Re: Steroid Pulse Therapy - Would like comments

[Guest guest]

Hi, Patty

This is Moonsung. My daughter had steroid pulse therapies several times and I would like to give you a general information about the therapy : (just a reference)

1) It uses 100 mg upto 1000 mg of Prednisone or eqivalent per day by injected vein flow with Glucose fluid.

2) Worrying about some heart shock when extremely high dose of PD, be recommended to use some electronic monitoring equipment to see the heart beat condition.

3) During 3 days of treatment, there may be some mouth and tongue disease(white fungi dominating) and stomach problems(souring), and you will be given some medicines to prevent them.

4) Blood sugar rate gets increased very high, but it will becomes normal when the treatment is over and you are back to be normal dose of PD. You may have some eye prolems (White water or Green water eyes) and need to be checked by eye doctor.

5) During the therapy, your immune system becomes so weak that you should be in a safe place, isolated from crowd people. You may have moonface, hairy and pale skin too.

I hope you have successful result from your therapy and become pain-and-flare free.

Best regards.

Moonsung Jun

Steroid Pulse Therapy - Would like comments

Hello All!Saw my Rheummy today and we decided to try three days of the steroid pulse therapy next week - have to go to the hospital get the treatment then come home each day. Would like comments from those of you that have had it so I kind of know what to expect the side affects to be. My doc told me I go in, get fluids then the drugs slowly. We are hoping that I can then get back down on the pred. - I don't want to go through another winter and spring like the last one - I want to have a life :)Hope everyone is feeling pretty good! Heidi - tell that Don to cut it out, he's our posterchild for good health LOL! and thank you for your update on Angie, we'll keep on praying!Patty B.

[Guest guest]

MOONSUNG,

What kind of steroids had be injected to your daughter ?

Do you remenber the name and the dose?

th for your answer

Marie-pia

[Guest guest]

Dear Marie-pia,

How is Coralie these days? I hope she is getting better.

For my daughter Inhae, her ears are OK, but her eyes are still in problem. She has always pinful bloodish eyes. Her doctor increased her PD to 15mg but it doesn't work at all. I think her eye problem comes from a side-effect because long-term use of several medicines must cause some damages to her liver, even though its test result shows no problem.

I asked her immunologist to arrange a glucose fluid injection for her but he rejected it. I believe that glucose fluid is not just a nutritional supplement but it has some positive effect for her liver and kidneys to be detoxificated by supplying glucose for liver and flushing kidneys. Sometimes experience says more than scientific evidence.

Re your question, Inhae took 1000mg/day of Methylprednisolone in Korea, 100mg/day of Prednisone in New Zealand with glucose fluid injection each. Their brand names are not in my memory. Sorry.

1000mg Pulse therapies were some of risk, so should be accompanied by intensive checking on the side-effects.

I am praying for Coralie.

Regards

Moonsung Jun.

P.S. I heard that there is a special injection ample of SuperOxide Dismutase(SOD) extract in France. It has reportedly remarkable effect for patients with autoimmune disease. Please ask your doctor about it. It might help Coralie.

Re: Steroid Pulse Therapy - Would like comments

MOONSUNG, What kind of steroids had be injected to your daughter ? Do you remenber the name and the dose? th for your answer Marie-pia DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU