Re: Silly Questions

[Guest guest]

Sharon, First of all, there is no such thing as a silly question!!! A lot

of times we just take things for granted and don't bother to mention them and

when we do we find out we are not alone.

First about your hair. When I was on metho, my hair started to fall out and

got really thin, I have always had thick hair. Went off the metho and it

didn't fall out, but my hair has no shine or body now. Well, it has gone

from straight to curly, figure that one out. LOL I too cut my hair short so

I could try to deal with it. Don't know if it's the pred or what.

Yes, I almost always feel like I have a fever and don't. Even get the

chills. I feel like I'm burning up. Can't figure that one out either.

For two weeks now I have been nauseated and thought i had a bug or something,

but it isn't going away. Just feel nauseated all the time. I called my

rheumy today and she wanted me to up my pred. Said with my symptoms (nausea,

feeling cold, tired and weak) that it could be my adrenal glands haven't

kicked back in with the lowe dose of pred. So I upped my pred back one mg.

I feel better tonight. Will see what happens.

Please keep asking questions, maybe we can all figure out a reason why we

feel like we do and this may help to find a CURE!!

hugs

[Guest guest]

In a message dated 3/11/02 3:57:41 PM Pacific Standard Time,

godave4@... writes:

<<

There's a good chance that the antibiotic you were on has totally

wiped out all the good bacteria in your stomach and intestines.

This happens to me everytime I am on an antibiotic. It helps to eat

lots of yogart. Marilyn

>>

Marilyn, that's a really good suggestion. I also take acidophilus everyday

because I'm on biaxin daily. Have never had yeast infections or intestinal

problem.

[Guest guest]

Hi Sharyn,

There's a good chance that the antibiotic you were on has totally

wiped out all the good bacteria in your stomach and intestines.

This happens to me everytime I am on an antibiotic. It helps to eat

lots of yogart. Marilyn

Hi everyone

>

> Know you all are getting tired of my silly questions, but I do

have

> a couple of more. Several may sound a little off the wall so

don't

> laught

>

> First, have any of you experienced a change in your hair. Well,

> what I'm trying to ask is I use to have a lot of body to my hair.

> Now I've noticed I have that body still, but only on the left side

> of my head. Mostly the top and right side have gone completely

> streight...doesn't matter what I do to it there is no body any

more

> an it stays flat. Now I have my hair short because it acted like

it

> was dieing there for a while. Not to bad now. All of this

started

> before I was DX with RP or put on any medication for it.

>

> Second quesitons. Has any of the medication the doctor has put

you

> on given you the burps???? with a really nasty taste? And do you

> feel a lot of time you are going to toss your cookies at any

> minute? I mean feel really sick. How about having to run to the

> bathroom before you have a major accident. Thought it was the

> antibiotics, but stopped taking them several days ago and I'm

still

> having the problem of everything I eat going right through me.

>

> Wouldn't be so dang bad if I would loose some weight. Am trying

to

> be very careful what I eat and the amount..that is when I can eat

> because of my little problem here as well as my blood sugar going

> crazy. Just don't understand why I am having such a problem when

> I'm not eating any sugar or carbs. Hopefully with the new

> medication I will be starting this week it will get back under

> control...if not then I guess I'm in big trouble.

>

> Oh, one more thing. How many of you breakout in a cold sweet and

> feel like your head is on fire...isn't that when you are having

like

> fevers or someting like that. I mean it's worse than when I was

> going through menapause...12 years ago.

>

> Told you these were silly questions

>

> Sharyn

[Guest guest]

ref. hair lost, I had very thick hair, since I have been on metho for many years I have hair fall out and my hair is very thin, I have to keep it short . Isa Re: Silly Questions Sharon, First of all, there is no such thing as a silly question!!! A lot of times we just take things for granted and don't bother to mention them and when we do we find out we are not alone. First about your hair. When I was on metho, my hair started to fall out and got really thin, I have always had thick hair. Went off the metho and it didn't fall out, but my hair has no shine or body now. Well, it has gone from straight to curly, figure that one out. LOL I too cut my hair short so I could try to deal with it. Don't know if it's the pred or what. Yes, I almost always feel like I have a fever and don't. Even get the chills. I feel like I'm burning up. Can't figure that one out either. For two weeks now I have been nauseated and thought i had a bug or something, but it isn't going away. Just feel nauseated all the time. I called my rheumy today and she wanted me to up my pred. Said with my symptoms (nausea, feeling cold, tired and weak) that it could be my adrenal glands haven't kicked back in with the lowe dose of pred. So I upped my pred back one mg. I feel better tonight. Will see what happens. Please keep asking questions, maybe we can all figure out a reason why we feel like we do and this may help to find a CURE!!hugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Dear Sharyn, I go through spells where I thow up a couple times a day. Its

almost projectile vomiting, run like heck to the bathroom or a sink or

whatever. Its usually just very milk colored mucus.

There is also major bouts of diarrhea. I have found if I take an Imodium at

night its not so bad in the morning. I have had to clean up a couple messes

on my way to the bathroom. Embarrassing to say.

At night my head is very warm, so is my body. We live in Wisconsin so its

cold here and I sleep with the window cracked open and on top of the covers

most of the night. I flip my pillow several times overnight to get it cool

for my head.

My hair is thinning badly. No reason, just is...You are not alone...Love, Sue

M

[Guest guest]

hi Sue

Called my Rheumy today. The diarrhea is so bad I'm getting

dehydrated and my left kidney is really bothering me. Am trying to

drink as much water as I can even though I " hate " the stuff. My

left kidney shut down with a kidney stone about 23 years ago and

then had more stones about 12 years ago. That same kidney tells me

when I'm not taking in enough liquids.

But the Rheumy has taken me off the Imuran right now. Nurse told me

if it didn't clear up in a couple of days to call and I would have

to come in before my normal appointment which on the 20th. So am

now only on the 17 1/2 Predisone. Sure hope this does the trick

since I'm really not feeling great at all.

Know many of you have told me including my Rheumy this will be a

trial and error when it comes to the medication. Hate feeling like

crap and when I get home from work I sit there like a damn zombie

don't you know. Hope tomorow I'll be better.

Well just wanted to let you know what's happening here. Am at work

right now so need to get back to it.

Hugs

Sharyn

> Dear Sharyn, I go through spells where I thow up a couple times a

day. Its

> almost projectile vomiting, run like heck to the bathroom or a

sink or

> whatever. Its usually just very milk colored mucus.

> There is also major bouts of diarrhea. I have found if I take an

Imodium at

> night its not so bad in the morning. I have had to clean up a

couple messes

> on my way to the bathroom. Embarrassing to say.

> At night my head is very warm, so is my body. We live in Wisconsin

so its

> cold here and I sleep with the window cracked open and on top of

the covers

> most of the night. I flip my pillow several times overnight to get

it cool

> for my head.

> My hair is thinning badly. No reason, just is...You are not

alone...Love, Sue

> M

[Guest guest]

Sharyn, Please let us know how you are. Gosh it sure seems like we are all

having a bit of problems right now.

I want you to know that you are in my thoughts. Please drink, drink,

drink!!! Lets flush those kidneys out.

Hope to hear from you soon and Please don't wait too long if you don't feel

better. Get your butt to the doctor.

Geez..... you are all giving me ulcers. LOL

hugs