Re: getting ready to give up

[Guest guest]

Any thoughts would be appreciated!

---------------

ok

i am going to be a bit more honest than maybe the moderators want.

my primary thought now is why should i help you when plainly you are

not bothered to take account of disssenting views on this board that

the introductory diet is not adequate by itself.

so when i get to this point and given the very loud 'fanatical

adherence' viewpoints i wonder if theres any point to posting here

and basically theres not.

i can cope with a bit of wrong mindedness but what i cannot cope with

is the endless slackness of not reading around, over reliance on

doctors and the constant expectation that somebody else has to front

up the answers in a macdonalds easy to eat way.

i don't agree with the introductory diet or the lack of emphasis on

the use of enzymes (which you can search my previous posts for

recommendations for)

i have taken a lot from scd and would like to see this board do well

but bascially scd has moved on and this board has been left behind

and all i can do is offer to support scd on its new terms which

really without sounding arrogant no-one seems to understand except me

so i will go back to my own board where i can post on my own terms

and cease to post here with its endless futiltity and heart break

and scd will survive because it is where i am and if i survive scd

survives. i hope this doesn't come across as arrogant, its not

intended to be, but a statement of fact and reflection of the years

of real work day and night i have put into this practically and

researching.

my board http://health.groups.yahoo.com/group/who_knows/

" you can vote with the crowds or you can vote with individuals, i

vote with individuals "

>

> Hi all,

>

> My two sons, ASD, have been on SCD for 12 1/2 weeks now.

>

> My older son has shown no benefits, in any way, from SCD. He has

never had digestive issues, so that wasn't what we were looking for.

But, no discernible change in behavior, language, etc. from SCD.

>

> My younger son, who has always had GI issues, has had no behavior

or language impact from SCD. However, his GI issues have gotten

*worse* -- he has always had on-and-off loose stools, but since he

started SCD he has had almost daily loose stools. On Saturday I put

him back on the intro diet, and he has been on it strictly for the

last six days. Aside from one day, when he had a slightly firm stool

(but full of carrot chunks, which you guys advised me about), he has

had yucky greenish-black pudding-like stools, often with some sandy

texture in them.

>

> I've had the doctor do a fecal sample to see if there's a bacterial

or viral thing going on. If that comes back negative, I just don't

know what to do. If the SCD, especially the intro diet, gives him

loose stools, I just don't know where to go with this.

>

> So, bottom line is, it doesn't appear to be working for my family

so far. Any thoughts would be appreciated!

>

> Marina

>

>

>

[Guest guest]

Hi Marina.

It sounds like your son may need some extra liver support in addition

to addressing bacterial and yeast issues (which would also be helped

by liver support in addition to SCD since SCD alone isn't cutting it

for you). Enzymestuff.com has a section that helps explain what

colors and consistencies as well as aromas on stools indicate. For

example, blacks stools can point to various problems (liver issues

being one of them). Green can indicate the presence of bacteria as

well as a few other possibilities. The grit in the stool often

points to yeast or bacteria (either growth or die-off). You should

probably check out their information.

Someone else may be able to help you with legal SCD liver

supplements. I believe milk thistle is legal, but I don't know of

any others. We are currently using a liver support supplement which

we are very pleased with, but since I am uncertain of it's legal

status, I can't post about it. You may contact me off-list or on

Open Blooms for information if you want it.

Anyway, my opinion is that you should test your son's urine and

saliva ph levels (ph strips can be bought at Whole Foods or other

HFS). This will give you some indication of his body's

acidic/alkaline state and whether his liver may need a little extra

boost.

I don't think you should give up on SCD just yet. It could be that

Mimi or Jody can help you figure out how to adjust protein/carb ratio

or the food choices to help your guy. Before you throw in the towel,

stick with SCD, look for sneaky illegals, and investigate the

possibility of needing some liver support.

I am hoping that you find some answers quickly.

Jeni Lynn (gastrointestinal problems)

mom to Margeaux, 6 yr. (ADD, gastrointestinal problems, heavy metal

toxicity)

, 4 yr. (risk for ADD, gastrointestinal problems, heavy metal

toxicity)

Elle, 20 mo. (eczema, leaky gut, heavy metal toxicity)

SCD 6 months

[Guest guest]

I want to thank for all his hard work.

I want to emphasize that

's version of SCD is different from that of Elaine Gottschall

and that of our list. I have been participating on the autism/SCD

lists since they began and have been amazed at how well Elaine's

protocol has worked. This amazing success has also been duplicated

by the DAN doctors and nurses who love SCD

Unfortunately,I am not that familiar with the results from 's

protocol. However,I am interested in having the moderators and

communicate on a small list.

I urge everyone to first try traditional SCD because that has been

so well tested,it has even helped autistic adults in group homes.

However,if you feel that traditional SCD has not worked for you,then

my next recommendation is to try 's protocol rather than to

experiment with a different diet.

I wish the best success.

Mimi

To List Members:

Please do not blame SCD if you follow rules that are different than

those of Elaine. If you complain on another list about your

experience with the diet after making modifications ,then please

make it clear that you were not doing traditionl SCD. If you get

good results with 's protocol,then please email me.

[Guest guest]

There is a certain amount of tailoring that this diet requires as

everyone is built differently. That is not to say to add in

illegals... it is to say that some of us need to start and stay MORE

strict for a long time.

For example: We did not do ANY cooked oil. We also did not do ANY

beans at all for our SCD year. Whenever I tried to add these things

in, we got symptoms that returned. So, if they 'failed' a couple of

tries, they got ousted for the rest of the year.

I would suggest that things are being ingested that may be quite legal

but are not compatible with the child's system.

I missed the carrot chunk post and can't seem to find it. I'm not

sure why carrot chunks would appear in the intro diet unless they were

raw (then you wouldn't be doing the intro. diet though).

It would be easier to give feedback if you could post what he ate and

how it was prepared. Eg: Strawberries seeded and stewed.

Kind regards,

KimS

But, no discernible change in behavior, language, etc. from SCD.

>

> On Saturday I put him back on the intro diet, and he has been on it

strictly for the last six days. Aside from one day, when he had a

slightly firm stool (but full of carrot chunks, which you guys advised

me about), he has had yucky greenish-black pudding-like stools, often

with some sandy texture in them.

>

> Marina

>

>

>

[Guest guest]

Mimi said: To List Members:

Please do not blame SCD if you follow rules that are different than

those of Elaine. If you complain on another list about your

experience with the diet after making modifications ,then please

make it clear that you were not doing traditional SCD. If you get

good results with 's protocol, then please email me.

Dearest SCD pals, I am thrilled that Mimi has taken the time this last week, to

point out so many things that can endanger the success of SCDiet. Not just the

protocol of others...but many other suggestions, that Elaine feared would cause

problems with SCD success.

When we arrived to SCDiet TM, we where made very confused, within a short period

of time, by OT subjects...that where not marked OT at the time. I am glad that

the newcomer now has better clarity than we did. If we had listened to the

" good intentions " of others, I do not doubt for a moment that WE WOULD NOT BE

having the success that we are now having. WE truly may have blamed SCD..when

it wasn't SCD fault at all...it would have been because SCD was changed into

something that simply does not work....taking on the SCD name.

Even after this set back with Kiki and rotavirus, she is going back to herself

faster than in the past...this is thanks only to SCDiet TM...and doing it the

way it was meant to be done. I too wanted a quick fix...and maybe it is this

" wishful thinking " that is throwing those astray, and causing them to not trust

what has worked for over 60 years. WE too have to continue to do research and

to check things out thoroughly because there is much suggestion out there.

Each time I come to one conclusion...SCDIET TM. Thanks to 100% adherence to

SCDiet ...we are truly all seeing a miracle in all of us. I now have realized

that much of what we did prior to SCD...was simply a shameful waste of time, and

wish I could take it back...but I can not. WE now pray that our daughters

damage is not permanent because of this waste of time...and that she too, like

many others before her, can have her autism " cured " by SCDiet.

Sincerely, Antoinette mother to autistic daughter, Kiki and family (celiac,

malabsorption, multiple allergies, leaky gut, add, adhd, asd deliriums,

seizures, and hyperekplexia) SCD 2/06

Re: getting ready to give up

I want to thank for all his hard work.

I want to emphasize that

's version of SCD is different from that of Elaine Gottschall

and that of our list. I have been participating on the autism/SCD

lists since they began and have been amazed at how well Elaine's

protocol has worked. This amazing success has also been duplicated

by the DAN doctors and nurses who love SCD

Unfortunately,I am not that familiar with the results from 's

protocol. However,I am interested in having the moderators and

communicate on a small list.

I urge everyone to first try traditional SCD because that has been

so well tested,it has even helped autistic adults in group homes.

However,if you feel that traditional SCD has not worked for you,then

my next recommendation is to try 's protocol rather than to

experiment with a different diet.

I wish the best success.

Mimi

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

>

and

http://www.pecanbread.com<http://www.pecanbread.com/>