Re: Deleriums back!!!!/was Liver/ Kidney Recipe needed

[Guest guest]

Jody, you missed that one...we did have to go back to intro with her! Diarrhea

is gone though! Thank GOD. In past (before SCD) we battled for it for weeks.

We will have to sneak the other foods (more advanced) to the others on SCD, when

she is not around. How fast do we go through the " stages " this time

around??????????

Last night she had delirium again (two so far and one mild seizure). Very

frustrating this set back. Does anyone know how long Elaine's Judy had them?

In BTVC book, it just says that they where the first to vanish. With Kiki they

vanished the first few weeks of SCD....only to return now that her gut is

re-damaged with Rotavirus. So many other gains that she had with SCD that have

not vanished though. She still is trying to talk! She still smiles~ She

still wants to Play! Thank God. Yet, I am getting a little panicked her with

this regression.

Hope you are feeling better too!

Thanks for suggestions, hope and anything you can offer, Antoinette mom to

Kiki-2 celiac/asd/atustic SCD 2/06

[Guest guest]

Antoinette,

If I were in your position, I'd probably read up on Rotovirus and see

how long the " typical " child takes to comepletely recover from it.

Then I'd probably double or triple that for Kiki because her gut was

not in " typical " shape when she got it.

I wouldn't try to rush through anything. I'd feed her well-cooked,

soft fruis and veggies. There are lots of fruits and lots of veggies.

You shouldn't run out of new things to give her for several weeks.

There sould be plenty of variety.

Banana, avocado, green beans, squash, applesauce, meat cooked in

water... theses would be the first things I'd try. The avocado will

supply much needed fat.

There is always the possibility of giving her things that will boost

her immune system. Colostrum or Transfer Factor.

Jody

mom to -7 and -9

Malabsorption/GI Issues

SCD 1/03

[Guest guest]

Dear Jody, or if anybody has experience strength and hope,

My husband and I have talked about " going out side " the SCD " box " and looking

into Clostrum and Transfer Factors. Contact me off serve or OT, what ever

suites you. We look forward to learning more.

The doctor said that it would be a MONTH for kiki to recover from this set back.

I just got off the phone with her. This is very frustrating, because we wanted

to start therapy with her. We do not want to do it if she is sick.

Thank you for suggestion of not rushing. You know me...I like to rush. Any

thing to slow me down is needed at this time! I want this night mare to be

over...needless to say we are only 4 months out. The first four gave me so much

hope, with success that I got blinded to the FACT that it takes time to heal...a

year or more according to BTVC. Now we have a " new " problem...she wants the

more advanced foods. This is going to be a trick....but hopefully, " out of sit

out of mind. "

She has sleep deprived, EEG next Tuesday to see what her brain is doing.

Antoinette and (celaic), parents to Kiki-2 celiac/autistic and two others

(add/adhd, hyperekplexia) SCD 2/06

[Guest guest]

Hi Antoinette;

Sorry to hear Kiki is having the deleriums again. Poor little girl.

I have no advice on the colostrum or transfer factors - no experience with

these...

You mentioned that you want to start therapy with Kiki - I'm assuming ABA or

speech/OT? Don't worry yourself about getting to the therapies. Concentrate on

getting her health stabilized. She probably wouldn't get the greatest benefit

from therapy at this point if she's still feeling cruddy.

And she's so young!! You've got lots of time :-) !!! And good for you for

thinking outside the SCD box. Sometimes our ASD kids need this.

(Can't seem to trim the post with this new format)

Kim

3+ weeks dairy free SCD

3 yo ASD, 2 yo NT

Re: Deleriums back!!!!/was Liver/ Kidney Recipe needed

Dear Jody, or if anybody has experience strength and hope,

My husband and I have talked about " going out side " the SCD " box " and looking

into Clostrum and Transfer Factors. Contact me off serve or OT, what ever suites

you. We look forward to learning more.

The doctor said that it would be a MONTH for kiki to recover from this set

back. I just got off the phone with her. This is very frustrating, because we

wanted to start therapy with her. We do not want to do it if she is sick.

Thank you for suggestion of not rushing. You know me...I like to rush. Any

thing to slow me down is needed at this time! I want this night mare to be

over...needless to say we are only 4 months out. The first four gave me so much

hope, with success that I got blinded to the FACT that it takes time to heal...a

year or more according to BTVC. Now we have a " new " problem...she wants the more

advanced foods. This is going to be a trick....but hopefully, " out of sit out of

mind. "

She has sleep deprived, EEG next Tuesday to see what her brain is doing.

Antoinette and (celaic), parents to Kiki-2 celiac/autistic and two

others (add/adhd, hyperekplexia) SCD 2/06

[Guest guest]

Dear Kim and Jody,

It has not been easy seeing her have problems like this again. Just

proof to how damged her intestines are once more. Seeing her in

this much pain is breaking my heart. Plus I am sleep deprived.

Having EEG next Tuesday..for what that will be worth, we do not

knwo. Untill then, SCD has stopped her diarrhea once more!

We try to hold on to those testimonies at times like this. Others

have had set backs too. You are right, therapy has to be

canceled...she is too sick. As for looking out side the box....this

is going to be with very careful judgement. Everything has to be

SCD legal...and if Elaine didn't like it...I doubt if we will be

doing it. Before SCD...we experimented with so much....we do not

want to waste any more time and see her suffer the consequences of

bad choices like last year...thank God she is young. We are looking

into SCD legal colustrum.

Antoinette and (both celiac) parents to Kiki-2 celiac and

autistic...and two sweet others. SCD 2/06