RE: New to board with 2 CF kids

[Guest guest]

WELCOME. You have a wonderful doc there too. !! Give me your address & I

will send you some info that will also bolster your info for you to pass

on. It will be helpful to you with your wee ones as they progress. Bless

you for wanted to help others ..

(there is no charge)

LOVE & HUGS, GrandmomBEV

New to board with 2 CF kids

Hello, my name is Joannie . I have two children with CF. My

son, will turn two on July 6 and my daughter, Rhaelee is seven

weeks old. I wanted to get involved because I am wanting to be able

to talk to other parents that are going through some of the emotions,

experiences and similar situations that I am. There is not a support

group where I live. We live in the Texas Panhandle and we see our CF

doctor in Oklahoma City, OK.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Welcome to CF parents. I'm sure you will find the support and information

you need on this list. Have a terrific day! Kathy G. (daughter age

9 w / CF, age 6 no CF)

New to board with 2 CF kids

> Hello, my name is Joannie . I have two children with CF. My

> son, will turn two on July 6 and my daughter, Rhaelee is seven

> weeks old. I wanted to get involved because I am wanting to be able

> to talk to other parents that are going through some of the emotions,

> experiences and similar situations that I am. There is not a support

> group where I live. We live in the Texas Panhandle and we see our CF

> doctor in Oklahoma City, OK.

>

>

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

Welcome Joannie,

My daughter is four & a half with CF. This is a great place to come and ask

questions and get support. It's also a great place to help out other parents.

Mom of , 4 & 1/2 with CF

Come visit our site at http://groups.msn.com/TeamJane

New to board with 2 CF kids

Hello, my name is Joannie . I have two children with CF. My

son, will turn two on July 6 and my daughter, Rhaelee is seven

weeks old. I wanted to get involved because I am wanting to be able

to talk to other parents that are going through some of the emotions,

experiences and similar situations that I am. There is not a support

group where I live. We live in the Texas Panhandle and we see our CF

doctor in Oklahoma City, OK.

[Guest guest]

Welcome to the list fellow Texan. :-) How are both of your children doing

right now? I have four kids 7, 6, 4, and Pattimae 2 wcf.

We live in Graham which is about an hour south of Wichita Falls. The clinic

Patti goes to is at Cook Children's in Ft. Worth.

Dawn mom of 4, 7 and under, the youngest wcf

New to board with 2 CF kids

Hello, my name is Joannie . I have two children with CF. My

son, will turn two on July 6 and my daughter, Rhaelee is seven

weeks old. I wanted to get involved because I am wanting to be able

to talk to other parents that are going through some of the emotions,

experiences and similar situations that I am. There is not a support

group where I live. We live in the Texas Panhandle and we see our CF

doctor in Oklahoma City, OK.

[Guest guest]

Welcome. I'm glad that you joined the group. Two little ones are a

lot of work and worry. I have an 18 month old grand daughter with

CF. She has a PFT today. She really gets upset when she has to go

to the clinic. She starts fussing the minute a nurse or doctor

enters the room. I am hoping that it will get easier when she is

older and can understand what is happening. Babies are SO precious

and we are SO lucky to have them.

Happy Birthday to ! What will you do to celebrate? Does he

eat cake or ice cream?

Gale

> Hello, my name is Joannie . I have two children with CF. My

> son, will turn two on July 6 and my daughter, Rhaelee is

seven

> weeks old. I wanted to get involved because I am wanting to be

able

> to talk to other parents that are going through some of the

emotions,

> experiences and similar situations that I am. There is not a

support

> group where I live. We live in the Texas Panhandle and we see our

CF

> doctor in Oklahoma City, OK.

[Guest guest]

Welcome Joannie,

I'm from Orange County CA, I have 2 " kids " , Nick is 21 w/o cf and

is 19 wcf. Nice to meet you, when you get a chance write more about

your kids. is doing well and she's in college. She was diagnosed at 8

months, and she hasn't been in the hosp for over 3 years now. Take care!

love,

M

[Guest guest]

welcome to the group joannie this group is gteat they all really and trully

care about everyone and everything they are going threw so welcome and hope

to talk with you soon michelle mom of caitlin8wo/cf erin 7 wo/cf

moira 3 wo/cf anna 18 monthsw/cf

Re: New to board with 2 CF kids

> Welcome. I'm glad that you joined the group. Two little ones are a

> lot of work and worry. I have an 18 month old grand daughter with

> CF. She has a PFT today. She really gets upset when she has to go

> to the clinic. She starts fussing the minute a nurse or doctor

> enters the room. I am hoping that it will get easier when she is

> older and can understand what is happening. Babies are SO precious

> and we are SO lucky to have them.

>

> Happy Birthday to ! What will you do to celebrate? Does he

> eat cake or ice cream?

>

> Gale

>

>

> > Hello, my name is Joannie . I have two children with CF. My

> > son, will turn two on July 6 and my daughter, Rhaelee is

> seven

> > weeks old. I wanted to get involved because I am wanting to be

> able

> > to talk to other parents that are going through some of the

> emotions,

> > experiences and similar situations that I am. There is not a

> support

> > group where I live. We live in the Texas Panhandle and we see our

> CF

> > doctor in Oklahoma City, OK.

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

Welcome, Joanie--this is one sturdy ship, great crew and interesting

passengers! Our problem is that we think we know where wer are go

ing, and then things change--just like that! New meds! New foods!

New guidelines! and New doctors and centers, too. The conversation

is pretty amazng, never boring, and even informative, to say nothing of

humor. Thank you for joining us. No one here is pleased to hear of new

cf diagnoses, but if that is your lot, this is the best place in cyberspace

to be! And the list keeps getting better and better as people like you

and yours joing us!

Love to you all,

n Rojas, wcf, cfrd, mom of 3 excessively adult adults, youngest

wcf, too--I live one block out of Berkeley, California, in Oakland, 2.5

miles from the CAL (UCB) campus

[Guest guest]

Welcome...there is no support groups here on Long Island, NY - I think people

are afraid to hear about other kids that are older; I know I was. I met a

woman a few years ago whose daughter was 10 and on a transplant list. It blew

my mind. She was on same meds as my daughter, did same activities - even went

to School. Its scary but good because we know what to look for before it gets

to far untreated.

Rosemary in NY with 3 children (12, 10 and 6)

with CF. I have a dog named TOBI and

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Welcome Joannie,

You will love it here. I found this site not long after my son was

diagnosed with CF at 3 weeks old. IT's wonderful. You will find such

valuable information/advice here.

Hope your two children are healthy.

Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 2 yrs. wocf, 17

mos. wcf

New to board with 2 CF kids

Hello, my name is Joannie . I have two children with CF. My

son, will turn two on July 6 and my daughter, Rhaelee is seven

weeks old. I wanted to get involved because I am wanting to be able

to talk to other parents that are going through some of the emotions,

experiences and similar situations that I am. There is not a support

group where I live. We live in the Texas Panhandle and we see our CF

doctor in Oklahoma City, OK.

[Guest guest]

In a message dated 6/30/2003 3:21:03 AM Central Daylight Time,

joannie1011@... writes:

> Joannie

I am a mom of three daughters and two of them have CF too. You will love this

group it is a great support group and if there is any questions you need

answered there is always some here to help you. We were just in Texas we got

back

last night we took the girls to Sea World and we also went to Galveston so the

girls could put there feet in the ocean. It's a beautiful state just really

really hot right now!!! Deb A