Pred withdrawal - Shryn

[Guest guest]

Sharyn, when I was coming down off pred I usedto go

bright red not just my face but my chest too. I found

comingdown more slowly, and staying at one level

longer helped. I also take my daily dose split, (half

am half pm) although some doctors don't like this. I

find otherwise I don't get any benefit at night, which

is often the worst time.

I do get a lot of back pain, I know nearly all my

discs are bulging, and one or two are herniated. The

5 mg pred I still take helps a lot with that. I also

take celebrex when its really bad, my rheumy says that

is ok and it does work. (I too think it is rp related,

but docs mostly don't, but discs are cartilage, arn't

they?) I also find doing my exercises (pelvic tilts,

small crunches, stomach and back muscle strengthening

and recumbent bike 20 mins per day all help. You

should talk gto a doc or physical therapist to get a

program for this, though. Feel better!! Love Liz

__________________________________________________

[Guest guest]

Liz,

You are sooooooo right about exercising the abdomen with stomach crunches and

doing pelvic tilts. Seems like when I strenghthen the front side, I reduce the

stress on my back. I visited an area hospital that had a rehab center

(cardio/pulmonary) and the exercise physiologist gave me copies of the specific

exercises to get started with...free.

Are you back from overseas? I really enjoy reading the emails about your

travels. Please tell us more.

Happy St. 's Day,

(KC)

Pred withdrawal - Shryn

Re: Sharyn, when I was coming down off pred I usedto go

Re: bright red not just my face but my chest too. I found

Re: comingdown more slowly, and staying at one level

Re: longer helped. I also take my daily dose split, (half

Re: am half pm) although some doctors don't like this. I

Re: find otherwise I don't get any benefit at night, which

Re: is often the worst time.

Re:

Re: I do get a lot of back pain, I know nearly all my

Re: discs are bulging, and one or two are herniated. The

Re: 5 mg pred I still take helps a lot with that. I also

Re: take celebrex when its really bad, my rheumy says that

Re: is ok and it does work. (I too think it is rp related,

Re: but docs mostly don't, but discs are cartilage, arn't

Re: they?) I also find doing my exercises (pelvic tilts,

Re: small crunches, stomach and back muscle strengthening

Re: and recumbent bike 20 mins per day all help. You

Re: should talk gto a doc or physical therapist to get a

Re: program for this, though. Feel better!! Love Liz

Re:

Re: __________________________________________________

Re:

[Guest guest]

Hi Liz

I've been having those hot flashes of the face, ears and neck for

some time now. They seem to come and go and my skin on my face gets

hot like I'm running a fever. I've also been on Celebrex, but it

really didn't do me any good. I have Fibromyalgia so bad it just

wasn't helping. My Rheumy has me on this drug called Neurontin

300mg three times a day. He said they are finding it helps with the

FM which I will admit it does. It a drug used on people who have

epilepsy and seizures.

I also have Osteoarthritis in my right hip...it's now bone on bone

so the bike thing is out. Had PT too, but they did more harm than

good and my insurance only pays for 5 visits. I still try and

hobble around, but if I do to much I really pay for it.

Shoot, I took my kids (dogs) out in the back yard yesterday and

washed all of them. Then I took the clippers to two of them and by

the time I was done I could hardly walk. Really gets frustrating

when I cannot do things. Even sweeping the kitchen floor or

vaccuming the house does a number on me.

I'm a real mess aren't I Still I keep going since I don't want

to be in a wheelchair, but my Rheumy did tell me I need a hip

replacement. Am trying to hold out as long as I can with that one

since I'm just to darn young right now for that.

My muscles are very week. God forbid if I am down on the floor.

Poor hubby has to come and help me get up. He's a dear.

Sharyn

> Sharyn, when I was coming down off pred I usedto go

> bright red not just my face but my chest too. I found

> comingdown more slowly, and staying at one level

> longer helped. I also take my daily dose split, (half

> am half pm) although some doctors don't like this. I

> find otherwise I don't get any benefit at night, which

> is often the worst time.

>

> I do get a lot of back pain, I know nearly all my

> discs are bulging, and one or two are herniated. The

> 5 mg pred I still take helps a lot with that. I also

> take celebrex when its really bad, my rheumy says that

> is ok and it does work. (I too think it is rp related,

> but docs mostly don't, but discs are cartilage, arn't

> they?) I also find doing my exercises (pelvic tilts,

> small crunches, stomach and back muscle strengthening

> and recumbent bike 20 mins per day all help. You

> should talk gto a doc or physical therapist to get a

> program for this, though. Feel better!! Love Liz

>

> __________________________________________________

>

[Guest guest]

Shryn, aren't husbands wonderful? All I do around the house is the laundry (and that takes a toll too, but I'm not going to stop doing everything!). My poor honey, does everything else, occasionally I am allowed to dust! I know how frustrating it gets, believe me! I too have osteo (head to toe) and sometimes it's just too painful to do much. It really makes me crazy when my elbows act up, do you realize how little you can do without bending your arm? Makes me nuts! (Not that it's all that hard to do!). I'm grateful for each morning (more so BEFORE I get out of bed), usually laying in bed is sometimes the only place that doesn't hurt, but I'd rather be walking no matter how hard it is. Hang in there, I'd like to tell you that it will get better, but who knows if it will? Just take it one day at a time and hang in there! Love, Judy O Re: Pred withdrawal - Shryn Hi LizI've been having those hot flashes of the face, ears and neck forsome time now. They seem to come and go and my skin on my face getshot like I'm running a fever. I've also been on Celebrex, but itreally didn't do me any good. I have Fibromyalgia so bad it justwasn't helping. My Rheumy has me on this drug called Neurontin300mg three times a day. He said they are finding it helps with theFM which I will admit it does. It a drug used on people who haveepilepsy and seizures.I also have Osteoarthritis in my right hip...it's now bone on boneso the bike thing is out. Had PT too, but they did more harm thangood and my insurance only pays for 5 visits. I still try andhobble around, but if I do to much I really pay for it.Shoot, I took my kids (dogs) out in the back yard yesterday andwashed all of them. Then I took the clippers to two of them and bythe time I was done I could hardly walk. Really gets frustratingwhen I cannot do things. Even sweeping the kitchen floor orvaccuming the house does a number on me.I'm a real mess aren't I Still I keep going since I don't wantto be in a wheelchair, but my Rheumy did tell me I need a hipreplacement. Am trying to hold out as long as I can with that onesince I'm just to darn young right now for that.My muscles are very week. God forbid if I am down on the floor.Poor hubby has to come and help me get up. He's a dear.Sharyn> Sharyn, when I was coming down off pred I usedto go> bright red not just my face but my chest too. I found> comingdown more slowly, and staying at one level> longer helped. I also take my daily dose split, (half> am half pm) although some doctors don't like this. I> find otherwise I don't get any benefit at night, which> is often the worst time.>> I do get a lot of back pain, I know nearly all my> discs are bulging, and one or two are herniated. The> 5 mg pred I still take helps a lot with that. I also> take celebrex when its really bad, my rheumy says that> is ok and it does work. (I too think it is rp related,> but docs mostly don't, but discs are cartilage, arn't> they?) I also find doing my exercises (pelvic tilts,> small crunches, stomach and back muscle strengthening> and recumbent bike 20 mins per day all help. You> should talk gto a doc or physical therapist to get a> program for this, though. Feel better!! Love Liz>> __________________________________________________>