Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 I read yesterday in a CF Newsletter from England (I think) I will look it up later that I get via regular slow mail (smail). It said that trials for Tobi via IV have shown that 1 large dose is as effective as the 3 times a day!!!!!!!!!!!!!!!!! I was so excited. Did anyone else read that? Rosemary in NY with 3 children (13, 10.6 and 6.6) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Dear rosemary , I just asked & if the large dose was about 500mil. Then that is true. It of course what the final objective is (yes, we know to cure) but also the infection, Is it great, just started , or routine. There are separate circumstances. But in general,----------YES. Right .. That might be something, if you have the article /get it off internet , whatever, take it in to clinic. MAYBE , your kiddo's can be adjusted. even just for a period to check. Your own clinical trial :) Hope so, Still have the light on for you sweet mommy:) LOVE & HUGS, grandmomBEV Tobi IV trials I read yesterday in a CF Newsletter from England (I think) I will look it up later that I get via regular slow mail (smail). It said that trials for Tobi via IV have shown that 1 large dose is as effective as the 3 times a day!!!!!!!!!!!!!!!!! I was so excited. Did anyone else read that? Rosemary in NY with 3 children (13, 10.6 and 6.6) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Yes - that is what I read and interpreted as well. M Tobi IV trials > I read yesterday in a CF Newsletter from England ... that trials for Tobi > via IV have shown that 1 large dose is as effective as the 3 times a > day!!!!!!!!!!!!!!!!! I was so excited. Did anyone else read that? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Rosemary, I did not read that however, this time when my son was hospitalized he was given one large dose one time a day in the am rather than 4 smaller doses every 8 hours. I did not notice a quicker change in cough and congestion verses previous method but it was definately easier on his stomach. Ashauna mom to Colgan 7 months wcf and Maxwel almost 5 with the idea that he is going to get a motorcycle for his birthday. The kid won't even ride a peddle bike without training wheels. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2003 Report Share Posted September 8, 2003 Hello, this is the first time I am posting. This is a great resource, thanks for all the info! The past two times my son was on i.v.s (Oct 02 and Aug 03) we did just one dose of Tobi i.v. at home. The doctor did say it was found to be just as effective. The dose was triple but still only took 30 minutes to administer. , mom to 6yo wcf and Leanne 21 mos no cf (adopted) > I read yesterday in a CF Newsletter from England (I think) I will look it up > later that I get via regular slow mail (smail). It said that trials for Tobi > via IV have shown that 1 large dose is as effective as the 3 times a > day!!!!!!!!!!!!!!!!! I was so excited. Did anyone else read that? > > > > > Rosemary in NY with 3 children (13, 10.6 and 6.6) > with CF. I have a dog named TOBI and have > coined the phrase " BREATHE DAMMIT " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 , Welcome. I'm glad that you joined us. How's doing? Well, I hope. Gale > > I read yesterday in a CF Newsletter from England (I think) I will > look it up > > later that I get via regular slow mail (smail). It said that > trials for Tobi > > via IV have shown that 1 large dose is as effective as the 3 times > a > > day!!!!!!!!!!!!!!!!! I was so excited. Did anyone else read that? > > > > > > > > > > Rosemary in NY with 3 children (13, 10.6 and 6.6) > > with CF. I have a dog named TOBI and have > > coined the phrase " BREATHE DAMMIT " > > > > > > Quote Link to comment Share on other sites More sharing options...
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