Re: Ute

[Guest guest]

Hello ;

No I don't see Dr. Buckner. I have a great Dr. here in Tacoma.

Maybe we will meet some day.

Re: Ute

Hello Ute,

Just wanted to say that we are neighbors! I live in South Seattle.

Do you see Dr. Buckner? Maybe we'll meet sometime. Take care!

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Heidi ,than you so much for taking care of sending out all the get well

gifts. People don't realize what a job it is.

To any of the new members in the group, I'll let you know what this is since

Heidi won't tell. LOL

When someone is in the hospital or really sick, the group usually sends a

little gift. We use to send flowers but it got to expensive. We do send

flowers to funerals.

This comes out of pockets. This is totally separate from the Foundation.

this is strictly the support group. If you ever feel the need and want to

support this, you may send a donation to the Flower/Gift fund to or

Heidi. They always put a smile on our faces. Just thought I'd let you know

who the angels are the do this for this wonderfu group. They always sign the

card from all of us.

Woods

2804 Arrington Drive NE

Roanoke, VA 24012

Heidi Main

19609 E. 131st Pl. S

Broken Arrow, OK 74014

Please mark your checks " Flower Fund " and either make them out to or

Heidi. This is not tax deductable. This is just from the goodness of our

hearts.

[Guest guest]

Heidi, I will get a card off to Ute today.

[Guest guest]

I also sending her a get well gift from this group tomorrow. I thank you all and please keep her in your prayers.

how much do we owe you?

Lu

[Guest guest]

Heidi,

Ute and her family will be in my Prayers. I am so sorry to hear about this. May God Bless them and this group.

Sharon

[Guest guest]

In a message dated 3/27/02 11:17:48 AM Pacific Standard Time,

biglou5685@... writes:

<< I will be praying for Ute and her family.

This breaks my heart. We have to find a way to stop this damn disease.

Sandy

>>

Sandy, I'm with you. I don't want any more names added to our web site of

those we have lost. I think today there will be a lot of tears shed.

hugs

[Guest guest]

Heidi,

I will pray for Ute and her family ALL DAY. Thanks for sharing this difficult news.

Kathleen (Tx)

Ute

Hallo Everyone !!!

I thought I give you the latest news about

UTE even true it is very sad news. May I ask

a favor from each of you please? Cloud we all say a very special prayer at 6 pm west 8 pm

central, 9 pm east time please for Ute and her loving Family.That god will guide Ron and Ute

in a very hard decision the are having to make at this time. I am so sad to have to tell you all this but Ute can not get off the Life support system after all.Her lower part of her lungs are gone and even true the could try putting in a metal stint it would not help the lower part of the lungs. Yes Ron and Ute's Drs. have called all over the world the last 2 days to find a way of helping her. But sadly it just was to late. Ute is ready to go home to the Lord. Her Family what are here from Germany saying there good bys to her. Ron and Ute 2 sons are the ones that now face the final decision. Please God give them the strength and

Guiding the need in the most difficulty time of there life here on earth. Also Dear God give this group here the strength and wisdom and

courage to never give up. That each of us keep fighting this sickness called RP. I thank you dear lord.

Please everyone I am asking you all do NOT give up I know how scary it is at times but we

need to educated everyone in the world about RP. And the only way we can do this is by showing our courage and wisdom we all chare. I know the ones that went home already to be with the lord would not like for us to give up. So please keep your faith and courage going. I thank each of you for being the greatest RP family .Remember we are here for each other any time you need us.Sending

you all a gentle warm Hug.

Heidi

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

--- Kathleen wrote:

> Heidi,

>

> I will pray for Ute and her family ALL DAY. Thanks

> for sharing this difficult news.

>

> Kathleen (Tx)

Count me in for prayers also. I've already started.

squeek

> Ute

>

>

> Hallo Everyone !!!

>

> I thought I give you the latest news about

> UTE even true it is very sad news. May I ask

> a favor from each of you please? Cloud we all say

> a very special prayer at 6 pm west 8 pm

> central, 9 pm east time please for Ute and her

> loving Family.That god will guide Ron and Ute

> in a very hard decision the are having to make at

> this time. I am so sad to have to tell you all this

> but Ute can not get off the Life support system

> after all.Her lower part of her lungs are gone and

> even true the could try putting in a metal stint it

> would not help the lower part of the lungs. Yes Ron

> and Ute's Drs. have called all over the world the

> last 2 days to find a way of helping her. But sadly

> it just was to late. Ute is ready to go home to the

> Lord. Her Family what are here from Germany saying

> there good bys to her. Ron and Ute 2 sons are the

> ones that now face the final decision. Please God

> give them the strength and

> Guiding the need in the most difficulty time of

> there life here on earth. Also Dear God give this

> group here the strength and wisdom and

> courage to never give up. That each of us keep

> fighting this sickness called RP. I thank you dear

> lord.

> Please everyone I am asking you all do NOT give up

> I know how scary it is at times but we

> need to educated everyone in the world about RP.

> And the only way we can do this is by showing our

> courage and wisdom we all chare. I know the ones

> that went home already to be with the lord would not

> like for us to give up. So please keep your faith

> and courage going. I thank each of you for being the

> greatest RP family .Remember we are here for each

> other any time you need us.Sending

> you all a gentle warm Hug.

> Heidi

>

>

>

>

[Guest guest]

Heidi,

In tears as I'm writing this, Ute and Ron and their family will be in my thoughts and prayers every minute until and after God sees them through. At 9 pm est I will send a special prayer with everyone for them and all of us for special strength and courage. We all so need it now, and they need guidance and peace.

If this time works, we can have it be our special time daily for those of us that can reach out together and hold hands and hearts, and send out special thoughts and prayers for each other and our own families.

May God bless and keep Ute and her family. I am with them in my heart.

Carol G

Ute

Hallo Everyone !!!

I thought I give you the latest news about

UTE even true it is very sad news. May I ask

a favor from each of you please? Cloud we all say a very special prayer at 6 pm west 8 pm

central, 9 pm east time please for Ute and her loving Family.That god will guide Ron and Ute

in a very hard decision the are having to make at this time. I am so sad to have to tell you all this but Ute can not get off the Life support system after all.Her lower part of her lungs are gone and even true the could try putting in a metal stint it would not help the lower part of the lungs. Yes Ron and Ute's Drs. have called all over the world the last 2 days to find a way of helping her. But sadly it just was to late. Ute is ready to go home to the Lord. Her Family what are here from Germany saying there good bys to her. Ron and Ute 2 sons are the ones that now face the final decision. Please God give them the strength and

Guiding the need in the most difficulty time of there life here on earth. Also Dear God give this group here the strength and wisdom and

courage to never give up. That each of us keep fighting this sickness called RP. I thank you dear lord.

Please everyone I am asking you all do NOT give up I know how scary it is at times but we

need to educated everyone in the world about RP. And the only way we can do this is by showing our courage and wisdom we all chare. I know the ones that went home already to be with the lord would not like for us to give up. So please keep your faith and courage going. I thank each of you for being the greatest RP family .Remember we are here for each other any time you need us.Sending

you all a gentle warm Hug.

Heidi

DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

I agree, .

I can't stop crying, it's like losing part of my family.

Hugs,

SandySandy, I'm with you. I don't want any more names added to our web site of those we have lost. I think today there will be a lot of tears shed. hugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU