Re: Re: Deb - Arnold Chiari and CF

August 26, 2003

In a message dated 8/26/2003 12:33:56 PM Central Daylight Time,

luckyducky22@... writes:

> My brother was born with Spina Bifida, Hydrocephalus and Arnold

> Chiari malformation. He is 26 now and is doing great. He had a shunt

> put in when he was younger and has had no problems with it. He does

> have seizures though. He also had some developmental delays and was

> in special education classes. He struggles the most with math.

My daughter doesn't have any developmental delays but she does struggle with

math. The only thing I can think of that she was late at doing was walking and

that was because she had surgery when she was 1 and she was to lay flat for a

month. She walked by the time she was 16 months. Deb A

August 27, 2003

In a message dated 8/27/2003 6:01:55 AM Central Daylight Time,

gale.harris@... writes:

> Does get many headaches? Doe she has trouble with balance

> or numbness in her arms? Those are all signs of Arnold Chiari.

> Although, I believe that a shunt would aleviate those symptons.

>

> Gale

Well, she gets headaches but I think that is from her sinuses. She is the one

that has had 3 sinus surgeries so far but I worry that it could be related to

her shunt. She never complains of numbness in her arms and she doesn't have

any problems with balance either. Deb A

August 30, 2003

In a message dated 8/27/2003 1:48:33 PM Central Daylight Time,

gale.harris@... writes:

>

> I've decided that must be a pretty tough cookie. I have

> sinus headaches and they are nasty! I took prescription pain

> medication for them for years. deserves a lot of credit for

> all that she's had to go through!

>

> Gale

>

Yep you are so right Gale through all of her stubbornness she is a pretty

good kid! She has a lot of her Dad in her the poor kid!! LOL!! Deb A

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