Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 --- Heidi Main wrote: > How to we deal with Drs. ???? > So I start calling Drs. and always > ask first " Do you know anything about RP " if the > answer was yes I made a appointment with him/her and > interviewed them before I would let Don go there. > Well I told them what I was looking for in there > service and I also told them right off the bat the > where not only dealing with Don but with me also. > After all we was the one that was paying there > salary.So I ask them could the deal with that. After > the interview I either told them to go back to > school or Ok I would bring Don in. I love this! Wish I had that kind of guts several years ago when I had my nightmare doctor! Heidi, maybe your new job should be patient/doctor co-ordinator. You could find good doctors for all those who have rotten ones. You made my day. Love, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 You girl Girl!!!!!!!--- Heidi Main wrote: > How to we deal with Drs. ???? > > Ok here is Don's story about Drs. > When he first was diagnosed with RP our world came a > part. And that is when I learnt how Bad some of the > Drs, really are. So I realized it was up to me to > find help for Don's Problem. > The Dr. here in Tulsa diagnosed Don with RP but do > to the fact by the time I lost all faith in Drs. I > made Don go to the Mayo Clinic in Rochester > Min.There we learnt he should have > a team of Drs. for this disease and also have base > lines done. So when we got back I started looking > for all does Drs. So I start calling Drs. and always > ask first " Do you know anything about RP " if the > answer was yes I made a appointment with him/her and > interviewed them before I would let Don go there. > Well I told them what I was looking for in there > service and I also told them right off the bat the > where not only dealing with Don but with me also. > After all we was the one that was paying there > salary.So I ask them could the deal with that. After > the interview I either told them to go back to > school or Ok I would bring Don in. Now Don has some > pretty good Drs. His Primary and ENT did not know > much about RP but was willing to learn all about it. > Yes I have giving them all the information from the > internet and this group so the could learn. When I > did send them Information I also would check back > with them later on and see if the really have read > it or not. Not only that the now have gone to all > the Drs. sides on the internet so the know how to > deal with RP. It took me a while with Don's rheumy . > Yes he needed to come off his high horse and work > with us.He is getting better > because I am just to stoporn to give in. He hates it > that I know now just as much about RP as he does. > But slowly he is seeing my side off this. So make > sure when you do get a new Dr. does he listing to > your Problem or is he just there for the money ?? > How easy is he/she to get a hold of in case of > emergencies?? Does he/she return your calls ?? Is he > willing to learn more about RP ?? Is it Ok to get > 2nd opinion ?? Can he/she work also with all your > other Drs. you will need ??? > I know it is very hard to find good Drs. but hang in > there. Um so more you learn about RP the better you > can find a good Dr. > And this group sure will help you learn it.Just > remember you are PAYING there salary and therefore > you make them listing to you. If not find the next > Dr. till you get the right team. > I hope this will help you too, > Heidi > > > > > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 I agree!!!! Your great and you should give us all lessons on finding the best Dr's we can!!!!! --- Sharon King wrote: > > --- Heidi Main wrote: > > How to we deal with Drs. ???? > > > So I start calling Drs. and always > > ask first " Do you know anything about RP " if the > > answer was yes I made a appointment with him/her > and > > interviewed them before I would let Don go there. > > Well I told them what I was looking for in there > > service and I also told them right off the bat the > > where not only dealing with Don but with me also. > > After all we was the one that was paying there > > salary.So I ask them could the deal with that. > After > > the interview I either told them to go back to > > school or Ok I would bring Don in. > > I love this! Wish I had that kind of guts several > years ago when I had my nightmare doctor! Heidi, > maybe your new job should be patient/doctor > co-ordinator. You could find good doctors for all > those who have rotten ones. You made my day. Love, > Sharon > > ===== > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 heidi, That's so true. It's really hard here, in France to find good drs. The most of them doesn't accept you know more about RP than the drs. .. Ihave a question for you and all the group . Since 2 or 3 flares Coralie have tremor specially in her arms and legs now. Even without any medications. Iwas a bite scary yesterday and i could have her dr. on phone ..So i gave her pred. 50m/day She has been suffering since 3 days and wasn't able to go to school. Have you some information about tremor and RP. TH. Marie-pia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 In a message dated 1/12/02 1:34:00 PM Pacific Standard Time, sisterslk@... writes: << Heidi, maybe your new job should be patient/doctor co-ordinator. You could find good doctors for all those who have rotten ones >> Oh Sharon, I think that is a wonderful idea. Come on Heidi, go for it. There are many times I've wished I had Heidi at my dr appts. Quote Link to comment Share on other sites More sharing options...
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