the

ERCP and

> found 2 very small stones plus lots of yellow debris in my bile

duct. THE CT

> scan I had nor the MRCP showed any of this. As for your GB, I do

believe the

> best test to determine if and how its working is the HIDA scan

which i'm sure is

> what's next for you after the MRCP.

>

> Take care, Tonya

>

>

>

[Guest guest]

Thanks sooooo much for your response...I really appreciate all the

input I can get at this point. Tonight my temp is going up and down,

up and down......97.3 to 99.8......verrrryyy odd. It did the same

last night at ER and at least the ER doc had to sense to mention to

me (it was 100.5 at that point) to keep taking my temp....

GROSS ALERT!!

Another question (sorry!!): Do the pain meds, e.g., Darvocet make

anyone constipated? Sorry for question but this is day 3 of this as

well.......and I've taken a stool softener AND a laxative with no

relief yet......

Thanks

> 1. Have you EVER had an episode go on for this long? In my case,

> I'm going on week three!!

>

> When I first become ill in July, 2000 I was continuely sick for

over 6 weeks

> before they found my gall bladder. Within that time I went to ER 4

different

> times with no relief. I also lost 20 lbs in this time.

>

> 2. Do smells ever get to you and make you nauseated?

>

> I couldn't eat anything or smell. Not anything. I would try to

force myself

> but I just couldn't get it to go down.

>

> 3. Do you ever get an elevated temp?

>

> Yes my temp would run around 100 most of the time. Didn't worry

the docs

> though. Said it would have be to 101 to indicate infection.

>

> 4. Chills?

>

> I kept the chills during that first attack and nite sweats. But

now my gb is

> gone so has that.

>

>

>

>

>

[Guest guest]

,

Yes Darvocet CAN cause constipation. It is a narcotic and that is a common side

effect of narcotics.

If possible, increase your water intake, use a stool softner, OTC like Colace or

Peri colace. Generic is fine. Increase fiber if you can. Colace will keep the

stool soft. Can be taken every day as well. There is a MILD laxative you can

take called Senakot. It is pill form . It is OTC as well. Made out of natural

ingriedents. Cancer patients take them all the time. You can take 2-5 a day

and not overdose on it. But it will give you results within 24 hours. Expensive

, runs about t $11-15.00 per bottle but is very gentle.All of the oncologists

that I have worked with use it on the cancer patients when they get constipated

from the narcotics.

I hope that you start feeling well soon !

Lily

Re: Question to all or anyone

Thanks sooooo much for your response...I really appreciate all the

input I can get at this point. Tonight my temp is going up and down,

up and down......97.3 to 99.8......verrrryyy odd. It did the same

last night at ER and at least the ER doc had to sense to mention to

me (it was 100.5 at that point) to keep taking my temp....

GROSS ALERT!!

Another question (sorry!!): Do the pain meds, e.g., Darvocet make

anyone constipated? Sorry for question but this is day 3 of this as

well.......and I've taken a stool softener AND a laxative with no

relief yet......

Thanks

> 1. Have you EVER had an episode go on for this long? In my case,

> I'm going on week three!!

>

> When I first become ill in July, 2000 I was continuely sick for

over 6 weeks

> before they found my gall bladder. Within that time I went to ER 4

different

> times with no relief. I also lost 20 lbs in this time.

>

> 2. Do smells ever get to you and make you nauseated?

>

> I couldn't eat anything or smell. Not anything. I would try to

force myself

> but I just couldn't get it to go down.

>

> 3. Do you ever get an elevated temp?

>

> Yes my temp would run around 100 most of the time. Didn't worry

the docs

> though. Said it would have be to 101 to indicate infection.

>

> 4. Chills?

>

> I kept the chills during that first attack and nite sweats. But

now my gb is

> gone so has that.

>

>

>

>

>

[Guest guest]

Thanks Lily.....I'm trying to up the fluids and I'll check my drug

store for the Senakot....sorry for the unpleasant topic.....but I

guess that's what we're all here for anyway....all of this presents

plenty of unpleasant topics doesn't it?

thanks again

> > 1. Have you EVER had an episode go on for this long? In my

case,

> > I'm going on week three!!

> >

> > When I first become ill in July, 2000 I was continuely sick for

> over 6 weeks

> > before they found my gall bladder. Within that time I went to

ER 4

> different

> > times with no relief. I also lost 20 lbs in this time.

> >

> > 2. Do smells ever get to you and make you nauseated?

> >

> > I couldn't eat anything or smell. Not anything. I would try

to

> force myself

> > but I just couldn't get it to go down.

> >

> > 3. Do you ever get an elevated temp?

> >

> > Yes my temp would run around 100 most of the time. Didn't

worry

> the docs

> > though. Said it would have be to 101 to indicate infection.

> >

> > 4. Chills?

> >

> > I kept the chills during that first attack and nite sweats.

But

> now my gb is

> > gone so has that.

> >

> >

> >

> >

> >

[Guest guest]

,

In answer to your questions:

1. After my second acute attack, the one where they did the

CT-scans and ultrasounds and all the tests to determine that I

had pseudocyst, plus partially drained one of the largest

pseudocysts down to 4.5 cm., I was out of it for about three

weeks. I was on hydrocodone at the time, 5 mgs. every 4 hours,

and I remember needing to use it relentlessly. I would have a

good day followed by two or three bad days. Finally, about a

month later, I started feeling more like myself.

2. Smells did nausiate me, it was like going through early

pregnancy again.

3. I ran a temperature of about 100, off and on.

4. Yes, chills when I had the temperature.

5. My " normal " temperature is in the 96.7 - 97.0 range. This is

lower than what they say the standard is.

I hope this helps. I do believe that most of what you're going

through is par for the course. It takes some of us longer to get

back on our feet than others. You need to remember, too, that

this attack was a long time coming, and you haven't really been

in the best of health these last months with the onset of all these

symptoms finally snowballing into a full attack.

With hope and prayers,

Heidi

Heidi H. Griffeth

http:panassociation.org/anthology.htm#heidi

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments or advice are personal opinion only, and

should not be substituted for professional medical consultation.

[Guest guest]

Hi ! In answer to your questions...

>

> 1. My lastest one is 4 weeks and going, but it does seem to be on

the up end finally...

>

> 2. Most definitely...and things don't taste right or smell right.

>

> 3. Sometimes a low grade.

>

> 4. with the low grade fever.

>

> 5. My normal temp is 96.7

>

hope this helps and finds you feeling better.

take care!

Rhonda

Annville, PA