Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 My daughter was on 6mp for a while and you just have to keep up with the bloodwork to monitor your numbers. It wasn't an effective drug for her, but I have a friend that has been on it for years and it keeps him healthy. I'm not sure if my daughter has Crohn's or colitis, but she has a diseased colon and is affected by whatever food is put into her mouth. She has been on every drug, nothing helps. DEBBIE New on SCD > > I'm a " newbie " on the SCD diet and I'm having a tough time with it. Is > it hard for everybody starting out or just because I'm weak willed? I'm > willing to try ANYTHING that means I can take a proactive approach on > something I can control and hopefully manage my illness, and I'm hoping > I won't have to be on tons of meds. The thought of never eating another > grain, no sugars, and no liquid milk is a hard idea for me to grasp, > this coming in light of the fact that I thought once I had pull-through > J-pouch surgery 10 years ago to cure what they thought was u.c., now > turns out to be Crohn's in the small intestine and the pouch. The > doctor just put me on 6-mercaptopurine and I'm scared about it. So much > to try to handle in just a week's time...I keep thinking about the very > dark place I was in when I had severe non-medically responsive u.c. and > I'm dreading going back there now with Crohn's. > > I saw Dora's post about feeling crummy shortly into the diet, and I'm > feeling much the same way--crampy, nauseated, etc....almost like a > blockage is coming on. Has anybody else out there experienced this? > I'm very scared and feel very alone; I can't really talk to too many > people in my life about these things because nobody's been through > similar situations so I'm hoping all of you can please give me some > advice about how to best try to do the SCD diet. Is it hard not to > " cheat " ? I know before beginning the SCD diet, I would just grab > whatever because I was hungry and it was available; it's a hard new > discipline to truly start watching what I eat. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 If you're brand new to the ideas behind SCD, it will take a while to wrap your mind around it. After a while, you will look at any food with added sugar, or starchy grains, as if they were marked with a big skull and crossbones! You'll automatically recoil at the sight of them! Right now, consider yourself a sugar and starch junkie. The best way to thwart your " urge to cheat " at this point is to CLEAN OUT THE PANTRY AND FRIDGE.... get rid of ALL illegals. If they aren't around, you won't be tempted. I know that's hard if you have other family members in the house that aren't SCD.... but it would be the best way for them to support you. Maybe they could keep their illegal treats in a certain cupboard that was out of your direct grabbing range? There are wonderful SCD " treats " you can make from some of the recipes. The trick is to do some batch cooking, so you always have some of these at hand.... quick and easy to grab when you're hungry and craving. There is one particular recipe in Lucy's cookbook.... which is (I think) called something like " quick granola cookies " ... or??? Someone borrowed my copy of the cookbook and didn't give it back!! ARGH! Anyway, I am a recovering chocoholic... and these cookies TRULY do it for me, even though there is NO chocolate in them. They aren't for brand new beginners, but for anyone who has this cookbook around.... if you haven't tried that recipe yet, you will LOVE them. (And... somebody... PLEASE post the recipe for me.... will ya??) The cravings WILL go away.... give it a couple of weeks. Have faith in SCD.... it works! Patti New on SCD I'm a " newbie " on the SCD diet and I'm having a tough time with it. Is it hard for everybody starting out or just because I'm weak willed? I'm willing to try ANYTHING that means I can take a proactive approach on something I can control and hopefully manage my illness, and I'm hoping I won't have to be on tons of meds. The thought of never eating another grain, no sugars, and no liquid milk is a hard idea for me to grasp, this coming in light of the fact that I thought once I had pull-through J-pouch surgery 10 years ago to cure what they thought was u.c., now turns out to be Crohn's in the small intestine and the pouch. The doctor just put me on 6-mercaptopurine and I'm scared about it. So much to try to handle in just a week's time...I keep thinking about the very dark place I was in when I had severe non-medically responsive u.c. and I'm dreading going back there now with Crohn's. I saw Dora's post about feeling crummy shortly into the diet, and I'm feeling much the same way--crampy, nauseated, etc....almost like a blockage is coming on. Has anybody else out there experienced this? I'm very scared and feel very alone; I can't really talk to too many people in my life about these things because nobody's been through similar situations so I'm hoping all of you can please give me some advice about how to best try to do the SCD diet. Is it hard not to " cheat " ? I know before beginning the SCD diet, I would just grab whatever because I was hungry and it was available; it's a hard new discipline to truly start watching what I eat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 First, the good news. I've been on SCD for less than 2 weeks and am feeling much better! I allready feel less tired - and as a result less frustrated and more motivated. Second, when I started, I was in the middle of a flare up. I cannot definatively say whether my symptoms were due to Crohn's or die-off. Third, my GI doc started me on Pentasa at almost the same time I started SCD. All that being said, I was very tempted to just eat whatever. Especially since I was so tired and so depressed. I have a tendency to be an emotional eater - I am also a shameless (recovering) chocaholic. I don't know anyone who has been through this either. Crohn's was just another disease that I skimmed over in nursing school, remembered enough to pass the test, and never thought about it again. That is untill I wound up in the hospital with severe abdominal pain. When my doc said " Crohn's " I was devistated. All I could remember from school was that it was bad and there was no cure. The pain I experienced and the fear of future flare ups and complications (especially surgery) were great motivators to keep me on the straight and narrow. I found that the best way to stick with it is to take a day and cook. As a nurse I work 2 days on 2 days off etc. So on one of my days off I make enough food - this last time pot roast and meatloaf - for the next couple of days so that it is at hand and I dont resort to my old cooking habits. Each time I make things to keep in the freezer for future recipes - chicken broth, tomato sauce, etc. My husband has also been supportive. He's not willing to go total SCD, but he is willing to try the SCD recipes (and even pretends to be excited about it LOL). I'm pondering the idea of getting my kids on SCD, but my husband hasn't been too receptive to the idea. One step at a time. The best I can tell you is that every time you put something in your mouth, you make the dicision to be SCD or not. I just keep hoping, like you, that I can keep making the choice to stay compliant. If you need someone who is walking in the same shoes, contact me off serve. dmullenrn@... Dora Crohn's SCD 12 days yvonnes_kids_labs wrote: I saw Dora's post about feeling crummy shortly into the diet, and I'm feeling much the same way--crampy, nauseated, etc....almost like a blockage is coming on. Has anybody else out there experienced this? I'm very scared and feel very alone; I can't really talk to too many people in my life about these things because nobody's been through similar situations so I'm hoping all of you can please give me some advice about how to best try to do the SCD diet. Is it hard not to " cheat " ? I know before beginning the SCD diet, I would just grab whatever because I was hungry and it was available; it's a hard new discipline to truly start watching what I eat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hang in there Yvonne! You're not weak willed - it's those bad gut bugs screaming out to be fed what they're used to - carbs and sugar. I'm in my 3rd week of dairy-free SCD and still having some cravings for stuff (chocolate and ice cream being the worst), BUT the cravings aren't as intense as they were. When you feel an intense craving coming on, try to busy yourself with something you find interesting. Or visit the BTVC site to reinforce why you are doing the diet. Think about what factor(s) have brought you to SCD - regaining your health and taking control of illness. You are definitely not alone - there are many helpful people on this listserve who have been where you are now. Lots of Newbies are just starting their SCD journies and feeling crappy and weak willed. You can do it! Kim 3+ weeks whole family dairy-free SCD 3 yo ASD, 2 yo NT New on SCD I'm a " newbie " on the SCD diet and I'm having a tough time with it. Is it hard for everybody starting out or just because I'm weak willed? I'm willing to try ANYTHING that means I can take a proactive approach on something I can control and hopefully manage my illness, and I'm hoping I won't have to be on tons of meds. The thought of never eating another grain, no sugars, and no liquid milk is a hard idea for me to grasp, this coming in light of the fact that I thought once I had pull-through J-pouch surgery 10 years ago to cure what they thought was u.c., now turns out to be Crohn's in the small intestine and the pouch. The doctor just put me on 6-mercaptopurine and I'm scared about it. So much to try to handle in just a week's time...I keep thinking about the very dark place I was in when I had severe non-medically responsive u.c. and I'm dreading going back there now with Crohn's. I saw Dora's post about feeling crummy shortly into the diet, and I'm feeling much the same way--crampy, nauseated, etc....almost like a blockage is coming on. Has anybody else out there experienced this? I'm very scared and feel very alone; I can't really talk to too many people in my life about these things because nobody's been through similar situations so I'm hoping all of you can please give me some advice about how to best try to do the SCD diet. Is it hard not to " cheat " ? I know before beginning the SCD diet, I would just grab whatever because I was hungry and it was available; it's a hard new discipline to truly start watching what I eat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Yvonnes said: I saw Dora's post about feeling crummy shortly into the diet, and I'm feeling much the same way--crampy, nauseated, etc....almost like a blockage is coming on. Has anybody else out there experienced this? I'm very scared and feel very alone; I can't really talk to too many people in my life about these things because nobody's been through similar situations so I'm hoping all of you can please give me some advice about how to best try to do the SCD diet. Is it hard not to " cheat " ? Dear Yvonnes, Oh honey you are not alone! Everyone has a tough time in the beginning of SCD. I felt so sick! In everyway! You are not only detoxing from the " die off " , you are also going through withdrawal, which causes unusual cravings for the very foods that are forbidden on SCD. You see thanks to leaky gut, many have an opiate reaction to dairy and grain when the large undigested molecules of casein and gluten seep through the gaps of the injured intestine undigested! This opiod reaction takes place in the brains of us who have damaged guts! No wonder why we crave these foods! For me it was not much different that when I stopped drinking. I am a recovered alcoholic, 6 years out! LOL! Very similar indeed for me, this transition with SCD! Thankfully if you are motivated BY PAIN, you will probably not CHEAT. LOL! This transition is not going to be fun. Remember that " this to shall pass " ....get some activated charcoal capsules when you feel toxic. Take one hour before and one hour after meals. For the withdrawl, try to pray for God to take it away, and eat something good that you can now tolerate that is SCD legal. The yogurt is made safe (denatured casein), so make yourself a bowl of SCD ice cream! Then take a long warm soak in the bath tub with Epson Salts....cry a little in relief...and a little in self pity! LOL!........you are now on the right road and will heal now! Read the testimonies of others to give yourself HOPE! God Bless you in the beginning of this journey. If you need a friend we can talk more off serve. Going on four months SCD, no doubt I am certainly on the right path. I feel better now than I ever have in my life! I have my rough days though! Takes time to heal from years of damage. HUGS! Antoinette (advanced celiac and damaged intestines, SCD 2/06) Quote Link to comment Share on other sites More sharing options...
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