Re: New to CF Parents Board (not new to CF)

[Guest guest]

Hi Kelli,

welcome to the list!

A few of our members use glutathion and one kid takes (took?) part in

the study by Dr. Bishop. Search the archive for the keyword

glutathion and you'll find more info.

Peace

Torsten, dad of Fiona 6wcf and Sebastian six weeks wocf

> Hi All -

>

> I'm still trying to figure out just how this board works, I guess

> I'll just have to lurk around a bit. My name is Kelli and my

friend

> Gale recommended this board to me. (Hi Gale!) I have a son

> with CF who is just 18 .... also have another daughter and son -

both

> non CF. I lost my baby brother to CF in 1974 when he was just 5

> years old. I really don't have much to say yet except I was

> wondering if anyone out there is using the gluco.. stuff that the

> lady in Utah discovered? If so, how and where were you able to get

> it?

>

> Thanks,

> Kelli

[Guest guest]

WELCOME Kelli,

I know you will enjoy the lists . they are so good. Many folks are using

GSH , as it is called. with great results. Check all with your doctor too. I

know many will answer you too

LOVE & HUGS<

grandmomBEV

(19 yr. old granddaughter with CF.)

New to CF Parents Board (not new to CF)

Hi All -

I'm still trying to figure out just how this board works, I guess

I'll just have to lurk around a bit. My name is Kelli and my friend

Gale recommended this board to me. (Hi Gale!) I have a son

with CF who is just 18 .... also have another daughter and son - both

non CF. I lost my baby brother to CF in 1974 when he was just 5

years old. I really don't have much to say yet except I was

wondering if anyone out there is using the gluco.. stuff that the

lady in Utah discovered? If so, how and where were you able to get

it?

Thanks,

Kelli

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

You can get info about Glutathione at http://members.tripod.com/uvicf This is

the Utah Valley Institute of Cystic Fibrosis You can contact the woman who came

up with the idea as well as the doc in charge of the protocol from there. They

will also tell you who they recommend as a supplier since not all herbal

supplements are created equal.

good luck

New to CF Parents Board (not new to CF)

Hi All -

I'm still trying to figure out just how this board works, I guess

I'll just have to lurk around a bit. My name is Kelli and my friend

Gale recommended this board to me. (Hi Gale!) I have a son

with CF who is just 18 .... also have another daughter and son - both

non CF. I lost my baby brother to CF in 1974 when he was just 5

years old. I really don't have much to say yet except I was

wondering if anyone out there is using the gluco.. stuff that the

lady in Utah discovered? If so, how and where were you able to get

it?

Thanks,

Kelli

[Guest guest]

Hi Kelli!!! I'm glad that you joined the group. This is a great

group with some really smart people on it. I hope that is doing

well (and you too)! I know, I'm supposed to be working right now and

you caught me on here instead.

Abby had a PFT yesterday and it went well.

I found an inexpensive source for PARI nebulisers. It's at www.tri-

medinc.com We usually pay $50 for the PARI nebuliser kit. You can

buy them from Tri-Med for $14.95.

Have a good day!

Gale

> Hi All -

>

> I'm still trying to figure out just how this board works, I guess

> I'll just have to lurk around a bit. My name is Kelli and my

friend

> Gale recommended this board to me. (Hi Gale!) I have a son

> with CF who is just 18 .... also have another daughter and son -

both

> non CF. I lost my baby brother to CF in 1974 when he was just 5

> years old. I really don't have much to say yet except I was

> wondering if anyone out there is using the gluco.. stuff that the

> lady in Utah discovered? If so, how and where were you able to get

> it?

>

> Thanks,

> Kelli