Re: Thanks Laurie

[Guest guest]

Hi ,

Three kids too! I don't know how you do it. I don't mean to sound

selfish but I don't know how I would have managed these last

four years if I had to raise kids too. As it is, my illness allowed

me to neglect one of my kitty's health problem so much so that

he died from it last August. The guilt that I feel from that is so

overwhelming that I don't know how I could live with myself if I

had to be responsible for three precious human beings! I hope

your fun day works out for all of you.

I think your reasoning for lifting weights is sound. Slow, repetitive

movement that builds up muscles should be alright, I would

think and it may help with circulation and endorphin production

and appetite and overall mental well being too.

I chuckle at your reluctance to discuss this with your doctor - you

are right that this is something that they just don't get. When I

was rapidly losing weight when I first got sick, my first GI didn't

even address this with me, but when I looked at my medical

records last fall in preparation for a second opinion, I noticed that

in his notes this was a concern to him. I lost about 50 pounds

in 12 months or so (164 to 112lbs) and initially I was ecstatic to

have a svelte physique again but then became concerned when

it seemed that I couldn't stop losing. At this time, I fluctuate

between 115 and 125lbs - usually stay close to 118 depending

on my flare status. I guess what I am saying, is that maybe you

should mention this to your doctor if you start to notice a huge

weight loss - even though he may look like he is not concerned,

he may consider it important. My surgeon always said that I

shouldn't worry until I became emaciated....But I thought if I

waited that long it would be too late. However, the first thing

docs believe when a female loses weight is that she is

depressed.......so this may not be something that you want to get

into with him either.

I have not noticed any particular pattern to my eating preference

other than not wanting to eat at all. Doesn't seem to matter what

time of day - it just hurts - but I usually can eat at 11:00 then

again about 7:00 at night. My recent goal as part of my " MOM "

(MInd Over Matter) experiment is to re-establish a twice a day

eating habit (I frequently eat once a day only). What is working

best for me now is to split up my meal: I have my veggies and a

half can of soda for lunch then a sandwich and desert (and

maybe water) for supper. Sometimes I can sneak in a snack in

the late afternoon. I have consistently done this for almost a

week now. Last thursday was the last time I skipped a day! and I

feel that I am putting on weight.

I work in a clinical lab at a teaching hospital. Luckily I work alone

so I can tailor my day's work to how ambitious I am feeling. I

have had to modify many of my procedures but mainly to

address the mental fog that I get into when the pain levels get

very interferring. I have lots and lots of checklists!!!

Oh and guess what? We are finally getting snow! It looks like a

real snowstorm outside now and I can't wait to get into the car

and drive home! I love driving in snow.....so maybe I will have a

little more activity this weekend too.

Laurie