Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Hi, I have no experience at all with the meds your daughter takes. Hopefully someone else here will. I can tell you that only TWO WEEKS into the diet is FAR too soon for any raw foods at all. Please peel AND COOK all fruits and vegetables.... except ripe banana. Otherwise, the foods she's eating look okay to me.... as long as the baked apple was eaten without the skin. But, it is difficult to know what is doing what when you have made more than one change at a time. Keep a journal, and try to stick with the same menu now .... keeping that the same, while you reduce meds. Otherwise, you won't know. You may want to puree some of the cooked vegetables for a bit, making them as easy to digest as possible. I don't trust a three-yr-old to chew everything adequately. When you add back foods this time, do ONLY ONE AT A TIME... and wait. Observe.... write down what you see. It seems like your own instincts are telling you what is most likely true.... that she will need to stablize from tapering off the med. As you say, " a transitional period " . That makes sense to me. Let's see what others say. I just started my daughter back on SCD on 5/27/06... just one day before Anya. Katera was on it for 18 months ('03-'04) before.... not for the same reasons you are, and I am following the diet along with her. Congratulations on the improvements you've seen so far! Stick with what you're doing and NO MORE RAW GRAPES! Patti, mom to Katera Hi...and intro <<With the starter diet, in four days Anya's D had stopped! She had had D for 7 months, about 5 times a day.>> <<It seemed to us that the sudden, almost miraculous improvement had to do with the diet, not the meds, but we can't find anywhere information on how quickly prednisolone works->>- << For example, could it be that we are adding foods too quickly, but that Anya is not reacting negatively to them only because she is on the prednisolone? >> <<Also, last night and this morning we had a bit of a setback in BM .... 1. 2 1/2 hours before the first looser BM Anya had 20 raw, peeled, deseeded and mashed grapes, >><<3. Yesterday was the 4th day of the prednisolone taper >> We Made Changes Your Yahoo! Groups email is all new. Learn More Share Feedback Recent Activity a.. 25New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 P.S.... Nayeli, Did you mean to type that her symptoms started in December of 2005? Just curious. Patti ----- Original Message ----- <<Anya, 3 y.o. UC diagnosed 5/24/06, symptoms started 12/06 SCD started 5/28/06 Meds: Prednisolone, Mercaptopurine>> We Made Changes Your Yahoo! Groups email is all new. Learn More Share Feedback Recent Activity a.. 25New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 > P.S.... Nayeli, Did you mean to type that her symptoms started in > December of 2005? Just curious. Hi Patti, thanks for the advice. We will certainly not give her any more raw fruits except for banana until much later. And yes, I meant to write that her symptoms started 12/05--thanks for pointing out the error! We've decided to stay on the starter diet (with the exception of raw banana) until she's off the prednisolone so we can be sure what kind of effect foods are having, and then introduce them very gradually. We were doing that originally but then made the mistake of giving her raw grapes the day we were introducing the baked apple (peeled, deseeded, and pureed). Today things are much better BM- wise, by the way--even better than before our setback! Thanks again, Nayeli, Julio and Araceli Anya, 3 y.o. UC diagnosed 5/24/06, symptoms started 12/05 SCD started 5/28/06 Meds: Prednisolone, Mercaptopurine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 I know that pred can cause the guts flora out of balance. This is not good in light of SCD trying to get rid of this imbalance. Yet I suggest, that you folow doctors orders and wean her off this his way. Once she is off pred I personaly would go back to intro diet to initiate another " die off " . Go slow with introducing too advanced foods. Grapes are not easy to digest..unless you where to truly " juice them " . We paid over here...I don't want you to do the same thing. It wastes so much time. The gut heals rather fast. RE-read BTVC Chapter 9 and 10 (like I have a thousand times LOL!) and try to introduce foods the way she wanted us too. You will have the best success this way and heal the fastest! It will gain you time...instead of loosing ground and causing her set backs that will take her longer to heal........may be the pits for the short hall...but makes the year faster in healing. Hope this helps, Antoinette (celiac and advance intestinal damage) SCD 2/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Welcome to the group Nayeli, Araceli, Julio and Yara > > Anya (3 year old) was just diagnosed with UC. We found SCD on the > web and decided to try it right away. With the starter diet, in four > days Anya's D had stopped!... Now, she's gone back to letting us know when she needs to > go to the toilet and is having about 2 BMs a day, a lot more formed > though perhaps not yet ideal. Yara, Anya's mother, says they look like how they did before she had the D. It sounds as if she has seem considerable improvement. We have some questions, so > if any of you have any insights please let us know! > > Anya's doctor put her on prednisolone and mercaptopurine, and both > were started on the same day as the diet. We are now starting to > taper the prednisolone. What is the dose or prednisolone? What is the taper schedule and what form is the prednisolone liquid or tablet? Sometimes the liquid form has illegals and if you can get it compounded it may help reduce symptoms. > We are looking forward > to Anya being off the steroids and hopefully being OK with just the diet, but in the meantime, we're wondering if perhaps the steroids may mask how the diet is working. For example, could it be that we > are adding foods too quickly, but that Anya is not reacting > negatively to them only because she is on the prednisolone? Sometimes symptoms can flare up as you drop a dose of steroids because the body is adjusting to the change. I have found with steroids that sticking to safe foods on the days around the steroid drop and avoiding the introduction of a new food on at least the day before and after the drop helps the body adjust easier. >We're wondering if anyone has any experience with being on the diet and taking steroids at the same time, and what happens when you stop taking steroids. Is there a bit of a transitional period where you need to restabilize? Sometimes the stool can get a little looser , but if things don't firm up in a day or two I'd consider pulling back to either easier to digest foods or the intro just to give the body a break while it comes back up with its' own steroid production. > Also, last night and this morning we had a bit of a setback in BM > consistency. Anya had a lot of bloating and although she doesn't > have D, she had more and looser BMs. We're trying to figure out what > this could be a result of. Factors: > > 1. 2 1/2 hours before the first looser BM Anya had 20 raw, peeled, > deseeded and mashed grapes, thinking it would be all right since she > had had fresh pressed grape juice made at home a couple of days > before with no problems. The grapes are quite difficult to digest and you should probably wait until she is well weaned off the prednisolone. The skins are very difficult to digest and probably triggered the loose stool. > 2. We started her on baked, pureed apples yesterday as well. The pureed baked apples are not likely a culprit in the loose stool but it is better if you only do one new food /day. That allows you to tell what reaction each food is going to cause. > 3. Yesterday was the 4th day of the prednisolone taper (original > dose in the morning, reduced dose at night). > > Today we've gone back to the basic diet to see if we can get back on > " solid ground. " Any advice on how long we should do this for? So > far she has tolerated: > > broiled chicken, fish, and ground meat > diluted apple and grape juice > homemade yoghurt > DCCC > chicken broth > mashed carrots (cooked with broth) > zucchini (cooked with broth) > raw ripe banana > The zucchini and the apples were the latest additions. Was the zucchini peeled and cooked? Until the stools are back to what they were a few days ago you should stick to peeled and cooked fruit and vegetables only , no raw or unpeeled for the moment. If her stools don't clear up after removing the grapes and (zucchini peels (?)) then you should retry the intro for a day or two. > Anya, 3 y.o. > UC diagnosed 5/24/06, symptoms started 12/06 > SCD started 5/28/06 > Meds: Prednisolone, Mercaptopurine Sheila, SCD 2/01, UC 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Welcome to the group Nayeli, Araceli, Julio and Yara, > > Anya (3 year old) was just diagnosed with UC. We found SCD on the > web and decided to try it right away. With the starter diet, in four > days Anya's D had stopped!... Now, she's gone back to letting us know when she needs to > go to the toilet and is having about 2 BMs a day, a lot more formed > though perhaps not yet ideal. Yara, Anya's mother, says they look like how they did before she had the D. It sounds as if she has seem considerable improvement. We have some questions, so > if any of you have any insights please let us know! > > Anya's doctor put her on prednisolone and mercaptopurine, and both > were started on the same day as the diet. We are now starting to > taper the prednisolone. What is the dose or prednisolone? What is the taper schedule and what form is the prednisolone liquid or tablet? Sometimes the liquid form has illegals and if you can get it compounded it may help reduce symptoms. > We are looking forward > to Anya being off the steroids and hopefully being OK with just the diet, but in the meantime, we're wondering if perhaps the steroids may mask how the diet is working. For example, could it be that we > are adding foods too quickly, but that Anya is not reacting > negatively to them only because she is on the prednisolone? Sometimes symptoms can flare up as you drop a dose of steroids because the body is adjusting to the change. I have found with steroids that sticking to safe foods on the days around the steroid drop and avoiding the introduction of a new food on at least the day before and after the drop helps the body adjust easier. >We're wondering if anyone has any experience with being on the diet and taking steroids at the same time, and what happens when you stop taking steroids. Is there a bit of a transitional period where you need to restabilize? Sometimes the stool can get a little looser , but if things don't firm up in a day or two I'd consider pulling back to either easier to digest foods or the intro just to give the body a break while it comes back up with its' own steroid production. > Also, last night and this morning we had a bit of a setback in BM > consistency. Anya had a lot of bloating and although she doesn't > have D, she had more and looser BMs. We're trying to figure out what > this could be a result of. Factors: > > 1. 2 1/2 hours before the first looser BM Anya had 20 raw, peeled, > deseeded and mashed grapes, thinking it would be all right since she > had had fresh pressed grape juice made at home a couple of days > before with no problems. The grapes are quite difficult to digest and you should probably wait until she is well weaned off the prednisolone. The skins are very difficult to digest and probably triggered the loose stool. > 2. We started her on baked, pureed apples yesterday as well. The pureed baked apples are not likely a culprit in the loose stool but it is better if you only do one new food /day. That allows you to tell what reaction each food is going to cause. > 3. Yesterday was the 4th day of the prednisolone taper (original > dose in the morning, reduced dose at night). > > Today we've gone back to the basic diet to see if we can get back on > " solid ground. " Any advice on how long we should do this for? So > far she has tolerated: > > broiled chicken, fish, and ground meat > diluted apple and grape juice > homemade yoghurt > DCCC > chicken broth > mashed carrots (cooked with broth) > zucchini (cooked with broth) > raw ripe banana > The zucchini and the apples were the latest additions. Was the zucchini peeled and cooked? Until the stools are back to what they were a few days ago you should stick to peeled and cooked fruit and vegetables only , no raw or unpeeled for the moment. If her stools don't clear up after removing the grapes and (zucchini peels (?)) then you should retry the intro for a day or two. > Anya, 3 y.o. > UC diagnosed 5/24/06, symptoms started 12/06 > SCD started 5/28/06 > Meds: Prednisolone, Mercaptopurine Sheila, SCD 2/01, UC 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Welcome to the group Nayeli, Araceli, Julio and Yara > > Anya (3 year old) was just diagnosed with UC. We found SCD on the > web and decided to try it right away. With the starter diet, in four > days Anya's D had stopped!... Now, she's gone back to letting us know when she needs to > go to the toilet and is having about 2 BMs a day, a lot more formed > though perhaps not yet ideal. Yara, Anya's mother, says they look like how they did before she had the D. It sounds as if she has seem considerable improvement. We have some questions, so > if any of you have any insights please let us know! > > Anya's doctor put her on prednisolone and mercaptopurine, and both > were started on the same day as the diet. We are now starting to > taper the prednisolone. What is the dose or prednisolone? What is the taper schedule and what form is the prednisolone liquid or tablet? Sometimes the liquid form has illegals and if you can get it compounded it may help reduce symptoms. > We are looking forward > to Anya being off the steroids and hopefully being OK with just the diet, but in the meantime, we're wondering if perhaps the steroids may mask how the diet is working. For example, could it be that we > are adding foods too quickly, but that Anya is not reacting > negatively to them only because she is on the prednisolone? Sometimes symptoms can flare up as you drop a dose of steroids because the body is adjusting to the change. I have found with steroids that sticking to safe foods on the days around the steroid drop and avoiding the introduction of a new food on at least the day before and after the drop helps the body adjust easier. >We're wondering if anyone has any experience with being on the diet and taking steroids at the same time, and what happens when you stop taking steroids. Is there a bit of a transitional period where you need to restabilize? Sometimes the stool can get a little looser , but if things don't firm up in a day or two I'd consider pulling back to either easier to digest foods or the intro just to give the body a break while it comes back up with its' own steroid production. > Also, last night and this morning we had a bit of a setback in BM > consistency. Anya had a lot of bloating and although she doesn't > have D, she had more and looser BMs. We're trying to figure out what > this could be a result of. Factors: > > 1. 2 1/2 hours before the first looser BM Anya had 20 raw, peeled, > deseeded and mashed grapes, thinking it would be all right since she > had had fresh pressed grape juice made at home a couple of days > before with no problems. The grapes are quite difficult to digest and you should probably wait until she is well weaned off the prednisolone. The skins are very difficult to digest and probably triggered the loose stool. > 2. We started her on baked, pureed apples yesterday as well. The pureed baked apples are not likely a culprit in the loose stool but it is better if you only do one new food /day. That allows you to tell what reaction each food is going to cause. > 3. Yesterday was the 4th day of the prednisolone taper (original > dose in the morning, reduced dose at night). > > Today we've gone back to the basic diet to see if we can get back on > " solid ground. " Any advice on how long we should do this for? So > far she has tolerated: > > broiled chicken, fish, and ground meat > diluted apple and grape juice > homemade yoghurt > DCCC > chicken broth > mashed carrots (cooked with broth) > zucchini (cooked with broth) > raw ripe banana > The zucchini and the apples were the latest additions. Was the zucchini peeled and cooked? Until the stools are back to what they were a few days ago you should stick to peeled and cooked fruit and vegetables only , no raw or unpeeled for the moment. If her stools don't clear up after removing the grapes and (zucchini peels (?)) then you should retry the intro for a day or two. > Anya, 3 y.o. > UC diagnosed 5/24/06, symptoms started 12/06 > SCD started 5/28/06 > Meds: Prednisolone, Mercaptopurine Sheila, SCD 2/01, UC 22yrs mom of and Quote Link to comment Share on other sites More sharing options...
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