new to scd- help with autistic 5 yr old please.

[Guest guest]

Hi-

I'm so bummed...I just spent close to 25 minutes typing...sent

it..looked in my email and saw no post. Here I go again!!I may trim

it up this time to save my sanity.

I have a 5 yr old with autism. Minimal functional language. Limited

receptive language. Very very picky. Picky isn't a strong enough

work actually. He's got major sensory issues too.

Ok- Joey has is 5 now. Diagnosed at 2 with regressive autism.He's

has loose mushy stools sense forever. Yeast /bacterial overgrowth

sense forever. He's usually pooping these yucky poops 4-6 times a

day!

Started GFCF at 2.6 years old. Helped a bit with gut initially- alot

behaviorally. But it plateaued.......and we slid backwards after 4

months or so. Been trying th " heal the gut " unsuccessfully ever

sense.

Before we started scd 6 days ago Joey ate:

nutbutter( all kinds-peanut,almond,sunflower,cashew,macadamia ) and

fruit preserve sandwiches on rice bread (staple)

pancake,rice flour muffin, chips,fries rice cakes - see a trend!

Raw fruit- loved grapes and bananas. apples,pears,raisens

occasional chicken nuggets

Loved ANDI bars. ( Special Diets for Special Kids ) made

these rice protein bars that he loved. ( consistency of a power bar

kinda.

Thats' about it. Occasional applesauce. mostly a water drinker.

Ok since SCD.......we're hitting a big wall with expansion of diet.

He's so picky. I can't beg or bargain with him to even get him to

try a new food that isn't visually appealing to him. Let alone eat

one.

Here's our week so far:

DAY 1:

he ate 1 yellow banana

tried one bite of chicken pancake.....spit out.

ran from mini hamburger patty. ( I also offered egg- I won't write

egg on each day....but I offer daily- just trying to shorten.)

Drank lots of water. Gave charcoal and mag. citrate.

No poops today.

Went to bed early. Up throwing up at midnight through 7 am.

Day 2:

Fever all day.

Drank dilluted juice. Drank water on and off all day.

Finally ate small amount of cooked pear puree..had 2 epsom slat

baths.

Had a big nasty runny black poop late in day. Ate 2 tasty herb

crackers before bed.

Day 3:

Woke asking for juice. Drank . Asked for more. Drank and threw it

up. Sofa bound all day. 2 naps today. No food really. Drank on and

off all day.

finally small amount of pear sauce with chamomile capsule /melatonin

and charcoal late in day.

epsom salt bath. No poops.

Day 4:

d him out of bed. no energy. drank water on and off.

offered hamburger,egg,and crackers.joey refused.

later found a JIF simply jar. Got 2 fistfuls before I could stop him.

Later ate raw apple. Gobbled down.

Some pear sauce with chamomile and melatonin. One spotted banana. He

was thrilled to get this.

Had a big nasty poop- black and runny late in day.

Day 5

Drank 3 glasses of juice..he got into it.

Ate banana/almond flour pancakes this morning. liked them.

2 bananas

small smounts of pear sauce

5 eggless Peanut Butter( used cashew) cookies.

Offered the usual......chicken soup, broth, veggies, egg.....refused.

Chewed up and spit out 4 chicken pancakes...getting more mad with

each. He thought they were the banana pancakes.

No poops today. Very cranky/aggressive today.

Day6:

Woke early at 4 despite going to bed at 8:45 night before ( late for

him).

Big runny black poop.Second black poop a little later.

Ate

1 spotty banana

8 eggless pb cookies

tried and violently spit out puree squash. I tried it too..yuck!

made and offered carrot( with 1/4 cup broth) sneaky veggie

pancakes.refused.

Ate 1/2 jar sunflower butter..must have found in the back of

fridge.it was old.

Day 7

big black runny gritty poop this morning.

Ate a bunch of the banana pancakes

Ate the leftovers alittle later.

1 yellow banana

ate about 10 chicken nuggets for dinner.fried in fry daddy

fryer...salted of course.

He's always hungry. I'm so disappointed because I know this has to

work......his gut is a wreck ......

PLease help.

He's got some major issues and very limited language to cope with

this. Sensory issues are big here.

Please help.

Sorry to babble.....and if this is a double post.I'm sorry.

I'm so eager to get as much feedback as ya'll can give me!!!

Thanks.

. Mom to Joey asd scd 7 days now.

[Guest guest]

,

I am fairly new to SCD, so I don't have tons of advice for you, but wanted to

offer what little I can, and also to just lend some support.. what a tough

situation.. My daughter is gut wise a bit different.. she will eat just about

anything I put in front of her, but her gut won't tolerate much.. so we are

struggling as well.

you might consider trying to start SCD a little differently, that is, get

him eating the legal foods only.... I would highly suggest getting ALL illegal

out of the house or literally locked up so there is no way her can even get to

illegal.. and you don't have to " lie " about them.. you can say sorry, we just

don't have any more of ...... but then make legal foods that most closely mimics

the foods he likes... make and get him eating SCD legal breads, you can make a

bar that are like Lara bars.. almonds, dates, cherry or apples dried fruits. I

haven't made them but I think you could. Then he has a bar to replace his

bar.... legal SCD muffins to replace his muffins, etc. Get the idea? You can

also do countdowns... tell him in 4 days we are going to be all done with (

rice bread) and we will try a new bread, or even less stress for him,

introduce the new bread and still have the old, then serve less and less of the

old bread and encourage him to eat the new bread, then do a countdown. Just

ideas. I hope you find some solutions soon... I know it can be very stressful.

Ellen

Emma 2 1/2 eosinophilic colitis SCD 15 days