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Re: Re: Piper

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We use Peptamin 1.5 for 's tube feeds as well, but I think they make it as

a drink as well. It is made by Nestle. Maybe it is on their site????

Re: Piper

Is Peptamen something that a child can drink? or is it for feeding

tubes only?

Sara - Mommy to Zach 17 months and hasn't gained an ounce since April

so for those of you who are having problems with weight gain, I

would ask about the Peptamen 1.5, it is made to go through feeding

tubes, and is 375 cal/can each can is about 8 oz.

>

>

> Katy

> Mom to Austin 4 no CF & Piper 1 w/CF

>

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The Peptamen, is supposed to be unflavored, but it doesn't look or smell like

something that a child would want to drink. It is also very thick, does Zach

have a feeding tube? Have the doctors discussed putting one in? The label for

the Peptamen says " Ready to use for either oral or tube feedings " . Hope this

helps.

Katy

Mom to Austin 4 no CF & Piper 1 w/CF

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Have you tried adding Scandishake to his milk? It has a lot of calories, 560

cal when mixed when mixed with lactose-fee milk. Worth a try!! It tastes like

a milkshake, and comes in Strawberry, Chocolate, and vanilla.

Katy

Mom to Austin 4 no CF & Piper 1 w/CF

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The clinic should have samples for you to try to see if it will go

down...:):):)

I am sure they will have some. We don't get samples to give or I would send

to you BUT , they only give to doc offices(clinics.) Another weight gainer

is EPULOR by Vistapharm. (they were the ones who worked with Scandipharm &

their Scand shakes....left & started their own. 1.5 ounce has 320 calories.

You can add to anything ..........vanilla(you add any flavor or add into

anything they will eat or drink & the lemon........ good luck , whatever you

can do

LOVE & HUGS, grandmomBEV

Re: Piper

I will ask about it tomorrow. Thanks!

Sara

> Have you tried adding Scandishake to his milk? It has a lot of

calories, 560 cal when mixed when mixed with lactose-fee milk.

Worth a try!! It tastes like a milkshake, and comes in Strawberry,

Chocolate, and vanilla.

>

>

>

>

> Katy

> Mom to Austin 4 no CF & Piper 1 w/CF

>

>

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Hey Sara,

DupCal is also good. It is a powdered supplement to add to anything liquid. It

has no flavor but Too much does make things taste a bit gritty. I can put about

2 tbs 8 oz of milk though. It adds a lot of calories, too!

Re: Piper

I will ask about it tomorrow. Thanks!

Sara

> Have you tried adding Scandishake to his milk? It has a lot of

calories, 560 cal when mixed when mixed with lactose-fee milk.

Worth a try!! It tastes like a milkshake, and comes in Strawberry,

Chocolate, and vanilla.

>

>

>

>

> Katy

> Mom to Austin 4 no CF & Piper 1 w/CF

>

>

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That's DuoCal, my typing is bad in the morning ( and most other times too!

Re: Piper

I will ask about it tomorrow. Thanks!

Sara

> Have you tried adding Scandishake to his milk? It has a lot of

calories, 560 cal when mixed when mixed with lactose-fee milk.

Worth a try!! It tastes like a milkshake, and comes in Strawberry,

Chocolate, and vanilla.

>

>

>

>

> Katy

> Mom to Austin 4 no CF & Piper 1 w/CF

>

>

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Hi How old is Zack.

Cody 16month w/CF

Re: Piper

Zach does not have a feeding tube. He has always been a vigourous

eater and until he was 10 months old, he steadily gained weight.

The first 6 weeks after his diagnosis he gained over 2 pounds, but

since then - nothing. He eats everything - hot dogs, french fries,

pudding, scrambled eggs, kit kats, etc. I recently started feeding

him Boost vanilla pudding and he really likes it. He seems to only

want to drink Lactaid whole milk and will refuse regular whole

milk. How he knows the difference is beyond me. He takes 6 Ultrase

pills with each meal and the doctor says that is all he can have.

His stools are still really mushy and yellow. We go to clinic

tomorrow. They want to switch him to Pancrecarb, but only after

seeing him and weighing him first. I hope the new enzymes work. I

can't think of anything more to feed him that is super high fat. I

will ask about Peptamen or something like it. Thanks for the info!

Sara

> The Peptamen, is supposed to be unflavored, but it doesn't look or

smell like something that a child would want to drink. It is also

very thick, does Zach have a feeding tube? Have the doctors

discussed putting one in? The label for the Peptamen says " Ready to

use for either oral or tube feedings " . Hope this helps.

>

>

>

>

> Katy

> Mom to Austin 4 no CF & Piper 1 w/CF

>

>

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