Re: seizure question

[Guest guest]

Hi ,

My daughter is on the diet for support of seizure control. Gut healing will have

it's ups and downs... and there is commonly a " flare up " of symptoms at about 2

months. Could be that what you're seeing is related to that.

Katera has continued to have seizures, though we had some long seizure-free

stretches when she was on SCD before. The first time, she went 10 weeks without

a seizure, then had one.... then went five MONTHs seizure free.

After that, we saw them return with a vengeance... and have had to stop and seek

some other avenues, including meds again, and a VNS.

Every seizure kid is different, so I'm not sure we can really compare. Katera

was having about two or three seizures per month prior to re-staring SCD in

May... about six weeks ago now (about the same time you started?), and have only

seen one seizure (last week)... but it was a real doozy. I'm hoping that's it

for a while.

Patti, mom to Katera, age 9, CP, seizures, dev. delays, micro, etc, etc.

seizure question

I do not see lots of mention of seizures on this list. My daughter has no

OVERT signs of gastro problems but she does have a seizure disorder caused

by a chromosomal abnormality. Nonetheless, we have seen incredible

improvement with the SCD diet. We went from having a long (8-10 minutes)

grand mal seizure daily (along with lost speech and lost motor skills) to

mostly having no seizures.

Question, the last couple of days we have seen some small absent seizures

that are tending to increase. Does anyone know if this might just be a

temporary " flare up " . She has been on the diet for about 45 days now. It

took about 2 weeks for the seizures to go away initially. We have slowly

added to the intro diet. She has been having lots of fruits and vegis

lately. She does the goats milk yogart (when I can find goats milk). No

eggs or cow dairy (I have seen reactions to this).

Any thoughts?

--

Sahr

Abby, 5 year old with seizures, SCD 45 days