Re: Thanks to all of you who responded to my pregnancy questions...

[Guest guest]

I learned of a researcher who does the CF genetic testing for only

$2500. Another woman on the list (thanks!) gave me the information.

His name is Mark and he is in Detroit area. His number is 313-

993-1353. You can do all the IVF stuff at your local fertility

clinic and then an embryologist sends a cell from the embryo to Dr

office and you get results in 2 days. Insurance will almost

NEVER cover anything regarding IVF unless you live in one of those

lucky states or you or your husband have great insurance coverage.

IVF usually costs about $8000 including medications. Good luck. We

are going to undergo the same procedure this September.

mom to Ashton, 28 months wcf

> I am dearly touched by the time you all took to answer my questions

> both on the site here and via e-mail. Your stories are

> overwhelming! This group here has been through so much - it's just

> amazing. We received an e-mail from a fellow member here who

> pointed out that we may want to consider how having another child

> with CF would potentially affect the health of our baby daughter.

> This was a point we hadn't considered until then and based on that -

> we've decided to pursue IVF-PGD. There are also some other factors

> that went into our decision (maybe I'll get into that some other

> time). Unfortunately, our decision will be finalized by the

> insurance company and let me say...they have way too much power!

> Anyway, we have an appointment with the infertility specialist on

> August 6th and we should know more by then.

>

> Thanks again - so much for all your help and insight as we were

> struggling with our decision.

[Guest guest]

The insurance company won't balk too much if you point out to them the costs of

another child with cf. Most companies will waive the fees for IVF-PGD for that

purpose. Good luck.

Dawn mom of 4, 7 and under, the youngest wcf

[Guest guest]

we are trying that tactic--including his $300,000 insurance bill from

the first 10 weeks of life, photos of him at 3 lbs, his monthly g-

tube supply bill (about $5,000), etc--and so far, they aren't

realizing what a cost savings the IVF with PGD is. Very frustrating

to us. We are changing our tactic and asking them to pay for the IVF

medications (about $2000) and for the PGD ($8500). They specifically

state in their policy that they do not pay for IVF so we gave up

asking for them to pay for that. It is a crappy process. I think the

insurance company is willing to gamble on the 1 in 4 chance. Makes

me want to scream!!

mom of Ashton 28 months wcf

> The insurance company won't balk too much if you point out to them

the costs of another child with cf. Most companies will waive the

fees for IVF-PGD for that purpose. Good luck.

>

> Dawn mom of 4, 7 and under, the youngest wcf

>

>

>

[Guest guest]

Well, keep hollering until they hear you! :-)

Dawn mom of 4, 7 and under, the youngest wcf