Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Hi all, this is Werner from Germany. My problem with RP is " only " a problem with breathing. RP damaged trachea and bronchi. For two years I take pred, starting with 50 mg/d and am now on 20 mg/d. Additionally I inhale Budenosid, an equivalent substance to Pred. It should work directly in the airways. Has anybody experience with substituting pred by inhaled corticoids? So far, I do quite well. RP started in my case in Oct. 99 and was diagnosed in May 2000 after a rigid bronchoskopy. This bronchoscopy made me living for two weeks on a breathing machine. That is why I also have a tracheotomy, but fortunately no longer a tube. A small whole in the trachea remained. Many greetings Werner Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.