Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 , thank you for your openness/honesty about your feelings. I knew early on that had tort/plagio and I really tried to do the neck exercises. Repo was slow at first bc he had severe reflux. We couldn't put him on his tummy w/o the pressure making him regurgitate (sp?). He would scream in pain so I would be forced to keep him upright either by holding him or having him in a swing/bouncy seat. Since he couldn't turn his head, of course it got really flat. But, I have felt horrible guilty about letting that happen. I am a SAHM, so I thought if anyone, I should have plenty of time to hold him/keep him off his head. But, with a two year old, I couldn't hold the baby all day or even as much as I wanted to. was not neglected, but unfortunately the combo of acid reflux and torticollis was a bad one. I do often wonder if people think I neglected him and that's why he has plagio. Guess we can't control what other's think. And at least the helmet's working! Good to hear from you! ~ *8mo*tort resolved*lft plagio*STARband 4 weeks Conner *2 years Eastern NC > > > > Am I doing the right thing? My son was diagnosed with tort & > > plagio at his 2mo well visit. His ped gave us instructions for the > > tort and that was fairly easily resolved at home over the next two > > months. By then he had moderate plagio and we did repositioning for > > the following two months. The plagio worsened and 's forehead > > started bulging out on one side, and his eyes and ears grew out of > > alignment. His ped prescribed a helmet at his 6mo well visit and a > > month later he started wearing a STARband. He's had it for four > > weeks and we've already seen improvement. It is exciting to see the > > difference and the helmet no longer bothers him at all. It's like > > it's not even there. That being said, I'm starting to have second > > thoughts about this whole helmet thing. It occurred to me that > > before I had my own children I worked in child care centers for 2.5 > > years and taught 1st and 2nd grade for 5 years. In the entire time I > > was working with these young children I never noticed anyone's head > > being misshapen. Maybe I'm just not that observant, but never in 7.5 > > years did I think, " Why is his/her head flat? " Until was > > diagnosed, I had never heard of plagio or babies wearing orthotic > > helmets. So, my question is, what if the doctors that are > > saying, " It will round out on it's own. " are right? If it takes a > > helmet to correct plagio, why were all those kid's heads that I > > taught `just fine'? Are there any studies/formal research about > > helmet therapy vs. no treatment? How do we know this is the way to > > go? > > > > Langston > > * 8mo * tort resolved * left plagio * STARband four weeks > > Conner * 2yrs * never banded * Charlie Brown head (except with hair) > > > Quote Link to comment Share on other sites More sharing options...
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