Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Now, for the rest of my story. I had done well pain/nausea wise on both Christmas Eve day, Wed., and Christmas Day, Thurs. I steered clear of meat and ate very light. Thought I had finally found the secret to staying away from the ER. I should have known that sometimes there is no secret and it just doesn't matter what you do or do not eat. When you have cp, you are sometimes going to have bad attacks no matter what you do. I was in bed and almost asleep when the pain hit around midnight. I barely made it to the bathroom before throwing up. This was a 10+ attack and I was in so much pain I could barely move. Bud had just fallen sound asleep and was in a deep sleep. I called his name over and over (from the foot of our bet) and he didn't move a muscle. I finally had to make my way to the bed so I could touch him to wake him up. After throwing up a few times, I managed to get zofran and oxycodone down with a sip of water. After laying curled in a ball on the bed for a few minutes the pain improved for just a bit. However, just a few minutes later, it was back to a 10+, so the ER was calling me! We tried to go to the local hospital (5 minutes away) but found out the ER doc I'll filed a complaint against was there and I just said, " Never mind. We'll go to Crestwood in Huntsville. " We made the 45-60 minute treck with me in misery. They got me in immediately and it wasn't that long til the doc had the nurse give me a shot of dilaudid and phenergan. She accessed my port a cath, drew the blood, and then started an IV at 400 cc/hour. She had done the blood pressure test to see if I was dehydrated and probably was because of the drastic drop in my blood pressure standing vs sitting. It didn't take long for the shot to kick in and I fell asleep since it's about 3 a.m. at this time. Around 5 the doctor came in and told me he was letting me go. I assumed all my labs were okay and I was much better, so going home sounded good to me. I asked if he would give me one more dose of med for pain and nausea before I left so I could get a few hours sleep before needing to take oral meds. They gave me another shot of dilaudid/phenergan. The nurse told me he wanted it given IM vs IV because it would last longer. No problem and the pain that was at about a 5 was quickly down to a 2 (about as good as gets for me). I was ready to go and asked for a copy of my labs. They were not horrible, but they were not normal either. My lipase was elevated to 665, one liver enzyme, AST, was 110 (almost 4 times normal), total protein, globulin, RBC, HGB, and HCT were all low. When I saw that, I told the ER doc, he should call my internal med doc because even though I was much better at that point, that from past experience, if my lipase was elevated, as soon as the shot wore off and I even began clear liquids, I'd be back at the ER. The ER doc said, " but you said you were feeling better " . I told him I was but I just didn't want to have to come back a few hours later. I could tell he wasn't happy (but he was nice enough) but he said he called my internal med doc and the internist said that since i was feeling better we shouldn't go by the numbers, we should go by my symptoms and since I was better I should try to make it at home. I agreed that I would give it my best shot at home. They told me if I got worse again to come back. I decided I will do nothing but clear liquids for the next day or two and see if I can manage with just my oral meds. I am scheduled to have another celiac plexus block on Monday. The hope is that even though the first one didn't really do much to help, the second one will do more. I called both my internist's office and my GI/Hep's office and both offices are closed today. It ends up that my GI/Hep is the one on call for his group this weekend. I asked the answering service to have him call me so I can tell him what's going on. It was 9 a.m. when I called the answering service and I haven't heard from him yet. I am hoping that if I do get worse, he will do a direct admit and not make me go back through the ER. I was given the shot of dilaudid/phenergan at about 5:30 a.m. and it is wearing off, but it lasted longer than I expected. I've had only ice chips and a popsicle, but they've stayed down. I went ahead and took my morning meds when we got home at about 7 a.m. The meds included MS Contin 30 mg and phenergan 25 mg tablet. I am allowed 3 MS Contin daily and also 4 oxycodone 5 mg per day. I'm going to take an oxycodone and another phenergan tablet in hopes of keeping the pain/nausea at bay. My last two hospitalizations, my amylase and lipase were normal. That's when both the GI and internist told me that since I have CP, my enzymes may never elevate again so we have to just go by symptoms. My amylase has not been above normal since Oct 2002. My lipase has not been elevated since August 2003. Since Oct 02, my amylase has been almost dead center normal at around 45-55. This time it was 73, not above normal but higher than it has been in over a year. I don't know if I'm over reacting, but from past experience, I really feel that since my lipase is elevated, I probably need to be on IVs and NPO for at least a day or so. Hopefully I am wrong and I'll manage fine with my clear liquids and oral meds. Just wanted to get an opinion from the group. thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 <snipped> >I was ready to go and > asked for a copy of my labs. They were not horrible, but they were not > normal either. My lipase was elevated to 665, one liver enzyme, AST, was > 110 (almost 4 times normal), total protein, globulin, RBC, HGB, and HCT were > all low. When I saw that, I told the ER doc, he should call my internal med > doc because even though I was much better at that point, that from past > experience, if my lipase was elevated, as soon as the shot wore off and I > even began clear liquids, I'd be back at the ER. The ER doc said, " but you > said you were feeling better " . I told him I was but I just didn't want to > have to come back a few hours later. I could tell he wasn't happy (but he > was nice enough) but he said he called my internal med doc and the internist > said that since i was feeling better we shouldn't go by the numbers, we > should go by my symptoms and since I was better I should try to make it at > home. I agreed that I would give it my best shot at home. They told me if > I got worse again to come back. I know my GI, depending on the situation, will go by the symptoms the patient is experiencing instead of blood work. I can have symptoms, but my labs are normal, so I may be admitted. There have been a few times where I've not had much pain, nausea and vomiting, but my labs were up, so I stayed home. I've been dealing with my Lipase being between 300- " greater than 400 " for a couple of months now. I was in the hospital for five weeks (Oct/Nov), and it stayed up there...still is as of a week or so ago. Took over four weeks for the Amylase to come down! > > I decided I will do nothing but clear liquids for the next day or two and > see if I can manage with just my oral meds. I am scheduled to have another > celiac plexus block on Monday. The hope is that even though the first one > didn't really do much to help, the second one will do more. One thing my doc has told me for years is, " No broth, no jello. " There is a protein in both that makes the pancreas work harder. So, do the ice chips, apple juice, popsicles, italian ice, that type of thing. When I've told others about the " rule " my doc has, it dawned on them that each time they would have either of those things during an attack at home (they were trying to manage at home instead of the hospital), it made things worse. Heck, I may be having a pretty good day (rare), and decide I am in the mood for jello, and end up with more pain from eating jello! So, I only eat it on a rare basis. > > I called both my internist's office and my GI/Hep's office and both offices > are closed today. It ends up that my GI/Hep is the one on call for his > group this weekend. I asked the answering service to have him call me so I > can tell him what's going on. It was 9 a.m. when I called the answering > service and I haven't heard from him yet. I am hoping that if I do get > worse, he will do a direct admit and not make me go back through the ER. I hope you were able to stay home. > > I was given the shot of dilaudid/phenergan at about 5:30 a.m. and it is > wearing off, but it lasted longer than I expected. I've had only ice chips > and a popsicle, but they've stayed down. Great!!!!! >I went ahead and took my morning > meds when we got home at about 7 a.m. The meds included MS Contin 30 mg and > phenergan 25 mg tablet. I am allowed 3 MS Contin daily and also 4 oxycodone > 5 mg per day. I'm going to take an oxycodone and another phenergan tablet > in hopes of keeping the pain/nausea at bay. Since you have a port, can you talk to your MD about giving you a few doses of IV Phenergan when needed?? My GI does this for me for when the oral meds don't work, or I can't keep them down (doesn't happen often though as I use Zofran ODT). It will also help the pain meds work a bit better, and keeps me out of the ER. > > My last two hospitalizations, my amylase and lipase were normal. That's > when both the GI and internist told me that since I have CP, my enzymes may > never elevate again so we have to just go by symptoms. My amylase has not > been above normal since Oct 2002. My lipase has not been elevated since > August 2003. Since Oct 02, my amylase has been almost dead center normal at > around 45-55. This time it was 73, not above normal but higher than it has > been in over a year. It was 73 today? As long as it is still within the normal range, it is still normal, even if it is higher than what you usually have. Still doesn't mean you weren't having an attack though. I can usually tell from the pain if it is an attack or not...most of us can at this point. > > I don't know if I'm over reacting, but from past experience, I really feel > that since my lipase is elevated, I probably need to be on IVs and NPO for > at least a day or so. Hopefully I am wrong and I'll manage fine with my > clear liquids and oral meds. You know your body better than anyone else! > > Just wanted to get an opinion from the group. Hope this has helped. Email me privately, if you would like...robinmk02 @ aol.com (remove spaces). Robin Quote Link to comment Share on other sites More sharing options...
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