Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 Great Ann, We always love to hear good news! You keep up what your doing, because its working! I'm so glad for you. Take care, Love Lu I had an appointment with my pulmonologist at the Cleveland Clinic today. Had a pulmonary test done my breathing has improved. It has almost doubled what it was in September. Of course in September I was having a flare and today I wasn't. But I'll take the good results. Took me off singulair and I don't have to use albuteral until my prednisone is decreased to about 10 mg. Or as needed. I was very happy with my check up today. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 In a message dated 1/16/02 4:34:46 PM Pacific Standard Time, katdavis@... writes: << Before my diagnosis, I had costochondritis - very painful. >> , maybe you can answer a question for me or someone else can. I was dx with costochondritis when I was 22 years old and had it on and off for years. Now the Drs. say it is a RP flare. The pain is the same only worse and constant when I am flaring. Is there any difference between the two? I would think since costochondritis is inflamtion of the ribs, that is would be the same. Have I confused everyone yet. LOL Just wondering if one lead to the other or if I have had RP symptoms all these years and it never blew up into a major flare. whew....wish I could just use a few sentences for my questions and replies. LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 Congratulations Ann on your wonderful news on the PFT. Doesn't it make you feel good to finally hear something possitive. Just continue to get better. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 , Actually the Dr. showed my husband the test results because I can't remember things in detail. Its on my chart to send me the results of my tests. When I get them I'll let you know for sure what was what. I do know that my fev1 was at 1.25 in September and it was 2.25 today. He said for now I definitely don't need a stent. He said when I flare my wind pipe gets inflamed. But when I get the results which will probably be in a month. I'll send you all the particulars. Ann Re: Up date Ann, I'm new to the group but am interested in your improved pulmonary test. Before my diagnosis, I had costochondritis - very painful. Each time I've had a Pulmonary Function Test my FEV1 gets lower and lower, even when there is no active inflammation (as observed during bronchoscopy). I guess I've had the impression that my breathing would not improve. Can you tell me a little bit more about your pulmonary involvement and what measurements/tests are showing improvement? I would love to hold out hope that my breathing could improve before a stent has to be placed in me. Thanks. > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 Ann, I'm new to the group but am interested in your improved pulmonary test. Before my diagnosis, I had costochondritis - very painful. Each time I've had a Pulmonary Function Test my FEV1 gets lower and lower, even when there is no active inflammation (as observed during bronchoscopy). I guess I've had the impression that my breathing would not improve. Can you tell me a little bit more about your pulmonary involvement and what measurements/tests are showing improvement? I would love to hold out hope that my breathing could improve before a stent has to be placed in me. Thanks. Up date > I had an appointment with my pulmonologist at the Cleveland Clinic today. > Had a pulmonary test done my breathing has improved. It has almost doubled > what it was in September. Of course in September I was having a flare and > today I wasn't. But I'll take the good results. Took me off singulair and I > don't have to use albuteral until my prednisone is decreased to about 10 mg. > Or as needed. I was very happy with my check up today. > Ann > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 Ann, I know what you mean about the memory. I used to have my husband take me to all of my appointments so he could remember what was said! He's my angel. My last FEV1 (Mayo in MN) was 21% of predicted. That must equate to 1.21. For some reason I just didn't think there was any chance it could get better. Wow, you've given me hope! Thanks. Re: Up date > > > Ann, > I'm new to the group but am interested in your improved pulmonary test. > Before my diagnosis, I had costochondritis - very painful. Each time I've > had a Pulmonary Function Test my FEV1 gets lower and lower, even when there > is no active inflammation (as observed during bronchoscopy). I guess I've > had the impression that my breathing would not improve. Can you tell me a > little bit more about your pulmonary involvement and what measurements/tests > are showing improvement? I would love to hold out hope that my breathing > could improve before a stent has to be placed in me. Thanks. > > > > > > > > > > > DISCLAIMER!! > > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS > RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR > BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR > PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND > TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 That's great news, Ann! You're headed in the right direction! > I had an appointment with my pulmonologist at the Cleveland Clinic today. > Had a pulmonary test done my breathing has improved. It has almost doubled > what it was in September. Of course in September I was having a flare and > today I wasn't. But I'll take the good results. Took me off singulair and I > don't have to use albuteral until my prednisone is decreased to about 10 mg. > Or as needed. I was very happy with my check up today. > Ann Quote Link to comment Share on other sites More sharing options...
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