Re: OT Staying true to SCD tm

[Guest guest]

>

> I was not suggesting through my post that SCD change for the sake of

> changing with shoddy science or no science at all. Quite frankly, I

> don't have anything in particular that 'I' think needs changing with

> SCD.

>

> My entire point which seems to be missed is that it is foolish to

> believe that one person had all the answers to solving these puzzles.

> BTVC is the best that is known at this point in time. Elaine Gottshall

> dedicated her life to the knowledge that is here for us to benefit from.

> If she knew every nook and cranny to be explored in the area, then she

> could not possibly have been human. But we all knew she was and an

> amazing one at that.

>

> I don't know about this other book mentioned, and whether or not it is

> valid to BTVC or not. I just don't think it's realistic to think that

> SCD is static. Should this be discussed someplace other than pecanbread?

> Yes. It is very confusing to newcomers I'm sure.

>

> I was just trying to help others see this from both sides, not get into

> an argument.

>

>

> Becky

> mom to Noah (6, HFA) and (3, NT)

>

I don't doubt that book has merit. It is receiving praise from respected

quarters. I just

object to having it declared the third official SCD book by a list member unless

that is just

to her personally.

Here are studies that COULD be done.Some have been tried before but not under

properly

controlled conditions:

SCD versus GFCF

SCD eliminating high oxalate foods versus just SCD

SCD with probiotics and enzymes versus just SCD

SCD with selected additional treatment (eg chelation) against just SCD.

SCD among casein tolerant using yogurt against SCD casein tolerant with no

yogurt

We could devise countless others but haven't the resources at this time.

What studies would you all propose?

Carol F.

[Guest guest]

Hi Carol,

My first comment would be... as for studies...

Joe, my 4-year-old son will be going in to his pediatrician for

updates on his digestive wellness. He previously had an abdominal x-

ray around one year ago, which showed significant (moderate) build

up of stool. Lactulose, which is an SCD illegal helped expunge that

funk from his system. It gave us a jump start prior to starting

SCD.

I will be requesting not only an abdominal x-ray to see how his

abdomen is now... but also, follow up referral to a

gastroenterologist to do full studies to see what condition his gut

is truly in. I want pictures... I want to SEE the results and

healing... It makes healing more tangible and gives a bit more fact

to go with a realm of unknown, especially since I can only base my

son's healing thus far upon his behaviors and appearance...

My thought is that perhaps the studies should include much more

scientific/medical information instead of just parent testimonials.

Quite frankly, some of the commentary here sounds cult-like and it

counteracts the effectiveness SCD has as a viable option for healing.

I strongly recommend the yogurt... a biologist recently told me, he

finds it very difficult to believe that the casein in goat's milk is

that far removed from the casein in cow's milk. Perhaps it is the

lack of healing in these children that makes casein an issue, for my

Joe, SCD approved Dairy is not an issue whatsoever in his diet.

Before I digress, an updated study w/ medical logs on children w/

ASD after increments of time on SCD would be a healthy start. As

well, a log of all therapy methods and extraneous dietary measures

taken as well during that timeframe. Our Joe is in an ABA program,

ABLC program, Sensory Diet (Out of Sync Kids is a great way to reach

out), as well as SCD and a few miscellaneous dietary interventions

and supplements along the way. It would be very difficult to remove

other variables to do SCD on it's own. I think medical results

would best reflect SCD's impact.

Just my two cents' worth in a pinch...

-Carol / Froggypeach

Mother of 4, ages 14, 5-1/2, 4, and 2 years old. 4 yo son dx w/

regressive autism 10/2004, SCD 10/2005

>

> > Here are studies that COULD be done.Some have been tried before

but not under properly

> controlled conditions:

>

> SCD versus GFCF

> SCD eliminating high oxalate foods versus just SCD

> SCD with probiotics and enzymes versus just SCD

> SCD with selected additional treatment (eg chelation) against just

SCD.

> SCD among casein tolerant using yogurt against SCD casein tolerant

with no yogurt

>

> We could devise countless others but haven't the resources at this

time.

>

> What studies would you all propose?

>

> Carol F.

>

[Guest guest]

> >

> > > Here are studies that COULD be done.Some have been tried before

> but not under properly

> > controlled conditions:

> >

> > SCD versus GFCF

> > SCD eliminating high oxalate foods versus just SCD

> > SCD with probiotics and enzymes versus just SCD

> > SCD with selected additional treatment (eg chelation) against just

> SCD.

> > SCD among casein tolerant using yogurt against SCD casein tolerant

> with no yogurt

> >

> > We could devise countless others but haven't the resources at this

> time.

> >

> > What studies would you all propose?

> >

> > Carol F.

> >

Dear " Other Carol " -Foggy Peach,

Thanks for this thoughtful response and don't think Mimi and I haven't tried to

see if we

could do what you suggest but it just became too difficult. What we did do was

encourage

parents to do a parents' report which asked for specific information and would

then have

collated it. I'll copy Mimi on this in case she is not reading the list at the

moment and she

will post her comments. I appreciate the very literate report on your child

because it is so

detailed and scientific. Your progress is inspiring! Your attention to important

visible

evidence too.

Carol F.