Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 > Hi Cindy, > > It's me Antoinette! THIS IS WHAT WE DO AND DID. We can't keep the > yogurt around long enough to go bad. We didn't know to go slow, we > jumped into a bowl full from the start! Not suggested for everyone, > but worked for us. > > > As you know we came casein/free gluten free/soy free/grainfree ect. > And full of fear of the dairy! You know how the autistic community > feeds this fear? > But we where desperate, for our > daughter's " visious cycle " to be ending. She was becoming sicker by > the month eating the other ways. More and more autistic and looking > very malnourished and not gaining or growing well. Even though we > where feeding her well. > > At first we thought the die off reacton was a reaction to the > casein! But Mimi the owner of Pecan Bread helped to set us > straight. We had remarkable improvements after a very difficult > transition and die off reaction. I later found out that this is > truly the reason they tell people to go slow. So this die off > reacton is not as miserable. And so that it doesn't scare those > away, because they confuse it for a casein reaction, when it is not! > > You see Elaine said that in a 24 hour batch of SCD yogurt that the > casein is denatured and often doesn't cause such a reacton. Going > slow, does take longer. Some like us don't have the time to spare! > Got to Goat Yogurt Preperation to read this. www.pecanbread.com > > In a way I am glad we hadn't been given this advice, and went by the > BTVC book. After this first die off, we saw an " awakening " from our > daughter. > > > This is when we realized that we may not need much assistance from > any DAN! doctor. We saw many ASD traits vanish in our daughter! > She began to grow and look better too! > > We also didn't need to use the enzymes that where suggested. After > discoveirng the hard way, that the protease caused us many problems > and much pain. Later to find out that some with intestinal damage > can not tolerate it! That Elaine feared the stuff for those of us > with intestinal problems. That in a nut shell....and something to > think about. Hope others can guide you too! WE are doing great > going by the book! Wouldn't do it any other way. > > God Bless, Sincerely, Antoinette and (both celiac) Parents to > Kiki-2 ASD and improving, -5 was ADHD, Xena-1 WAS Hyperekplexia Antoinette, You have repeated your story often and very well. You have opted not to follow DAN protocols, not to take supplements and enzymes and only to do the diet as Elaine wrote it and you and your family are fortunate that this is working for you. However, the whole purpose of having a special support group about SCD (Pecanbread) is to advise those who are not like you (and me) and need additional measures. In constantly restating your experience, and because you are an exception there is an implication that others should follow your approach. It is not " the autistic community, " rather the Gluten Free Casein Free Diet that outlaws dairy. SCD was the diet of choice until a very small study in the British journal, Lancet was published. Elaine did not know about the positive effects SCD was having for autism until just before she revised BTVC to edition ten when she added the chapter on autism. Until that point cow's milk was the general product used for yogurt, not goat's milk which we use here. She got lots of other input from the parents that caused her to approve adjustments for the diet for those with autism. After all it takes at least a month to decide whether to commit to SCD. It takes a year after the very last symptom is gone to take back non SCD food. It requires not only your type of enthusiasm, but also a lot of patience ( and I suggest newcomers in particular cultivate patience) and once again " newbies " , please go slowly with yogurt. We really do insist that yogurt be started in tiny amounts and increased very gradually. Cindy can still make ice cream, cheesecake and other recipes with the yogurt for the rest of the family if she hasn't used it all before the expiry date. SCD is relatively new to the DAN Community. Elaine was first invited to speak at a DAN Conference in 2003. Many but not all DAN doctors are studying the diet and recommending it to their small patients along with other interventions. I sincerely wish your SCD journey will henceforth be straight ahead with no setbacks but I also request not setting an example that will suggest people abandon caution. Carol F. Celiac, MCS, Latex Allergy, EMS SCD 6 years Quote Link to comment Share on other sites More sharing options...
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