Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Thank you for this post!! You are speaking from my very own thoughts. We aren't banded yet and haven't even gotten that far but I find myself doing the same thing. I assess all heads I see, am constantly examining my sons, checking for more flatness, and sometimes feel I am finding more fault than is really there. I am worried I've become one of " those " moms, but I know in my heart I'm not overthinking. > > Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, > thats all I have to say.... > - > Cole has been in his DOCband since 12/1/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Plagio does sort of ruin us. I'm always looking at headshape. I'm still in this group years after my daughter graduated, so it is a constant topic for me :-) I still see her problem areas, but am glad I found out in time to help improve her head. I do notice it in others no matter what age. -christine sydney, 3 yrs, starband grad > > Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, > thats all I have to say.... > - > Cole has been in his DOCband since 12/1/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2009 Report Share Posted February 21, 2009 Wow I thought I was the only one! The first thing I do when I see a baby or toddler is look at the head shape...even adults! Just like the fact that Zach graduated- if I had never gone through this and this was his head shape-I don't think I would be talking about the dents and flat spots.... I wouldn't know the difference! Hopefully it will get easier with time > > > > Just wanted to post my thoughts. Would love to know if other's feel > the same way as I do. Plagio has caused me to look at my son's head > first rather than his face. I am constantly assessing the shape of it > when his helmet is not on. When I see other babies I look straight at > the head shape and compare and even feel envious of the naturally > round headed babies out there. Before it was even pointed out to me > that my son had plagio I would have never even thought twice about > weird head shape. I just never even looked for it and now its all I > can seem to focus on whether its my baby or a friends. I honestly hope > that once we are out of the helmet I will not worry about his head > shape and also not constantly assess everyone elses headshape! Even > adults I meet I size their heads up too! This just feels nuts! My son > has 7 more days left in his helmet and its not as round as I thought > it would be but I am ready to be done with it and move on with our > lives. Ok, > > thats all I have to say.... > > - > > Cole has been in his DOCband since 12/1/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 I am the same way, I look at babies heads all the time. We were watching a Baby Einstein video and I noticed one baby had Barchy. Who would notice that??? Sounds like all of us! I look at adults too. I am really obsessed with my son's head when he has the helmet off. I hope this gets easier as time goes on. I know I will probably obsess even more when the helmet is off because I fear regression. > > > > > > Just wanted to post my thoughts. Would love to know if other's > feel > > the same way as I do. Plagio has caused me to look at my son's head > > first rather than his face. I am constantly assessing the shape of > it > > when his helmet is not on. When I see other babies I look straight > at > > the head shape and compare and even feel envious of the naturally > > round headed babies out there. Before it was even pointed out to me > > that my son had plagio I would have never even thought twice about > > weird head shape. I just never even looked for it and now its all I > > can seem to focus on whether its my baby or a friends. I honestly > hope > > that once we are out of the helmet I will not worry about his head > > shape and also not constantly assess everyone elses headshape! Even > > adults I meet I size their heads up too! This just feels nuts! My > son > > has 7 more days left in his helmet and its not as round as I > thought > > it would be but I am ready to be done with it and move on with our > > lives. Ok, > > > thats all I have to say.... > > > - > > > Cole has been in his DOCband since 12/1/08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 I have to say I am surprised, I guess from how many of us feel so negatively about noticing head shape. I was always really concerned about my daughter since when she was born her face was SEVERELY asymmetrical - her twin was much more symetrical, smaller, with daintier features. Looking at my poor plagio daughter caused a lot of post-partum tears! When we found out about the whole band thing & were finally told (when she was FIVE months old!) that she had torticollis & severe Plagio - I was literaly nauseous! Now that she's been in PT, OMM & about to get her band, I couldn't be more excited! She's really evening out even before the band! Now when I look at her - if I notice the asymmetry at all anymore I just think about how much better she looks now & can't help mirror her big huge smiles back to her. I really did start noticing head shapes - other babies, adults, kids, dogs, you name it! But I have never really been jealous, instead, I've had to laugh at how asymmetrical most of us are in one way or another!! Think of it this way - as a kid growing up in some of the largest cities in the country, I never noticed anything strange about my friends until junior high when someone pointed out that we were all different ethnicities... noticing differences is what allows us to define ourselves as individuals - thinking negatively about those differences is what leads to prejudice. > > > > > > > > Just wanted to post my thoughts. Would love to know if other's > > feel > > > the same way as I do. Plagio has caused me to look at my son's > head > > > first rather than his face. I am constantly assessing the shape > of > > it > > > when his helmet is not on. When I see other babies I look > straight > > at > > > the head shape and compare and even feel envious of the naturally > > > round headed babies out there. Before it was even pointed out to > me > > > that my son had plagio I would have never even thought twice > about > > > weird head shape. I just never even looked for it and now its > all I > > > can seem to focus on whether its my baby or a friends. I > honestly > > hope > > > that once we are out of the helmet I will not worry about his > head > > > shape and also not constantly assess everyone elses headshape! > Even > > > adults I meet I size their heads up too! This just feels nuts! > My > > son > > > has 7 more days left in his helmet and its not as round as I > > thought > > > it would be but I am ready to be done with it and move on with > our > > > lives. Ok, > > > > thats all I have to say.... > > > > - > > > > Cole has been in his DOCband since 12/1/08 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 It's true. It's a nerve-wracking thing to have to go through, for all of us. I do think it's helpful, however, to consider the fact that some parents go through much worse. I know a child who was born with a rare disease that causes his veins and arteries to grow in a chaotic and highly-multiplied fashion and he's been in and out of hospitals for 9 years and has had a leg amputated and probably won't reach maturity. I'm not saying that to encourage anyone to gloat over someone else's misfortune, only to point out the obvious, that there are different degrees of problems that infants and children can face growing up and, well... thank god for helmets and bands and the people who developed the technology to make them possible. I have a friend whose brother should have gotten one when he was a child and he didn't and he grew up being laughed at in school. What we have to go through is not easy. But it's doable. Thank god it's doable. > > Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, > thats all I have to say.... > - > Cole has been in his DOCband since 12/1/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 all I can say is AMEN! I am the same way and its driving me nuts!!! I'm gonna lose it. I never even knew this condition existed and then once it affected my son its all that consumes my thoughts. when his helmet is on I feel better than with it off cause I still feel like the shape is just terrible and very noticable. UGH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Jayden will be 13 months on the 5th. Same here from 7 to 12 months we wasted growth with the stupid hanger band and an inexperienced ortho. Grrr. I hope jayden doesn't need a second band I have no money left after these weekly trips to ArizonaSent via BlackBerry from T-MobileFrom: L R Date: Tue, 3 Mar 2009 17:19:01 -0800 (PST)<Plagiocephaly >Subject: Re: Re: I hate you PLAGIO Antonia, There was a time when I felt exactly the same way. I prefered Maysa with her band on rather than off because her plagio/brachy was so obvious to me. She is 13 months old now and in a second band and if we were nearing the end of the life of the band I would be happy to see her graduate. I never thought I'd ever be happy with her headshape, especially after wasting 3.5 months of good growth in the wrong helmet, but it's actually happening to me. It's been a long road though so patience, hope and perseverance were key. I don't remember exactly how old your son is but I remember that he is younger than Maysa, so he should be hitting a growth spurt soon. Hang in there, LeilaMaysa, 13 months old, week 5 in DOC band 2http://mymaysa.wordpress.com/ From: Antonia <mommy2jaylinaaol>Subject: Re: I hate you PLAGIOPlagiocephaly Date: Tuesday, March 3, 2009, 6:15 PMall I can say is AMEN! I am the same way and its driving me nuts!!! I'm gonna lose it. I never even knew this condition existed and then once it affected my son its all that consumes my thoughts. when his helmet is on I feel better than with it off cause I still feel like the shape is just terrible and very noticable. UGH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Antonia, There was a time when I felt exactly the same way. I prefered Maysa with her band on rather than off because her plagio/brachy was so obvious to me. She is 13 months old now and in a second band and if we were nearing the end of the life of the band I would be happy to see her graduate. I never thought I'd ever be happy with her headshape, especially after wasting 3.5 months of good growth in the wrong helmet, but it's actually happening to me. It's been a long road though so patience, hope and perseverance were key. I don't remember exactly how old your son is but I remember that he is younger than Maysa, so he should be hitting a growth spurt soon. Hang in there, Leila Maysa, 13 months old, week 5 in DOC band 2 http://mymaysa.wordpress.com/ --- On Tue, 3/3/09, Antonia <mommy2jaylina@...> wrote: From: Antonia <mommy2jaylina@...>Subject: Re: I hate you PLAGIOPlagiocephaly Date: Tuesday, March 3, 2009, 6:15 PM all I can say is AMEN! I am the same way and its driving me nuts!!! I'm gonna lose it. I never even knew this condition existed and then once it affected my son its all that consumes my thoughts. when his helmet is on I feel better than with it off cause I still feel like the shape is just terrible and very noticable. UGH Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.