Re: How do I convince gastro to test, or do I give up?????

[Guest guest]

On Jul 18, 2006, at 4:29 PM, & Charlene Flikkema wrote:

> Its difficult to know how to get our docs to do these things.

>

> Do you feel the Celiac test is necessary or is SCD helping so much

> that it really doesn't matter too much anymore? What I mean is, you

> can find out for sure but when you do will it change the protocol you

> are doing now?

>

> When I need my docs to do something for me, I insist, I don't suggest.

> I will say to him (my GI), " I know that you think this isn't necessary

> but I do and I am asking you to do this for me. " Mine have never

> refused. Sometimes my suspicions are right, other times they are not.

> I have found that all my medical docs respect me greatly for the

> knowledge that I already have and treat me more Iike an equal because

> I don't let them walk on me.

>>>>>>>>>>

>

>

> I went to a new GI when I moved and he didn't want to hear anything I

> had to say. He wanted me on that table having a Colonoscopy ASAP. I

> never went back.

> Charlene

> UC 8 years

> SCD 5 1/2 years

I wanted to avoid the second colonoscopy but a deeply embedded

precancerous polyp was removed and I don't regret it. They will try to

bail me again next year and I may decline.

It was rather unpleasant as compared to the first.

>

>

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

> When I asked him to check or Celiac {he was already doing an

endoscopy} but was told that I didn't have the symptoms, but when I

read up on THAT, same deal!

Hazel,

If you're not eating gluten the celiac's won't show up on the

endoscopy. You have to be consuming the gluten (and destroying any

healing that has taken place) to get the diagnosis.

If you're feeling better by not eating the starches and sugar, is

having a diagnosis so important? Will the diagnosis change anything?

Just a couple of questions to think about.

Sue