Re: Does anyone have experience with PGD?

[Guest guest]

I agree w/your feeling regarding the term cfer!!! I am not familiar with

PGD or IVF/PGD. Can you fill me in on what this is.

Tina W. mother of Steph, 17yoa wcf

Does anyone have experience with PGD?

I guess you could say that we are maverick's here, but we're trying

to get our insurance company to cover the cost of IVF/PGD. I'm

interested in hearing others' experiences...both good and bad. I'd

also like to know if anyone has had insurance that's covered and

which state you're in. We're planning to do our procedure in Mpls.

Thanks.

Donna

Mom to Mikayla, 9 months - 7 months adjusted

....mom who hates the term CFer... People are people first and

should not be known as a diagnosis! No flames please...

[Guest guest]

Hi Tina!

IVF is required in order to do Preimplantation Genetic Diagnostics

(PGD). PGD is still considered invesigational. It's a procedure

where an embyologist removes a single cell from a blastocyst

(developing embryo)to determine if this child will be affected with

CF, CF carrier or no CF. IVF success rates go down substantially

when doing PGD because you're eliminating the ones affected with

CF. We meet with the genetics counselor tomorrow. When I talked to

her on the phone today, she mentioned that if you've already had a

baby with meconium ileus - the rates go up significantly that any

future babies with CF will also have an ileus.

[Guest guest]

What timing! We are doing PGD next month. We are going in front of

the appeals board of our insurance compnay this morning. We live in

KS and our insurance company doesn't pay for IVF so we are trying to

convince them to at least pay for the IVF medication ($2500) and the

PGD ($8500). There is a dr named Mark that does the PGD only

part for just $2500. Good luck!!

mom to Ashton 28 months wcf

> I guess you could say that we are maverick's here, but we're trying

> to get our insurance company to cover the cost of IVF/PGD. I'm

> interested in hearing others' experiences...both good and bad. I'd

> also like to know if anyone has had insurance that's covered and

> which state you're in. We're planning to do our procedure in

Mpls.

>

> Thanks.

>

> Donna

> Mom to Mikayla, 9 months - 7 months adjusted

>

>

>

> ...mom who hates the term CFer... People are people first and

> should not be known as a diagnosis! No flames please...

[Guest guest]

You go girl!!! I wish you the best of luck today. I'd love to hear

the details of how you've gotten to this point and how it went with

the insurance board today. We are also planning to use Mark

for our PGD in Mpls. I understand he's the best!

[Guest guest]

Donna,

We have been through PGD. But we don't need insurance in Australia for

it.

(Australia)

Does anyone have experience with PGD?

I guess you could say that we are maverick's here, but we're trying

to get our insurance company to cover the cost of IVF/PGD. I'm

interested in hearing others' experiences...both good and bad. I'd

also like to know if anyone has had insurance that's covered and

which state you're in. We're planning to do our procedure in Mpls.

Thanks.

Donna

Mom to Mikayla, 9 months - 7 months adjusted

....mom who hates the term CFer... People are people first and

should not be known as a diagnosis! No flames please...