Re: Update from Pennsylvania, USA

July 8, 2003

HI Grandmom Bev,

I just wanted to say hi since you seem to be up so am I, I can't seem

to get to sleep. My son has a wisdom tooth absessed or something, its

hurting him must be alot for him to say anything, and so I called the

dentist and she wants to see him at 10:15 yikes I will not want to get up

then and take him but I will. Oh well I just thought I'd say hi since you

seem to be up.

love,

Update from Pennsylvania, USA

>

> Hi everyone,

>

> Well, today is Emma's third birthday. She has been doing okay. Her

> lungs have been great so far but she has a cold at the moment. She has

> also increased her vomiting again recently. She seems to have coughing

> fits that end up with her vomiting. Today we were giving her raspberries

> on her tummy and she was giggling up a storm and then it changed into a

> cough. I told my husband, grab her and take her in the bathroom, just as

> he got her there she threw up everywhere. On July 4th, she was running

> around with her sister and trying to be funny she ran into the bedroom

> door, this also caused her to throw up. She also is doing it quite

> frequently at meals. We have all of her reflux meds maxed out so we're

> not sure what to do.

>

> My older daughter, Isabelle, informed my husband yesterday that she

> had

> a dream about Emma the night before that upset her (she woke up and came

> and slept with me) and she refuses to tell him what happened in the dream

> because it frightened her so much. She is four years old (soon to be

> five) so I am not sure what to think. She is a real sensitive kid and

> she loves Emma a lot.

>

> My husband is home with the girls now. I am working. It's taking a

> lot

> of adjusting. I find I am still doing most of the stuff around the house

> and getting to spend no time with the girls which I don't like so I am

> trying to get him to do more during the day. He is doing fun things with

> them, like taking them to the free Regal movies every week and he has to

> do therapy in the morning and feed Emma four meals a day but I don't like

> the fact that we switched roles and I am still the one doing all of the

> other chores. My birthday was last week, I am feeling old now ... 36.

>

> I hope everyone is doing well. Welcome to all of the new people.

> By

> the way, we go to CHOP and we see Scanlan and Mascarenhas. I saw a

> number of other doctors when she was hospitalized for dehydration and not

> eating two years ago and I really liked Panitch and Clayton. I have a

> friend with a little girl with CF who has been going to CHOP for years

> and she said that there is one fellow in particular that is really bad

> and won't listen to the parent's gut instincts. Her daughter had a

> blockage and he insisted she didn't and overrode what the resident had

> written on her charts concerning it. Eventually, she insisted on an

> X-ray and they realized how bad it was and got it addresssed but the

> fellow basically wrote her off as being a hypochondric concerning her

> daughter. Anyway, she won't let him see her daughter. I don't know his

> name.

>

> Anyway, that's it for us. Talk to you later,

>

> - mom to the butterfly girls, Emma 3 w/cf and Isabelle 4 wo/cf

>

> ________________________________________________________________

> The best thing to hit the internet in years - Juno SpeedBand!

> Surf the web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

July 8, 2003

HAPPY BIRTHDAY . MAY SHE HAVE MANY , MANY MORE.

loVE & HUGS,

GRANDMOMBEV

Update from Pennsylvania, USA

Hi everyone,

Well, today is Emma's third birthday. She has been doing okay. Her

lungs have been great so far but she has a cold at the moment. She has

also increased her vomiting again recently. She seems to have coughing

fits that end up with her vomiting. Today we were giving her raspberries

on her tummy and she was giggling up a storm and then it changed into a

cough. I told my husband, grab her and take her in the bathroom, just as

he got her there she threw up everywhere. On July 4th, she was running

around with her sister and trying to be funny she ran into the bedroom

door, this also caused her to throw up. She also is doing it quite

frequently at meals. We have all of her reflux meds maxed out so we're

not sure what to do.

My older daughter, Isabelle, informed my husband yesterday that she

had

a dream about Emma the night before that upset her (she woke up and came

and slept with me) and she refuses to tell him what happened in the dream

because it frightened her so much. She is four years old (soon to be

five) so I am not sure what to think. She is a real sensitive kid and

she loves Emma a lot.

My husband is home with the girls now. I am working. It's taking a

lot

of adjusting. I find I am still doing most of the stuff around the house

and getting to spend no time with the girls which I don't like so I am

trying to get him to do more during the day. He is doing fun things with

them, like taking them to the free Regal movies every week and he has to

do therapy in the morning and feed Emma four meals a day but I don't like

the fact that we switched roles and I am still the one doing all of the

other chores. My birthday was last week, I am feeling old now ... 36.

I hope everyone is doing well. Welcome to all of the new people.

By

the way, we go to CHOP and we see Scanlan and Mascarenhas. I saw a

number of other doctors when she was hospitalized for dehydration and not

eating two years ago and I really liked Panitch and Clayton. I have a

friend with a little girl with CF who has been going to CHOP for years

and she said that there is one fellow in particular that is really bad

and won't listen to the parent's gut instincts. Her daughter had a

blockage and he insisted she didn't and overrode what the resident had

written on her charts concerning it. Eventually, she insisted on an

X-ray and they realized how bad it was and got it addresssed but the

fellow basically wrote her off as being a hypochondric concerning her

daughter. Anyway, she won't let him see her daughter. I don't know his

name.

Anyway, that's it for us. Talk to you later,

- mom to the butterfly girls, Emma 3 w/cf and Isabelle 4 wo/cf

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

July 8, 2003

Bless your heart . I was up

Had to leave just before you sent this (looked at time on post. BUT

..Your time is different there than here. :) I had some of my grandkids

here & took them thru Mcs on way to work. I couldn't take off

another day . I will be out so much this month & am VERY busy.

I am so sorry your Nick was having trouble. I hope as soon as you read

this it will be after you've gone to dentist & he is feeling better.

LOVE & HUGS, grandmomBEV

Re: Update from Pennsylvania, USA

HI Grandmom Bev,

I just wanted to say hi since you seem to be up so am I, I can't

seem to get to sleep. My son has a wisdom tooth absessed or something,

its hurting him must be alot for him to say anything, and so I called

the dentist and she wants to see him at 10:15 yikes I will not want to

get up then and take him but I will. Oh well I just thought I'd say hi

since you seem to be up. love,

Update from Pennsylvania, USA

>

> Hi everyone,

>

> Well, today is Emma's third birthday. She has been doing okay. Her

> lungs have been great so far but she has a cold at the moment. She

> has also increased her vomiting again recently. She seems to have

> coughing fits that end up with her vomiting. Today we were giving her

> raspberries on her tummy and she was giggling up a storm and then it

> changed into a cough. I told my husband, grab her and take her in the

> bathroom, just as he got her there she threw up everywhere. On July

> 4th, she was running around with her sister and trying to be funny she

> ran into the bedroom door, this also caused her to throw up. She also

> is doing it quite frequently at meals. We have all of her reflux meds

> maxed out so we're not sure what to do.

>

> My older daughter, Isabelle, informed my husband yesterday that she

> had a dream about Emma the night before that upset her (she woke up

> and came and slept with me) and she refuses to tell him what happened

> in the dream because it frightened her so much. She is four years old

> (soon to be

> five) so I am not sure what to think. She is a real sensitive kid and

> she loves Emma a lot.

>

> My husband is home with the girls now. I am working. It's taking a

> lot of adjusting. I find I am still doing most of the stuff around

> the house and getting to spend no time with the girls which I don't

> like so I am trying to get him to do more during the day. He is doing

> fun things with them, like taking them to the free Regal movies every

> week and he has to do therapy in the morning and feed Emma four meals

> a day but I don't like the fact that we switched roles and I am still

> the one doing all of the other chores. My birthday was last week, I

> am feeling old now ... 36.

>

> I hope everyone is doing well. Welcome to all of the new people. By

> the way, we go to CHOP and we see Scanlan and Mascarenhas. I saw a

> number of other doctors when she was hospitalized for dehydration and

not