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My son Zach gets monthly synagis shots to prevent RSV for the last

two winters. These shots are designed for babies only, but if your

baby is having lung problems it might be worth asking your doctor

about.

Sara - mommy to Zach 18 months wcf

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  • 2 weeks later...

MY grand daughter took shots during flu season to reduce the odds of

her catching RSV. She took one shot a month for seven months. They

were expensive, $3,000 per shot.

Gale

> RSV is at it's worse pnuemonia as the broncial tubes swell .It is a

Very Bad

> Nasty cold at the least.Rhinal synctial virus (sp?) .Rebekah had it

as did 2

> of my other (healthy kids it made them turn blue around their lips

and fight to

> breath of course it happened during a blizzard) with Rebekah she

had scarring

> of her airways and it took her 3 years not to be a wheezy baby it

was nasty.

> I believe they have shots called synagis for preemies .Look in the

archives

> for RSV the posts were older I'm not sure if we were at Yahoo back

then but some

> of those files before we came here are in the archives.BeckyB.-Mama

to

> 8-2w/cf and Nana to 2

>

>

>

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managed to get through her first winter with out getting RSV and her

second winter she got the synagis shots monthlyf rom October thru April.

Re: RSV

MY grand daughter took shots during flu season to reduce the odds of

her catching RSV. She took one shot a month for seven months. They

were expensive, $3,000 per shot.

Gale

> RSV is at it's worse pnuemonia as the broncial tubes swell .It is a

Very Bad

> Nasty cold at the least.Rhinal synctial virus (sp?) .Rebekah had it

as did 2

> of my other (healthy kids it made them turn blue around their lips

and fight to

> breath of course it happened during a blizzard) with Rebekah she

had scarring

> of her airways and it took her 3 years not to be a wheezy baby it

was nasty.

> I believe they have shots called synagis for preemies .Look in the

archives

> for RSV the posts were older I'm not sure if we were at Yahoo back

then but some

> of those files before we came here are in the archives.BeckyB.-Mama

to

> 8-2w/cf and Nana to 2

>

>

>

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RSV is a bad resp. virus that is normally only risky to preemies and

some newborns. It typically causes bad colds in older kids. It was

while had RSV that he was diagnosed.

In some kids with CF, it is really bad news, but really when they are

younger USUALLY. Mallory was about 13 and 15 months when she had her

severe bouts with RSV. The second time she ended up in PICU in resp.

failure. Thefirst time,s he was hospitalized for almost 3 weeks, had

to be bronched to get off o2, then ultimately caught rotavirus from

the hospital (came home with it apparently, as the symptoms developed

like 2 hours after she got home. During that bronch, she cultured

Maltophilia, but not sure if she also cultured pseudo at that point or

not, to be honest. For us, RSV was a nightmare. AFter that, till she

was almost 4, she got synagis every year during synagis season here.

(I think usually oct til april, here...but sometimes it changes and

they change the schedule...) Synagis is supposed to prevent, or make

it milder at least. AFter synagis, she did not get it again,

thankfully.....synagis shots have to be given monthly, and in the

older kids it is two or more shots each month, though, and VERY costly

so your insurance co. m ight fight you. we finally stopped right

before she was 4. ph also got synagis for his first 2 years of

life, through that second season, too.

I hope this hslps some. WE blame the two bouts with RSV for many of

mallory's problems. why else would she be so much sicker than the boys?

Anyway, I do suspect that if they got it now, even Mallory, it would

not cause quite as m any probs.

take care,

Jen

Mommy of 7 ages 4-11, 3 with CF, one with JD

> Can anyone tell me what RSV is. Abd what are the symptoms? It is going

> around our state at the moment. Eilish and Liam are both not well this

> weekend, although I think Eilish is faking it. We have just had heaps

> of hail, which our gardens look white, so we went outside to take a

> photo. The kids think it's snow, having never seen snow before. I hope

> it stops as I am due to drive into town for dinner tonight while

> baby sits the kids.

>

> (Australia)

>

>

>

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