Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 decent vitmain d sun is strongly immosupressive and can help damp down colitus type immue responses i don't even feeling like posting this cause people here are so 'head in the sand' THE DIET IS NOT 100% the answer if you have any decent sun, try and work out when its strongest (1 pm?) and get some whole body exposure, five or ten minutes may be enough oral vit d if its lanolin derived can be ok i have posted endlessly on enzymes why should i waste my time, have seen the way adults prefer to die than think, healing crow is a good example its listen to the fat man for diet advice syndrome people want bad advice from people with issues > > I had a horrible night last night. I was up with severe pain and > cramping. I'm not sure if it was due to my recent flare-up or change > in diet. I wasn't able to eat anything today except some broth I > saved when I made some chicken soup. I felt horrible all day and > still can't sleep tonight. I feel like I'm doing this all by myself. > My GI doc says special diets are " a waste of time " . (by the way, he > has put me on Pentasa - 2 huge horsepills 4 times/day - I almost don't > have room for food anyway.) I'm the only one in the house on the diet > so I'm cooking double. I just wish I didn't feel so alone. I know > it's going to get better eventually. I just don't know how I'm going > to get over the hump. Any words of wisdom for getting through this? > Thanks > Dora > Crohn's SCD 4 days > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 > > THE DIET IS NOT 100% the answer > > , Those who follow it and have good results are fortunate and that it is the case for them. Options exist for others. We are here to help those who are using BTVC to get started on the right path. We are neither a cult nor are we dictatorial. Since Elaine stated the importance of compliance and adherance, it seems the wise course to follow until proven otherwise. SCD is like any major change. It can seem daunting at first. I am sorry you see deficiencies in the diet and appreciate your constant research into nuances that are not always visible to the rest of us. Dietary intervention can't have enough dedicated scientists. Since you have said what you do, you must do first and foremost for yourself, do not take umbrage when your advice is not heeded. An emphatic, critical and direct approach can be off putting as well! I perceive your impatience as being from frustration that we do not always see what you see. Many here have seen value in your suggestions and expressed appreciation. Carol F. Toronto, celiac, SCD 6 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Dora, I am sorry to hear that you are having a tough time. Your journey on SCD has only just begun and it will be an uphill battle, trust me. We are here for you so try to think of us when you struggle so that you won't feel so alone. Do you tolerate the yogurt? I have found that yogurt smoothies are great at soothing a sore tummy. Gelatin and just the usual intro diet stuff. When did your doc put you on the Pentasa? I wonder if its possible that the meds are not helping but perhaps aggravating. I am not suggesting going off it but the 5-ASA's don't seem to have a good track record. Elaine always prefered the Sulphasalazine if you could tolerate it. I could not so I take Salofalk which is also a 5-ASA except time released differently. It's a thought. Keep your chin up and try not to exert yourself too much. You could also be in the die-off stage. Those bugs want another go at living and they will do anything they can to survive including making you feel terrible. Charlene UC 8 years SCD 5 1/2 years >I had a horrible night last night. I was up with severe pain and > cramping. I'm not sure if it was due to my recent flare-up or change > in diet. I wasn't able to eat anything today except some broth I > saved when I made some chicken soup. I felt horrible all day and > still can't sleep tonight. I feel like I'm doing this all by myself. > My GI doc says special diets are " a waste of time " . (by the way, he > has put me on Pentasa - 2 huge horsepills 4 times/day - I almost don't > have room for food anyway.) I'm the only one in the house on the diet > so I'm cooking double. I just wish I didn't feel so alone. I know > it's going to get better eventually. I just don't know how I'm going > to get over the hump. Any words of wisdom for getting through this? > Thanks > Dora > Crohn's SCD 4 days > > > > > > > For information on the Specific Carbohydrate Diet, please read the book > _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following > websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Dora, We don't have Crohns, but this is really the hardest time. The time in the kitchen doesn't help--I found the first month of food prep to be exhausting....big time. After a few weeks I told everyone we were SCD and if they wanted something else they would need to prepare it....of course, that cut down on expectations and was helpful. We're saving lives here, you know?? lol The next month I cleaned out all the cabinets--just SCD food left. I threw out and gave away. That was VERY helpful. It really was crucial in my mental survival. Plus, there has to be room for the new food, the blender, the food processor, the mini food processor....stuff. Lorraine > > I had a horrible night last night. I was up with severe pain and > cramping. I'm not sure if it was due to my recent flare-up or change > in diet. I wasn't able to eat anything today except some broth I > saved when I made some chicken soup. I felt horrible all day and > still can't sleep tonight. I feel like I'm doing this all by myself. > My GI doc says special diets are " a waste of time " . (by the way, he > has put me on Pentasa - 2 huge horsepills 4 times/day - I almost don't > have room for food anyway.) I'm the only one in the house on the diet > so I'm cooking double. I just wish I didn't feel so alone. I know > it's going to get better eventually. I just don't know how I'm going > to get over the hump. Any words of wisdom for getting through this? > Thanks > Dora > Crohn's SCD 4 days > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 I just want to clarify 's statement for new members. is a strong believer in SCD but believes that other things such as such as sun exposure have to be added in. There was recently a debate between those who believe that SCD is the only thing that children with autism need and those who believe that SCD should be the foundation with other treatments added in. In other words:100%SCD vs SCD being 90% of the answer. Both sides agree that SCD is an incredibly powerful intervention for children with autism and other neurological conditions. Mimi >> THE DIET IS NOT 100% the answer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 > There was recently a debate between those who believe that SCD is > the only thing that children with autism need and those who believe > that SCD should be the foundation with other treatments added in. In > other words:100%SCD vs SCD being 90% of the answer. > Both sides agree that SCD is an incredibly powerful intervention for > children with autism and other neurological conditions. > > Mimi > > >> THE DIET IS NOT 100% the answer THE DIET is recognized as an important part of the answer and the one we have elected to support here. Pecanbread is a great resource and as such should not be a battle ground or the message will be diluted. We will continue our do our best to supply the much needed answers for those who have embraced SCD for whatever reason and we continue to add resources and give guidance in the kindest and clearest ways we can. Carol F. Toronto, celiac, SCD 6 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Dear Doran, You are not alone. We hear you and anyone hear knows your pain is real. Pain is not fun~ Yes, must doctors don't get it. This was my experience. I trust that others have given you experience strength and hope here at Pecan Bread. They have been a God send to me and my family. I too had a rough start on this diet. It got better at around day 10. I hope that this number does not overwhelm you. I ate one meal at a time, one hour at a time...one day at a time. Sounds quaint, but it worked. Mostly remember " this too shall pass " ! Hang close to the serve, and if you want to chat off line, I can always use someone to talk to. I feel alone too! God Bless you on your healing journey. I am now a SCD keeper, I have never felt better in my life. Antoinette Celiac SCD 2/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Greetings; My son has frequent debilitating GI pain. One of our most effective salves is to rub oil (usually castor or extra virgin olive) on his abdomen, cover it with saran wrap, and then apply a heating pad. It seems greatly therapeutic - at least during the treatment. Due to his impaired communication faculties I really don't know how long the effect lasts. Supposedly castor oil has anti-microbial properties in addition to the well known increase in intestinal motility from oral administration. Exactly how much ricinoleic acid (the predominant FA in castor oil) will be taken up into intestinal tissue via transdermal application is going to be highly variable. Therefore, if you use castor oil, proceed slowly and with care. Regarding your physician: when anyone, regardless of qualifications, tells you that the food you put into your gut doesn't have impact on the tissue that assimilates it be wary. If you had a raw lesion or laceration on your arm, do you think it would make a difference whether you rubbed it with salt or aloe? Good luck. At 02:52 AM 6/1/2006, you wrote: >I had a horrible night last night. I was up with severe pain and >cramping. I'm not sure if it was due to my recent flare-up or change >in diet. I wasn't able to eat anything today except some broth I >saved when I made some chicken soup. I felt horrible all day and >still can't sleep tonight. I feel like I'm doing this all by myself. >My GI doc says special diets are " a waste of time " . (by the way, he >has put me on Pentasa - 2 huge horsepills 4 times/day - I almost don't >have room for food anyway.) I'm the only one in the house on the diet >so I'm cooking double. I just wish I didn't feel so alone. I know >it's going to get better eventually. I just don't know how I'm going >to get over the hump. Any words of wisdom for getting through this? >Thanks >Dora >Crohn's SCD 4 days > > > > > >For information on the Specific Carbohydrate Diet, please read the >book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the >following websites: ><http://www.breakingtheviciouscycle.info>http://www.breakingtheviciouscycle.inf\ o >and ><http://www.pecanbread.com>http://www.pecanbread.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Antoinette and all, Thanks for the words of encouragement. I'm feeling a little better today - could have done without the small bowel series this morning. Yuck! I'll just keep living one moment at a time. I just hope that eventually it won't consume my whole life like it is now. Dora Crohn's SCD 5 days > > Dear Doran, > > You are not alone. We hear you and anyone hear knows your pain is real. Pain is not fun~ Yes, must doctors don't get it. This was my experience. I trust that others have given you experience strength and hope here at Pecan Bread. They have been a God send to me and my family. > > I too had a rough start on this diet. It got better at around day 10. I hope that this number does not overwhelm you. I ate one meal at a time, one hour at a time...one day at a time. Sounds quaint, but it worked. Mostly remember " this too shall pass " ! > > Hang close to the serve, and if you want to chat off line, I can always use someone to talk to. I feel alone too! > > God Bless you on your healing journey. I am now a SCD keeper, I have never felt better in my life. > > Antoinette Celiac SCD 2/06 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Antoinette and all, Thanks for the words of encouragement. I'm feeling a little better today - could have done without the small bowel series this morning. Yuck! I'll just keep living one moment at a time. I just hope that eventually it won't consume my whole life like it is now. Dora Crohn's SCD 5 days > > Dear Doran, > > You are not alone. We hear you and anyone hear knows your pain is real. Pain is not fun~ Yes, must doctors don't get it. This was my experience. I trust that others have given you experience strength and hope here at Pecan Bread. They have been a God send to me and my family. > > I too had a rough start on this diet. It got better at around day 10. I hope that this number does not overwhelm you. I ate one meal at a time, one hour at a time...one day at a time. Sounds quaint, but it worked. Mostly remember " this too shall pass " ! > > Hang close to the serve, and if you want to chat off line, I can always use someone to talk to. I feel alone too! > > God Bless you on your healing journey. I am now a SCD keeper, I have never felt better in my life. > > Antoinette Celiac SCD 2/06 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Dora Said: I just hope that eventually it won't consume my whole life like it is now. Honey I don't have Crohn's but I have Celiac/IBS and I am 4 months out SCD. I truly do not know much about Crohns. Yet, would like to share hope. For the first time in my life I now have days that I forget that I had problems. I hope that you have similar success. I truly can relate with pain, doctors and tests consuming your whole life. We are survivors, anybody who has debilitating GI problems! Hang in there! It is worth the sacrifice of some foods to feel better. Antoinette Celiac SCD 2/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Antoinette, Thanks for the kind words. Lord knows I need them! Dora > > Dora Said: I just hope that eventually it won't consume my whole life like it is now. > > Honey I don't have Crohn's but I have Celiac/IBS and I am 4 months out SCD. I truly do not know much about Crohns. Yet, would like to share hope. For the first time in my life I now have days that I forget that I had problems. I hope that you have similar success. I truly can relate with pain, doctors and tests consuming your whole life. We are survivors, anybody who has debilitating GI problems! Hang in there! It is worth the sacrifice of some foods to feel better. > > Antoinette Celiac SCD 2/06 > > > > Quote Link to comment Share on other sites More sharing options...
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