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CF Experience

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Hello everyone,

If anyone is going to a clinic in the St Louis area, the St Louis

Children's Hospital is sponsoring a day for parents to experience

what their kids go through in a typical day.

On October 25th at the ST Louis Zoo, parents can do pft tests,

airway clearance, taste formulas and supplements, and talk to

nutritionists and pharmacists. There are no kids allowed, only

parents. This sounds very interesting to me.

If you want more info, please let me know.

Sara- mommy to Zach 19 months wcf

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